It's all too much!

 

So recently I have had chest pain in angina and breathing problems coupled with what I thought was fatigue from an ongoing fibromyalgia flare.

My blood pressure sky rocketed, requiring a visit to a cardiologist who ordered an echocardiogram. My general practitioner told me if the results were bad, he would contact me. And he did.

I got the call last Friday telling me to make an appointment for a phone consult so I ended up speaking to the doctor on Monday. He told me I have heart failure due to Pulmonary Hypertension.

There is no cure for it but there are some treatments. I am already on blood thinners which I will stay on as PH can cause blood clots in the lungs. I already take 7 blood pressure tablets a day.

I often have felt dizzy and this is another symptom of PH and I feel like I can't get enough air in at times. The time will come when I will probably need oxygen at home.

Forget about exercise- I nearly collapse with exhaustion after walking up our long passage to answer the door.

I will know more tomorrow when I see the doctor in person. This is needful because he wants to check out the swelling in my feet, ankles and legs. I suspect I have fluid in my abdomen too. It hurts and is tight like a drum.

I had a blood test yesterday to check on my kidney function and this will be a regular thing.

Lately it's been one thing after another and I am a tad depressed. Prayers would be much appreciated. It's all too much! 

© Glenys Robyn Hicks

Fear not, for I am with you; Be not dismayed, for I am your God. I will strengthen you, Yes, I will help you, I will uphold you with My righteous right hand.’ Isaiah 41:10

Worth every cent!

 

I have enjoyed using my Roomba robotic vacuum so much that I have bought another robotic vacuum that also mops the floors.

Our home has lots of tiles on the floor and it takes a good deal of spoons to keep them clean. These two robotic vacuums saves me on energy and pain.

There's been little energy and a lot of pain these last few weeks. My blood pressure is still high even with me resting more. It's a bit of a puzzle really as emotionally I am good-or as good as someone with constant fibromyalgia pain can be. So I am not stressed.

I am enjoying our new home and it is finally decorated and things unpacked. I have also been decluttering and have given away quite a few things that I found were only taking up space without bringing me joy.

Anyway, I highly recommend all Sacrificial Home Keepers get a robotic vacuum- preferably one that mops as well as vacuums. They are coming down in price but I assure you, they are worth every cent!

I am beyond tired!

 

After a good day yesterday, I ended up flat on my back. Actually that is in bed. My doctor said my BP was too high at 187/87 and he put me on more meds. I planned to do some organising of my wardrobe but it was not to be.

Half an hour after taking my BP medication, I found I couldn't keep my eyes open, so I went to bed. Woke up a couple of hours later just in time to cook dinner. Dinner wasn't very exciting- a steak sandwich.

Tonight I had to take my usual dose of BP tablets and I am just about to go to bed. It's so frustrating! But with chronic illness, it is what it is!

I have to go back to him in two weeks. He is going to discuss giving me Endep for my fibromyalgia pain.

Unable to sit for long, I have culled a lot of FB groups and deleted my Twitter account. I want to reserve whatever spoons I have to look after Chris and our home. I need to spend more time with him and not on the computer.

This dance with chronic illness has it lead all the way. It steps on your toes and cramps your style. It holds you captive. I just want a break from it. I am beyond tired! 

Having patience with yourself

  

Lately, I have realised that one of the reasons for my high blood pressure is probably in the way I stress about not being able to do what I want due to fibromyalgia.

Although I know that I am not to blame for being ill, I sometimes find myself berating myself and feeling cross that I am a lame duck. It really gets to me at times.

Often I succumb to false guilt, the guilt that comes from matters that are not in my control, and it is easy to go to the Pit of Despair. You do not want to go there.

On rare occasions, I burst into tears and it is then that Chris usually comes to my rescue, pointing out that it's not my fault, that whatever needs to be done can wait or he promises that he will do it...

It made me think that sometimes I am my own worst enemy. By self-condemnation, I am making a sad situation worse for myself.

When I realised that it was my thinking that makes me get so down sometimes, I smiled at the irony: usually I am trying to validate my tiredness and pain to "normals"- those who do not live with chronic pain and no spoons. Now the "normals" are validating me.

So today, after cleaning my kitchen and making lunch, I am going to "the beach" again. I am going to relax and only get up again when it is time to cook tea.

I am going to start to speak to myself as I would speak to someone else who was ill and blaming themselves: lovingly and kindly. Which just doesn't come naturally to me. I have patience with everyone except myself.

I think I could sleep on the freeway.

We visited the doctor today.  I have extremely high blood pressure which the doctor feels is due to my fibromyalgia pain.  It has flared since the move and I have gone grey overnight.

He is increasing my antidepressants as I am stressed to the max. He believes they may help in my fibro pain. He has not offered anything for pain as yet. 

