Showing posts with label Fibromyalgia. Show all posts
Showing posts with label Fibromyalgia. Show all posts

It's all too much!

 


So recently I have had chest pain in angina and breathing problems coupled with what I thought was fatigue from an ongoing fibromyalgia flare.

My blood pressure sky rocketed, requiring a visit to a cardiologist who ordered an echocardiogram. My general practitioner told me if the results were bad, he would contact me. And he did.

I got the call last Friday telling me to make an appointment for a phone consult so I ended up speaking to the doctor on Monday. He told me I have heart failure due to Pulmonary Hypertension.

There is no cure for it but there are some treatments. I am already on blood thinners which I will stay on as PH can cause blood clots in the lungs. I already take 7 blood pressure tablets a day.

I often have felt dizzy and this is another symptom of PH and I feel like I can't get enough air in at times. The time will come when I will probably need oxygen at home.

Forget about exercise- I nearly collapse with exhaustion after walking up our long passage to answer the door.

I will know more tomorrow when I see the doctor in person. This is needful because he wants to check out the swelling in my feet, ankles and legs. I suspect I have fluid in my abdomen too. It hurts and is tight like a drum.

I had a blood test yesterday to check on my kidney function and this will be a regular thing.

Lately it's been one thing after another and I am a tad depressed. Prayers would be much appreciated. It's all too much! 



© Glenys Robyn Hicks



Fear not, for I am with you; Be not dismayed, for I am your God. I will strengthen you, Yes, I will help you, I will uphold you with My righteous right hand.’ Isaiah 41:10

I just have to pursue it.





 So with a horrid year last year, I was quite happy to see the end of it. I messaged my friends and family and wished them a happy new year, then turned my phone off and went to bed.

It was only 11 o'clock, but I was exhausted and had no spoons left. The weather was really warm and I decided to forgo my electric blanket. With the help of a Tramadol, I managed to quell my fibro and back pain and soon fell asleep.

I woke up at 2am and realised that it was January 1st. Not that it makes much difference what year or day it is- for Chris and I one day is much the same as another. We stay home mostly.

This year, I am training myself to live in the moment. That's all we are promised anyway. I have worried about what lies ahead this new year, but I am going to stop thinking too far ahead.

I plan to read more of the Bible and saturate myself in uplifting reading and videos. I am going to try to live with hope and not dwell on negatives.

The eternal optimist, I am going to believe that I am going to have less fibro pain and get more done. I mean, if one thinks only of horrible things it will ensure that I just exist and don't live.

I don't want to endure next year, but enjoy it. It's a big ask, but it is possible. I tell myself it's possible to live an abundantly happy life in spite of pain. I just have to pursue it. 


© Glenys Robyn Hicks


So teach [us] to number our days, that we may apply [our] hearts unto wisdom.  Psalm 90:12

Unpretentious and simple

  


As you know, I have been having problems with my heart and fibromyalgia. My blood pressure is barely controlled and I am constantly tired.

We have decided to cancel Christmas this year. I haven't even put up a wreath on the front door, let alone, a Christmas tree.

We are staying home and nobody is coming. Contrary to how I would feel in years past, this year's plan gives me peace.

We plan to play games online with my sister and son. There's nothing like a game of online Scrabble with familiar people who are well matched in scores.

None of us is able to attend church these days but that doesn't stop us from worshiping God and remembering Jesus on the day we choose to celebrate as His birthday.

Next week I will be ordering my Christmas food and I will be buying a ham and organic salad vegetables for Chris's and my lunch. I will also be buying some grape juice and matzo crackers, as we plan to take Communion online with my sister and son like we did last Easter.

It is not an ideal Christmas, but with all of us feeling unwell, it is making the best of a bad situation.

We all feel that as long as we remember that God sent His Son Jesus to bear the sins of the world and be our Saviour, then that is what Christmas really is.

Besides, the first Christmas was extremely unpretentious and simple. It's OK if ours is too...


 © Glenys Robyn Hicks



" So teach [us] to number our days, that we may apply [our] hearts unto wisdom" Psalm 90:12

Ordinary and good!



