The Queen of List Making

So I did it again! Instead of cleaning up after dinner, I went to bed with dishes in the sink. I hate when I do that!

I mean, with fibromyalgia robbing me of a good restful sleep, the mornings are hard enough to face. Having a dirty kitchen to wake up to is the pits!

Most would think that it's just laziness, but by the time I have cooked dinner my spoons are almost gone. Yes gone! I am so done in by the end of the day that even lifting my arms up to put my nightie over them creates pain.

Oh, yes, I make lists and read motivational blogs and You tubes, but to no avail. I am the Queen of List Making. Yet my limited spoons dictate that I do very little and I am left with ashes in my mouth.

I know I said before that I have been keeping busy and that's true, but I now have a rebound fibro flare and coupled with our autumn cold snap with rain, I am in a lot of pain.

You would think that I would have worked out this fibromyalgia lurk after twenty years. And for the most part although I hate it, I have learned to exist with fibro without feeling false guilt that leads to depression.

Most days I accept my disability, but deep inside is a perfectionist screaming to get out! On days like this, I try to nest and I overextend my limits. Hello, Fibro Flare!

I am grateful to my husband Chris. He is an mild mannered man who is happy with how I do manage to keep our nest. He, and most people who come to visit- well in better days obviously- are happy with the state of our home.

It must be that I am my own worst enemy: trying to do the work of a much younger healthier woman: everything in its place and a place for everything. But always straining, never achieving thanks to Fibromyalgia.  I need to accept what is and hang up my crown as the Queen of List Making.

 

It's coming together!

 

As I told you, I have been trying to get my home back after our move, and so I have also been decluttering. I have given away quite a few things that I found were only taking up space without bringing me joy.

It was hard to give away some things that were my mother's but I bit the bullet and did it. The recipient was so happy that it made me feel good to have been able to bless her!

I put into action Sarah's organic cleaning and threw out those clothes I don't like or fit in to any more, as I hung up clean clothes that had been sitting around for too long! I bought some storage boxes and put sorted underwear and night clothes in them.

That did create some dust but I didn't worry as I have a robotic vacuum. I highly recommend to all Sacrificial Home Keepers that they get a robotic vacuum- preferably one that mops as well as vacuums. They are coming down in price but I assure you, they are worth every cent!

Small steps for sure, especially for those who are healthy, but climbing a mountain to us chronically ill. I am inordinately pleased with what I have accomplished so far! It's coming together, here a little, there a little!

Here a little.

 

So today I woke with no spoons and I felt like I had been hit by a bus. But I really want to start this journey of reclaiming my house, so I bit the bullet and took my first step.

As the kitchen is always the first area that calls for attention, I decided to start there. I had cleaned up last night and only had a few dishes to take out of the dishwasher.All I had to clean up was the breakfast and morning tea dishes.

Fibromyalgia flares see that I simply can't do mornings, and as you can see, I couldn't raise a gallop until nearly lunchtime. All I had managed to do was pull up our beds, put a load of washing in and run my irobot, Sadie.

So by the time I had done the kitchen, it was time for a nana nap as my angina was playing up and I was finding just breathing enough.

So I had a nana nap which lasted a few hours, and I came out again but I still had no spoons to speak of.

My plan was to wipe down the kitchen benches or counter tops and start preparing dinner, but I had to leave it for the moment. Chris made me a cup of tea, we discussed what we would eat tonight and I sat down to talk to you.

I realise most people would say that I haven't accomplished a lot, but believe me, when you wake with no spoons at all, it is a lot. I know the benches need wiping down, but basically the kitchen's clean and I can start on cooking dinner as soon as I recoup.

I don't allow myself to suffer from "false guilt" anymore and I don't allow myself to be dictated to by my OCD perfectionist healthy woman of the past. She doesn't exist anymore. 

Everything we do is kudos to us Sacrificial Home Keepers. We push ourselves to achieve little by the standards of "normals", but to us, we have run a marathon.

So in a minute after I post this post, I will be cooking sweet and sour pork and rice. And then I will pray for enough spoons to see me sort the kitchen out- I hate getting up to a dirty kitchen and if I can do it before bed, it will be a gift from my previous self to my future self.

Tonight is bin night, so I will help Chris gather the rubbish and put the bins out. Come to think of it, they go out more often than we do these days! But it is what it is! With no spoons for both of us, staying home is a pleasure.

Anyway, I have at least achieved something today- working. pacing. resting. planning. It all adds up with here a little, there a little in the daily life of this Australian Sacrificial Home Keeper.

On this new quest

So I am just coming back to life after our move. My fibromyalgia is still there of course and so is my tiredness. I am trying to live with constant angina, but I have a new drive to get my house organised and decluttered.