I feel totally exhausted and I need to help Dianne for the next month as she can't drive.  My spoons are gone before I surface each day.

My exhaustion is such that my legs feel like they can't hold me up. Yet like helping my daughter and looking after my sick husband, there are things that just have to be done.

My grandson walked to our place from school today and found no clean cups for a drink. I told him he will have to wash one out for himself as I have been so unwell that I haven't been able to stack the dishwasher.  

He selected a picnic cup instead of washing one and then asked to be driven home. I felt guilty that my kitchen is a mess but Chris has fluid build up in his lungs due to living with heart failure and hasn't been able to help.

As a fellow counter of spoons, he has to save them for driving Dianne to doctors' appointments and physio, so I do not ask that he helps with the housework.

My extra antidepressants are kicking in and I am feeling tired as we speak. I must straighten my bed first as it is very uncomfortable as it is. I need a good night's sleep.

It is true that you sleep better in a tidy bed. The way I feel right now, I think I could sleep on the freeway. 

The only nice thing about it

So we went to the doctor yesterday to get our results from blood tests taken a few days ago. My blood pressure was 140/90 which was slightly better than last time, but still high.

He asked was anything bothering me and I had to tell him I am worried about Chris. Both of us have heart failure, high blood pressure, diabetes and cellulitis plus I have fibromyalgia. 

We both have pitting oedema on our feet and legs and the fatigue that comes from obesity and feeling sick. Dressing and showering is shared in that we help each other and because of exhaustion from showering, we shower every second day, taking opposite days. That way, we can help each other.

Our love language is touch in the form of massaging each other's feet and legs and our speech revolves around spoons and how much sugar is in everything that passes our lips.

We rarely leave home any more except for the doctor or chemist and our rubbish bins go out more than us. The highlight of our day is to discover we don't have any appointments or need a blood test. We are extremely relieved to know we can just stay home and have a PJ day.

It is unusual to call on us and not find at least one of us having a nana nap, particularly if we haven't slept well the night before.

When massaging Chris's feet or watching him sleep upright so that he doesn't feel like he's drowning in his fluid, I become anxious about how ill he looks and I fret that I will lose him.

I can't bear to think of that and when I do, I have to give it to the LORD in prayer and trust that He will grant us more time together.

All this angst does nothing to alleviate my fibromyalgia pain or help me get over a flare and I find myself taking mild pain relief every 6 hours. As the doctor advised.

Our home is able to be company ready in half an hour as it is basically tidy all the time. True, there may be slippers in the lounge or a cup on the table, but this can easily be fixed. I just close our bedroom doors to hide the permanently clean but unmade beds.

We love our home as we feel it nurtures us and even though we only may be gone a few hours when we have to go out, we find we are really looking forward to coming home again.

When we were engaged, we agreed that it would be nice to grow old together and we have. Twenty-five years later, it isn't so nice. But thank goodness we have each other and that's the only nice thing about it.

We both are spoilt girls

With heart failure and certain blood pressure tablets, my feet and legs puff up with fluid. I have pitting oedema which means that the indent when a finger is pressed on the limb, stays for a long time. My heart is not working as it should.

At the end of the day, when we watch TV together, Chris will automatically reach for my feet and gently massage them, rubbing the fluid upward towards the heart. He also rubs my toes which burn and sting with neuropathy from diabetes.

The other night as Chris rubbed my foot, Xena jumped up onto the couch and lay beside me. Not wanting to miss out on cuddles, she put her paw up on Chris's arm, purring loudly. It was a lovely relaxing time and helped lift our depression. 

Neither Chris or I are doing too well physically at the moment. Chris's sugars are uncontrolled and he has fluid on his lungs from heart failure.

Such is the loving nature of this man that he rubs my feet continually, even when he needs his own done. I do rub his feet and legs at least once a day and when I cut his toe nails for him. But it must be said that his ministrations to me are more frequent than mine to him. I simply have no spoons at the end of the day. 

I manage the house with all that entails and Chris knows that my spoons are in short supply, especially with a fibromyalgia flare, and so he seeks to bring me some comfort and pleasure at the end of the day.

Xena seems to pick up on the loving atmosphere and always makes sure she's between us in order to be included in the cuddles. 

She loves her Daddy too and we consider her as our feline child-and because she loves her Mummy as well, she purrs contentedly as she wonders which one of us is a spoilt girl. We both are spoilt girls.

Giving in is not giving up!

Yesterday I came to the realisation that my fibromyalgia is not going to get any better. Nor is my diabetes, hole in the heart, back pain, angina, asthma or torn meniscus. 

My blood sugars are also high, but not as high as Chris's, but it is a warning to me as well. I certainly do not want to go through what Chris is going through with trying to get the right amount of insulin and the horrid symptoms he endures.