It's Wednesday morning here. I have just finished putting the groceries I got online away. It's so convenient for Chris and I seeing as we both are unwell

I have done a couple of loads of washing and am thinking about doing some lunch. Toasted cheese and tomato sangers sounds good and easy.  

My kitchen needs to be cleaned but I am out of spoons as I didn't sleep well last night. The weather is changing as it's autumn here and we can experience all seasons in one day. It plays havoc with my fibromyalgia. It's making me feel miserable.

I am thinking of taking a nana nap before I do the kitchen. But before that I will take some Panadol Osteo   to help relieve my fibro pain. Pacing and resting are not an option with fibromyalgia: it's a necessity. 

After I clean the kitchen I will cook chow mein and rice for dinner and if I have enough spoons I will fold the day's clean clothes and put them away.

It's an ordinary day here and I am glad. When you think of what's happening in the world, I can truly gratefully say that God has blessed me with a day that's ordinary and good! 




We have to talk




So I am aging, overweight, have had over 50 kidney stones and 5 surgeries to remove them when they were impacted, and have given birth to 6 children.

Because of this, I used to find that a sneeze could have disastrous results, causing me embarrassment and discomfort as I wet myself. So much so, that I went to a physiotherapist who taught me how to exercise my pelvic floor using Kegel exercises.   They helped me quite a lot.

Nothing else has changed - one cannot change the past- but the only difference was my consistent Kegel exercising. This is for men as well as women, I was told. Anyway, I recommend them to everyone who has stress incontinence.

However, as much as Kegels have helped me, I have noticed that when I am in a flare of fibromyalgia, often I rediscover the joys of stress incontinence. 

It seems to me that fibromyalgia weakens my muscles in my pelvic floor and causes lack of control of the bladder. Just another problem fibro brings that many don't recognise or talk about.

I have purchased some undergarments that absorb urine yet look like normal underwear  I wear them when I am in a fibromyalgia flare, and they do a great job. (There are similar ones for men) It seems lately as I am in almost a constant state of flaring, that I am wearing them more often. 

It's just another pain for us Fibromites to endure, and I hope by sharing about this, it helps you if you have the same problem. It's nothing to be ashamed of and it's something we need to talk about.


Micah says it all!



Recently during one of my quiet times, I read one of my favourite verses from Micah 6:8 "He has shown you, O man, what is good; and what does the LORD require of you but to do justly, to love mercy, and to walk humbly with your God?"

Being a  Christian isn't  really that difficult. Once one has  surrendered his or her life to Christ, the Holy Spirit guides us into that which pleases God. 

Our walk with Him is continuous and should lead us to becoming better people than we were yesterday, emulating the Master, Jesus Christ.

As a sufferer of many ailments which cause chronic pain and fatigue, fibromyalgia being the worst culprit, I used to worry about not being able to serve God as well as I did in my younger Christian walk before illnessdep. 

Depression would hang around my shoulders like a cloak because I felt unable to do much for Jesus, in fact unable to do much at all for even my family.

Then I had an epiphany! I realised that God can be served mostly by having a loving heart. Besides, His love for us is not dependant on what we do, but on what He has done for us! 

God only requires that I love Him with my whole heart, mind and soul, that I love justice and mercy and that I walk humbly with Him. It's nothing to do with limitations brought on by illness or disability or our lack of energy or spoons to do things. Grace is wonderful and my favourite verse in Micah says it all!


© Glenys Robyn Hicks


"He has shown you, O man, what is good; and what does the LORD require of you but to do justly, to love mercy, and to walk humbly with your God?" Micah 6:8

I'm no longer a bunny!


 
So Easter has come and gone and so have all my spoons! I have been under the weather all over Easter and have a constant fibromyalgia flare, coupled with spinal pain.

With moving the homemaking help for the elderly stopped and it would take a long time to get it all arranged. We have decided to enlist a woman to clean for us fortnightly again.

This lady is very efficient and friendly as well and although we enlisted her for once a month cleaning, the truth is I need her fortnightly. I can maintain our home in between her visits, but with once a month, the house is needing a more thorough clean and therefore took more than the two hours I hired her to clean.

As always, I hate needing to have help these days, and Chris is too unwell to help me. It is what it is..