All our boxes are unpacked and stuff is in its place, but there's a need to sort through that stuff and cull it.

Added to that is the desire to keep our new home nice. So I have my hands full, but no spoons.

I am trying to take control of my home- or rather, keep it controlled, but it's going to be a spasmodic deal. It all depends on spoons.

Like I did at the previous house, I have enlisted the help of a cleaner once a fortnight. She changes our beds, cleans the bathrooms and toilets and vacuums and mops the floors.

It sounds like that would be enough, but it still needs cleaning between visits. Thank goodness for my irobot Roomba.  It does a great job in between and I run it twice a day. We've called it Sadie!

To be honest, even without those jobs that the cleaner does, it. is. more. than. enough!

I am going to post pictures of my journey to claim back my house. Mainly for my own records, but you can join me here if you like.

I am going to try my best on this new quest.

 

Cats have never been very considerate

This morning I hit the floor running. Xena woke me with imminent chucks and I shooed her off my bed, but not before she soiled both my minkie blankets. 

She also soiled the carpet in my bedroom. I have the blankets in the wash as we speak. The carpets have been cleaned and sprayed with Glen 20. 

I love her dearly, but often tell myself there will be no more cats when she passes. She's 12 now. We will have to wait and see on that one!  

So far since that, I have folded and put away 3 loads of clean washing, made lunch and cleaned my kitchen.

Tonight I am doing frozen dinners as we had a big lunch. Apart from that, I will be resting as my fibromyalgia is still flaring.

Now Xena is peacefully sleeping in her igloo. It would have been so much more Mummy friendly to have sicked up in that. A simple matter of washing out a little mattress. Still, cats have never been very considerate have they?

Bushed but satisfied.

Today we have no physio or doctor appointments so we can stay home. I am ploughing through 3 loads of washing and I have to clean my kitchen. 

I am cooking a pork stew in the slow cooker. Chris is feeling unwell and is sleeping a lot. I would be if I could with my fibromyalgia flaring, but I am waiting for the cleaner to come.

I have finally found a cleaner who can fit both DD Dianne and my homes in for a clean once a fortnight. They are doing hers at 2pm and ours at 4pm today. 

Although my Roomba is doing a great job, it needs someone to get into the corners it misses so I will ask the cleaner to do that. Basically it's my floors and bathrooms that need cleaning today with the beds changed starting next Wednesday week. 

We only have Chris's "man cave" to sort out now- the rest is done and the place looks nice. We are totally bushed, but it a satisfying feeling to look around and see it all come together.

Stating your name and business

As you know, we have just moved and along with a new home, comes some new things to add to the decor.

Chris and I love this door mat. This verse is one of our favourites and when we saw it we wanted it. It can be personalised to add your family name.

It looks lovely at the front door. We still have pictures to be hung and some flat packs of furniture to make up. The unpacking itself is almost finished.

The plan is to gradually go through room to room and gradually declutter. But this will depend on my spoons. I have another fibromyalgia flare.

But we have been finding that even a concerted effort of 5 minutes at a time followed by a rest and a cup of tea has paid off. Pacing is critical with fibromyalgia and heart failure.

I am in the process of getting an i-Roomba robotic vacuum cleaner to help with the floors. This house is quite large and the passage alone is as long as a cricket pitch...

Neither Chris or I can vacuum these days and I am hoping that the i-Roomba will save on money to employ a helper to come clean the house for me. I will let you know how we go.

Happily, the robotic vac can manage both tiles and carpet without skipping a beat, so it will be able to keep our lovely door mat free of dust bunnies. 

Meant to be noticed, I don't want visitors to our home seeing the mat dirty- not when it's proclaiming our faith and intention of having a holy home. It's all about stating your name and business! 

We love our new house

 

I pushed myself today to do some work and unpack. I know it's not the best thing I can do with a fibromyalgia flare, but I need to get my home organised. We are about two-thirds unpacked. 

But of course the cooking, cleaning, dishes and washing have to be kept up and I managed to get the kitchen cleaned and a load of washing done. 

My daughter Dianne came home from hospital after her knee replacement. She's doing really well, praise God. 

Chris isn't feeling too great so I have to wait for the heavier things to be unpacked. We really like our new house.

More spoons to enjoy life.

We have just moved and we are both quite tired still. Although the house is functional, there's still a lot of unpacking to do.

This weekend, two of our grandchildren wanted to come see us and give us their verdict of the new house. Knowing that memories are all we will have once they are grown, we agreed to have them.

Although I am suffering from a bad fibromyalgia flare, I got dressed and stayed up in order to spend time with them.