My hole in the heart means my right lung is not oxygenating properly and because I need a fourth stent which I have refused (another story), I have constant stable angina. And asthma on exertion.

My blood pressure is high as the pain from my back and torn meniscus in my knee is bad. Finally, with Chris being ill now, my depression is back. I hurt when he is hurting.

Like any Sacrificial Home Keeper, I am trying to keep my home clean and tidy and here I too am failing. I see no end to it...

I was talking to my twin sister yesterday and she said that it is possible to get a bit of subsidised home help through the Australian Government's Age Care plan. So I applied and am going to be assessed tomorrow. I am eligible, as I am now 67 and my husband is 70  and is unable to do housework with me.

I can do some housework if it is waist level: dishes, cooking, washing, dusting. But I cannot even sweep let alone vacuum or wash my floors, as my tendons and muscles scream for mercy with my fibromyalgia and my back joins in sympathy, followed by angina and asthma. So basically I need someone to clean my floors and to change our bed.

As a woman who has been a house keeper since 1969 and brought up five children, it really galls me that I have to admit that I cannot maintain my own home by myself anymore. 

So, I am giving in trying to keep up like before when I was well. But I still will be doing meal planning, grocery shopping (online),  cooking, cleaning my kitchen including dishes, bill paying and budgeting, washing, ironing as needed, refilling prescriptions, social planning and gift buying, looking after Xena our cat, and most importantly, looking after Chris's and my health.

In saying I am giving in trying to be strong like before, I am not giving up: one way or another, my home will be clean! 

© Glenys Robyn Hicks

Do not cast me off in the time of old age; forsake me not when my strength is spent. Psalm 71:9

What to do when fear's gone viral

So, there's hardly a person alive today who hasn't heard of the Corona Virus. With the internet spewing its' fear over us and then word of mouth, it is by far the most heard of influenza virus of our time! And the fear of this virus has gone viral.

I won't lie to you that I haven't been afraid of contracting the virus. I have. I also have many co-morbidities that preclude me having a quick recovery, or even recovering. 

For starters, I am a senior woman. I have a very weak heart that requires yet another stent to join my three already placed there thirteen years ago. A hole in the heart means that my right lung in particular is not oxygenating properly. I am asthmatic and have weakened lungs because of having had pneumonia three times. Plus I have diabetes 2 and am obese. All these co-morbidities do not bode well for me if I were to contract the Corona Virus.

So you can guess that I have been fearful of it. So much so that I locked myself in my study and spent a couple of hours before the LORD in confession and prayer. And I came out of that room a changed woman spiritually.

How have I changed in such a short time? you ask. Because I momentarily lost sight of who I am in relation to God, and more importantly, Who He is. 

He is sovereign and I am His Child. He even calls me "friend". 

Henceforth I call you not servants; for the servant knoweth not what his lord doeth: but I have called you friends; for all things that I have heard of my Father I have made known unto you. 

He has promised never to leave me nor forsake me Let your conversation be without covetousness; and be content with such things as ye have: for he hath said, I  will never leave thee, nor forsake thee. Hebrews 13:5

My life is in His Hands and it is His good pleasure to either stop me getting this virus or taking me Home. I briefly forgot this important fact. 

We are told not to be anxious and it is very hard not to be. So what do we do? 

1. We confess our fear
2. We repent of fear
3. We look at the promises of God
4. We praise God for His promises and
5. We believe He will keep them
6. We worship God
7. We praise Him
8. We refute fearful thoughts

Now as a woman with post-traumatic stress disorder, panic/anxiety disorder and plain bad nerves, I know how hard it is to stay calm in the current situation. But, I am here to tell you that it can be done. But you must take the time to actually go to God and place your fears at His feet. Then look up!

Make a practice of refuting fearful thoughts and force yourself to think of your blessings. Claim God's promises for you as His Child. He's not going to push you away because you are afraid. And by His Blood, He has provided a way out of sin. It's called grace! 

Read the scriptures, listen to uplifting worship music. Watch uplifting podcasts of your favourite sermons. Go outside and listen to the birds or look at the stars. Be assured that you are of more value than a sparrow and that God has you in the palm of His Hand.

Finally, take a break from social media, watching the News and reading the newspapers. The media are to blame a lot for us being so nervous and have caused panic buying. 

These are some things I have put into effect in my own home and are some suggestions of what to do when fear's gone viral...