You would think that with having back pain for forty years and fibromyaglia and angina for twenty, that I would be more gracious to myself. I should be accepting my lot, but being a woman, I still find my perceived worth as a homemaker is dictated by how fast I spin my wheel without help.

So with my 70th birthday here in a few weeks, I am just going to have to accept my handicaps and be merciful to myself.

I should be glad that I have a husband who agrees to hiring help. A lot of women don't. So I will just stop the pity party and enjoy this season where we can afford her...

And also, when she comes, I am not going to clean the house before she comes... I am a  perfectionist, but no longer... where housework is concerned, I will get the help I need. I'm no longer a bunny!


© Glenys Robyn Hicks



God is my strength and power: and he maketh my way perfect. 2 Samuel 22:33

Like a vapour!



It's been a rough morning. Firstly I woke up feeling the worst fibromyalgia pain I have ever felt. Not a cryer, I cried this morning. 

Then I took my morning pills- 11 of them. And they got stuck and melted... so I grabbed my cup of tea to push them down and it was boiling and I choked. 

Chris had to pump my back to try and dislodge them. I couldn't breathe and I thought I was going to Jesus right then and there.  

As I type, my throat and lungs are burning and closing over... I have lost my voice.

Please pray urgently that I don't get aspiration pneumonia again. I have had it 3 times and am prone to it... I only have one functioning lung.. 

Only good thing about today is that I can breathe and that the Rapture is so close. Maranatha. I am ready, Father! Life is so short, and it can end so suddenly... like a vapour

If you don't know Jesus as saviour why not ask Him into your life today? There's not much time left and tomorrow isn't promised... Click here for more information...  


© Glenys Robyn Hicks


Whereas ye know not what shall be on the morrow. For what is your life? It is even a vapour, that appeareth for a little time, and then vanisheth away. -James 4:14

To eat the meat!



With Good Friday being on us, often the question of whether or not to serve red meat comes up. Basically the tradition is something the Catholic church adopted and the protestant churches followed... 

Because I have found nothing in scripture forbidding us to eat red meat on Good Friday- or even on Fridays for Christians, I have no problem whatsoever eating it. In fact, when I was worshiping at a Pentecostal church, they held a BBQ after the Good Friday service. 

The  answer  for our house is yes we eat it on Good Friday-  however,  if someone is with us who has a problem with that, we abstain for their sake. Scriptures don't tell us not to eat red meat on Good Friday, but  they  do tell  us  to  respect  the conscience and belief  of  those  who don't wish to.    believe like everything in the Christian life, it comes down to loving your neighbour and fellow man. 

This year because my son is living with us and because he upholds the traditions of his childhood when his  (non-practicing)  Catholic Italian  father  didn't eat it,  we will be having fish for lunch.  

If  my  fibromyalgia  flare goes,  our family  evening  BBQ for  Easter is  going to be at  my daughters'  home and eating fish,   because her husband upholds the traditions of the Catholic church. They do not eat red meats on Good Friday. 

I believe we are to respect other peoples' conscience in our decision whether we serve red meats to them. It is the loving thing to do.. Have a blessed Easter!  


 


If any of them that believe not bid you [to a feast], and ye be disposed to go; whatsoever is set before you, eat, asking no question for conscience sake. But if any man say unto you, This is offered in sacrifice unto idols, eat not for his sake that shewed it, and for conscience sake: for the earth [is] the Lord's, and the fulness thereof: Conscience, I say, not thine own, but of the other: for why is my liberty judged of another [man's] conscience? For if I by grace be a partaker, why am I evil spoken of for that for which I give thanks? Whether therefore ye eat, or drink, or whatsoever ye do, do all to the glory of God.  1 Corinthians 10: 27-31

She is not afraid of the snow


Recently Chris and I have been stocking up our fridge, freezer and pantry. The world is a very sad place and nothing is sure...

We aren't living in fear- we just think with the price of diesel, strikes, problems in distribution and so on, that it would be prudent to have some back up food in the house.

So far we have enough groceries to last us about six weeks on a planned menu that doesn't use all our reserves at once, yet nourishes us. I have a few extra packs and tins of cat food for Xena.