We cooked lunch together and watched family videos of when they were first born and growing up. It was fun but it was also non taxing to my sore body. 

Today I am expecting a lady to come clean for a couple of hours. She did such a good job of cleaning our old house for our bond return, that I asked her if she would like to do a regular clean for us once a fortnight. She agreed.

With my poor daughter suffering from fibromyalgia as well and now living two minutes away, she also agreed to clean her house after ours each fortnight as well.

Both my daughter and I are finding just cooking, cleaning our kitchen, doing washing, grocery shopping, running errands like going to the chemist, planning finances and feeding our pets is enough of a job. We need some extra help.

There's very little help here for chronically ill people who can't do housework. What little we did get has been stopped since a new government has taken over the reins. So we have to pay privately.

I am grateful that I can save enough each fortnight to afford a cleaner's help. It not only keeps my home clean, but gives me more spoons to enjoy life.

 

We just have to embrace it

We have been looking for another house closer to family. We have applied for one yesterday and had a phone call from the real estate this morning which sounded positive. 

Our fiver got to South Australia to its new owner and they rang us to tell us how pleased they were with it. So that's good. 

We are taking our GMC Sierra to the mechanic for a good overhaul Monday and then we will decide what we will do with it. Over here they are seen as a luxury ute and we think a young buck would love it. That's what we are hoping. 

My twin and son and granddaughter continue to recover from Covid but are still very much under the weather with it. 

I am convinced that our prayers have helped keep my twin. She's so many serious health issues such as lupus and I was afraid for her. 

I have done a load of washing, cleaned my kitchen and am about to make some lunch.  I have a flare of fibromyalgia again and my spoons are nearly all gone.  I will be  taking a nana nap soon.

With an imminent move, I am not looking forward to the energy output, however I am looking forward to being nearer family.

I will miss the birds and our feral cat who is gradually becoming less timid as we feed him. We have named him Teddy Bear as his face is surrounded by bushy fur and he is gingery brown and looks like a teddy.

But I know in  life that one rarely gets everything one wants and so we have weighed up staying or moving. We have decided that we want to be closer to family, particularly our daughter who has had leukaemia.

With a bird bath/feeder and garden swing to take with us, we will continue to feed the birds as we watch from the swing in the garden.

It's true what they say: nothing is sure except death and taxes. Life is full of change. We just have to embrace it.

"It is what it is!"

A friend of mine posted this on her Face Book wall and it was so simple and doable that I wanted to share this with you.

My hands are deformed with arthritis and I have little strength in them. Opening these ring pull cans have always been a challenge to me. 

Those cans that need a can opener are  simply not purchased anymore. I cannot use one as the arthritis restricts movement.

My fibromyalgia is paining me today and I didn't sleep well last night, so I will be cleaning my kitchen and psyching myself up to take a shower. That and cooking meals is all I will be doing today.

Meals will be Jewish Penicillin in my slow cooker.

It's not much to show for the vast amount of spoons I will need today, but as the young ones always say, "It is what it is!"

And a good sleep

So recently we have been told that we are low on magnesium and have been taking magnesium tablets. It is about 10 days now that we have taken them and although my muscles still pain me, both Chris and I have had less calf cramps.

I have noticed a deeper sleep for myself, though Chris still has trouble but also reports a more refreshing sleep when he manages to drop off. He has noticed that he has less restless leg at night. Any help is a blessing.

As a sufferer of fibromyalgia, I welcome anything that helps me hurt less and sleep better. As it's early days of taking the supplement, I live in hope that it will get even better in its' relaxing effects.

I know it is improving my sleep already because I usually cannot get back to sleep if I wake up early and it's getting light. But today, I woke up to the grey dawn and decided to try going back to bed after going to the bathroom. I managed to sleep until 9.50am. 

I was amazed by this, but had to have an inward chuckle as today was the day my cleaning lady comes at 10.30 and I hadn't done anything. I still needed to get dressed, take our bloods, give Chris his insulin injection, feed Xena and then feed us.

Usually I pick up any dirty clothes up off chairs in our rooms, stack the dishwasher, and empty rubbish from the mini rubbish bins around the house, plus check Xena's tray is clean before she comes. I don't want her wasting her time on stuff I can do- I want her to focus on what I can't do like washing the floors and cleaning the bathroom.

But today, I managed to tidy up so that the cleaner could just clean- but we still were eating breakfast when she arrived. So because we were late through sleeping in, she was surprised to see us still at the island bench, eating. 

It all worked out well and I am hoping that the magnesium's effect continues. Even if it's ten pills a morning now for us both to take. As long as they make our bodies think we are healthier than we are, it's all for a good cause. And a good sleep.