© Glenys Robyn Hicks

When I was a small child and lived in fear, I learned Psalm 91 off by heart and would recite it to help myself go to sleep... it still calms my pounding heart...  have a read for yourself and take it to heart:

"He that dwelleth in the secret place of the most High shall abide under the shadow of the Almighty.  I will say of the LORD, He is my refuge and my fortress: my God; in him will I trust. Surely he shall deliver thee from the snare of the fowler, and from the noisome pestilence. He shall cover thee with his feathers, and under his wings shalt thou trust: his truth shall be thy shield and buckler. Thou shalt not be afraid for the terror by night; nor for the arrow that flieth by day, nor for the pestilence that walketh in darkness; nor for destruction that wasteth at noonday. A thousand shall fall at thy side, and ten thousand at thy right hand; but it shall not come nigh thee. Only with thine yes shalt thou behold and see the reward of the wicked. Because thou hast made the LORD, which is my refuge, even the most High, thy habitation; there shall no evil befall thee. Neither shall any plague come nigh thy dwelling." Psalm 91:1-10 

New Year prayers

It is New Year's Eve and like millions of people around the world it is a tradition to make New Year resolutions. I have resolved to try to lose weight. 

As a chronically ill woman who truly doesn’t eat much, my weight gain is mainly inactivity and taking Prednisolone and other drugs for depression and blood pressure etc. If I dwelt on weight gain and my consequent obesity, I would be so depressed that I wouldn’t have time to write for the LORD, or feel close to Him. 

Having said that, it is my intention to give my eating to God and ask for His help in making good food choices, and in self control.  I will try to exercise gently by walking and seeking out a swimming pool so that I can exercise without hurting my muscles, back and torn meniscus. It will be a balancing act so as not to bring on a new flare of my fibromyalgia or an angina attack. 

Because obesity can effect our spirit, I would say that we have to bring negative thoughts about our bodies and weight loss in general, into the captivity of Christ and not allow it to distract us from what He has for our life. 

In practice,  healthy weight loss will take time and it will be necessary to be patient with my body as it slowly releases the fat and comes into subjection. For it is going to be a battle: I know that, and it is a battle I simply must win.

In starting each day, I will be asking God for wisdom in what to eat and when. I will be making losing weight a priority after God, one which I know is in His will and that will please Him.

I am expecting a very slow reduction in my BMI, a very slow introduction to movement and a rather rapid new intake of water daily. In return I am expecting a reduction in blood pressure, pain with arthritis, depression, GERD, and lower HBA1 C for my diabetes. I am expecting a reduction in medications. 

Boring subject that it is, nevertheless weight loss is often so depressing and consuming that it can distract us from our relationship with Jesus. In fact, weight loss can become an idol. We must avoid becoming obsessive with it.

A new outlook has taken me to seeing that loving myself enough to lose the weight that is literally killing me is pleasing to God. He wants the best for me. So knowing this, I can rely on help from the Holy Spirit in putting an end to living trapped in a sick and grossly overweight body. 

Love for God and pleasing Him,  joy in obedience in the journey, peace in being proactive, patience in the struggle, kindness to myself when I stumble, will produce a woman who is feeling better and more able to be kind, good, faithful and gentle, through obedience to God through self-control. The fruits are there for the taking after repentance and obedience. 

Pray for me as I try to regain my health.  I pray you have a blessed New Year and success in your own resolutions, whatever they may be.

© Glenys Robyn Hicks

But the fruit of the Spirit is love, joy, peace, longsuffering, kindness, goodness, faithfulness, gentleness, self-control. Against such there is no law. Galatians 5:22-23

He's no hero!

As you probably know, I have been seeing a rheumatologist to see if I have SLE lupus as well as fibromyalgia. It has been a long voyage. I am due to see her again July 16 for the results of all the blood works.

Today I saw my GP who I was told had the results. It was a disappointing visit and a waste of time. The only thing he would tell me was that I have severe arthritis in my hands, which was a given seeing as they are bent and deformed.

He would not commit to deciphering any of the tests, claiming that he was just a general practitioner and not a rheumatologist. So I am none the wiser. After reminding him of my various symptoms, he told me that even if I prove to have lupus that it won't change the fact that there is nothing he can do for me. It was very depressing.

Further, my husband Chris has had tests for shoulder pain that radiates into his ribs and back. He asked if an ultrasound might help throw some light onto what's causing his discomfort, but he laughed and said he didn't think so! So Chris also felt neglected.

I am on five tablets per day to lower my blood pressure, which he knows, but I had to ask him to take my blood pressure and he sighed as he did it. When asked about coping with the pain of my arthritis, he recommended a "conservative approach": no prednisolone or opioids, just paracetamol! Seriously?

This man came highly recommended as Chris and I have serious health issues that require good care and monitoring. Today has proven to us that he is not the super hero he is touted to be. 

Fortunately Chris and I are each other's hero and advocate and it is just as well. Looks like we will be looking after each other's interests long into our dotage. 

© Glenys Robyn Hicks

And if one prevail against him, two shall withstand him; and a threefold cord is not quickly broken. Ecclesiastes 4:12