In line with this, I have been getting prescriptions filled promptly and buying extra diabetic supplies. Again, enough to last us about six weeks. And that includes pain killers for my fibromyalgia.

Already we have had distribution problems with shipping containers banked up on wharves and no workers willing to unload them. With all our various health issues that require many tablets a day to control plus insulin injections, we are aware that having a few weeks in advance if possible is also prudent.

My antidepressants weren't available for months and if I hadn't been wise, I would have had a meltdown. Fortunately I had a couple of boxes of them in obeyance. 

Whilst I don't advocate stocking up because of fear, it is not wrong to anticipate difficulties in obtaining basic supplies and acting accordingly.


© Glenys Robyn Hicks   
 



She is not afraid of the snow for her household: for all her household are clothed with scarlet-Proverbs 31:21


Dead tired


A woman who suffers from a chronic illness or disability often finds herself at the end of "normals'" ideas of being tired. We are often looked at with contempt for being so tired that we can't perform our daily duties properly. Or that we have to go to bed early, rise late, or cancel social engagements at the last minute. We are not lazy. 

Before Corona, we were regarded with suspicion when we couldn't make it to church regularly and people harshly judged our spiritual health, deeming us backslidden.  Emotional and spiritual hurt exacerbates our ill state. We feel worse and they lack compassion.

Often we have to cancel doctors' appointments because we are too sick to get there. We find we can't drive and even if we could, we haven't got the strength to even get washed and dressed. It is not unheard of that some of us have crumpled in the shower, unable to get out and totally winded...

Our "tired" goes far beyond a sleepiness or drowsy feeling. We are so fatigued that breathing is too much effort and not for the first time we are grateful it's automatic.

Furthermore, our "tired" is not helped by a nanna nap or even 9 hours of sleep.  We fight our illness and pain even in our dreams and wake up unrefreshed and have to face another day when we haven't recuperated from the day before. We simply have run out of spoons.

"Tired" is overused and doesn't come close to the bone sucking quagmire of desperate fatigue we chronically ill people find ourselves sinking into constantly.  To have "normals" flippantly say, "Me too!" when we tell them we are tired invalidates us and makes us long for their brand of tiredness that can be restored through a good sleep.

We cannot even enjoy a shower or bath to help us sleep as the effort it takes to do this not only drains us of whatever energy we can find, but does not always bring a restorative sleep. Just muscle pain.

Such is my own pain on going to bed that I find I cannot place my arms anywhere comfortable. My fibromyalgia and polymyalgia rheumatica make it impossible to raise my arms upwards and extending them hurts my muscles and tendons. So I go to sleep with my arms folded on my chest.

I indeed look like a cadaver which has been laid out and testifies somewhat to the feeling of being dead in my tracks.  Because that's the type of exhaustion we face every day: we truly feel dead tired.


© Glenys Robyn Hicks


Cast me not off in the time of old age; forsake me not when my strength faileth. Psalm 71:9

Making the most of my spoons



So for the last few days I have been enjoying a respite from fibromyalgia pain. The weather has been lovely and sunny and the warmth has permeated my being and soothed a lot of muscle pain.

I have been decluttering our home and making extra meals to freeze for later on. It has been a novelty and a joy to have spoons to do it.

Aware that it can bring on a flare if I do too much, I have been pacing myself. I do 15 minutes sessions of decluttering with a rest in between. With cooking, I do about half an hour of food prep then take a rest as well.

I am enjoying my new dishwasher too. It certainly makes keeping up with the dishes and keeping my kitchen tidier easier. And that I find, encourages me to cook.

I really don't know how long this respite will last, but I'm grateful each day that I have absence from pain and fatigue.

Until you have a respite, you don't realise how challenging your life is. So for the moment, however brief it may be, I will be making the most of my spoons.
 



The Queen of List Making



So I did it again! Instead of cleaning up after dinner, I went to bed with dishes in the sink. I hate when I do that!

I mean, with fibromyalgia robbing me of a good restful sleep, the mornings are hard enough to face. Having a dirty kitchen to wake up to is the pits!

Most would think that it's just laziness, but by the time I have cooked dinner my spoons are almost gone. Yes gone! I am so done in by the end of the day that even lifting my arms up to put my nightie over them creates pain.

Oh, yes, I make lists and read motivational blogs and You tubes, but to no avail. I am the Queen of List Making. Yet my limited spoons dictate that I do very little and I am left with ashes in my mouth.

I know I said before that I have been keeping busy and that's true, but I now have a rebound fibro flare and coupled with our autumn cold snap with rain, I am in a lot of pain.

You would think that I would have worked out this fibromyalgia lurk after twenty years. And for the most part although I hate it, I have learned to exist with fibro without feeling false guilt that leads to depression.

Most days I accept my disability, but deep inside is a perfectionist screaming to get out! On days like this, I try to nest and I overextend my limits. Hello, Fibro Flare!

I am grateful to my husband Chris. He is an mild mannered man who is happy with how I do manage to keep our nest. He, and most people who come to visit- well in better days obviously- are happy with the state of our home.

It must be that I am my own worst enemy: trying to do the work of a much younger healthier woman: everything in its place and a place for everything. But always straining, never achieving thanks to Fibromyalgia.  I need to accept what is and hang up my crown as the Queen of List Making.

 

Even so, He is Lord!


Chronic illness can make us feel that God is far away, so it is important to remember that our salvation does not rely on our feelings. For which I am truly grateful.

It is also important for us to turn to God when we feel at our worst. He is there to comfort and strengthen us in our worst pain and sadness.

Our faith can take a beating when we are in pain, but if we turn towards God, coming to Him like a tired and sick child, He will show us the depth of His love, compassion and comfort.

Don't berate yourself for feeling like He doesn't care or see... that only compounds our sadness. By turning to Him, even with tears, you will find the Compassion of a God Who understands pain because He died on a cross for you. 

I don't know why God has chosen the path of suffering for me, but it is in that moment that I truly must acknowledge these thoughts and feelings and come to Him regardless. For even so, He is LORD.


© Glenys Robyn Hicks


God is my strength and power: and he maketh my way perfect. 2 Samuel 22:33

Resistance is futile



Fibromyalgia is a really difficult illness/syndrome to live with. It's the most painful and yet invisible of illnesses. It is difficult to diagnose and there's no specific test for it.

It's infuriating that you can go years without a diagnosis. Especially frustrating when doctors dismiss you. Even worse if they suggest it's all in your head, when everywhere hurts so much you could cry. And do.

My diagnosis after many years of suffering and tests was clinched when my skin came up in red welts after the rheumatologist pressed on my trigger points. I have since learned that it's called dermagraphica or skin writing. 

One can never leave fibromyalgia or move away from it. One is never really out of a fibromyalgia flare as the smallest over extending of energy drags you back into another one.

Fibromyalgia brings emotional pain too as one tries to avoid looking ill but fails as the pain overrides the best of our intensive acting like a "normal"

There's no cure  and one really doesn't move on but moves through it flare by flare, day in day out, year by year.  One staggers through it. Lives it 24/7.  Endures it. 

No matter how hard we try to live a normal life, fibromyalgia accompanies us like a cloak of gloom around our shoulders. We soon learn we must accept it, for resistance is futile....

Plans for today: Today I had the lady come to clean our house and tomorrow we have a house inspection. My plans today are to keep the dishes under control and put away a few clothes from the washing today. Dinner will be pea and ham soup cooked in the slow cooker. 

Flaring badly, I see a nana nap on my horizon...



Keeping the homefires burning

 

Lately I have had a really long and debilitating fibromyalgia flare. I think it was brought on by stressing about my son who had a large kidney stone removed and was suffering badly with his kidney stent.

With over 50 renal stones and 5 surgeries to remove them, I literally felt his pain. He has been out of work due to his ordeal for 6 weeks and so it has been a worry to him and to me..

My fibromyalgia flare has effected my eyes some days. I have trouble focussing especially when reading and I have had double vision. That has been accompanied with the usual pain and the fatigue is out of this world.

I have found that just running our home to a basic plan has been more than enough for my body and after I do a few household chores, I feel so weak that I almost vomit. I just have to take a nana nap.

The life of a Sacrificial HomeKeeper is not an easy one. But we somehow push through those walls of fatigue and at least keep the homefires burning...

©  Glenys Robyn Hicks  


"I love you LORD my strength!" Psalm 18:1

Cooking is a ministry



Lately with diabetes and heart failure causing Chris to lose his appetite, it has become more important than ever to prepare food for him that he enjoys.

Illness makes one's taste buds change and so the menu I prepare and the ingredients I buy constantly change.

I have to ask him on the day what he fancies to eat and I literally have to coax him to have some food. It can be very challenging.

In order to keep abreast of Chris's changing tastes in food, I keep a whiteboard on my fridge, jotting down things that he enjoyed and I glean Pinterest for ideas on meals. If Chris says he would like to try a recipe I find, it goes on that list too.

When my uncle lived with my mother, and later on my step-father, both of them lived beyond what the doctors expected (cancer and emphysema), and I credit that to Mum's good and plain cooking.

Chris knows this and forces himself to eat sometimes, but he never finishes a meal. Because a large plate of food nauseates him, I serve them in smaller plates. You learn as you go along.

I can well remember my ailing step-father Max sitting eating without obvious enjoyment and I asked him if he liked the meal. His answer has stayed in my mind to be implemented now in Chris's time of illness.

He said nothing was wrong with the meal, but his appetite was gone and he only eats because he knows he has to. And so I tell Chris when he refuses to eat. I remind him of what Max said. So he eats.

Nutritionally, all of Chris's blood tests come back normal. So he's getting enough iron and so on..

With cutting carbs and sugar as well as lack of teeth thrown into the mix, it can get frustrating at times. I make it a priority to include these needs into my prayer time each morning along with a request for necessary spoons (energy) with my fibromyalgia.

Apart from wisdom in meal preparation, God's been teaching me patience, kindness and endurance... and because nutrition is so important to us, I know the Man Who cooked breakfast for His disciples doesn't mind at all... cooking is a ministry!


© Glenys Robyn Hicks 


"When they landed, they saw a charcoal fire there with fish on it, and some bread. Jesus told them, “Bring some of the fish you have just caught.” So Simon Peter went aboard and dragged the net ashore. It was full of large fish, 153, but even with so many, the net was not torn.

“Come, have breakfast,” Jesus said to them. None of the disciples dared to ask Him, “Who are You?” They knew it was the Lord. Jesus came and took the bread and gave it to them, and He did the same with the fish." -John  21:9-12

But by the grace of God go I



As you probably know, I suffer from a myriad of health issues from life threatening to annoying. Each day is a constant struggle to keep my home and look after Chris and myself and our little white cat, Xena.

Recently, I read an article about chronically ill bloggers who use the internet to feed their latent Munchausen's disease  The writer who obviously is not suffering an invisible chronic illness, concludes- falsely that we are feeding a desire for attention and sympathy.

This writer had no medical expertise and spoke with the confidence and freedom of a healthy person who knows nothing of the pain every day brings to us who aren't so blessed. It made me both angry and sad.

Anyone who manages to carry on a relatively "normal" life, sacrificing their comfort to serve and love those closest to them, know that the only thing we really desire is compassion. We rarely take delight in our symptoms, in fact the majority of us try very hard to appear as a healthy person in spite of being in pain and discomfort.

Goodness knows, we suffer so much with people judging us unkindly and this simply serves to push us further into depression and loneliness. Especially when our illness is invisible, like fibromyalgia.

Many of us chronically ill people are housebound for the most part, and therefore we feel a certain amount of loneliness and disjointment from society. We simply want to be respected and allowed to simply exist without the stigma of mental disease in the form of Munchausen's.

We bloggers of chronic illness do so because we know the feeling of disenfranchisement in a social sense. We are stripped of our right to live in peace and freedom from bullying ignorant people. 

Writing for those who suffer like we do helps us to reach out to people who would understand the psychological insulation and the sting of being misjudged and categorised as a malingering attention seeker. 

Whilst it is true that we have the LORD to love us unconditionally, it nevertheless hurts us that people are so cruel and instrumental in adding ridiculous labels to us that demoralise us even further.

Chronic illness and pain is a horrid  way to live and those who cast stones at us would do well to thank God that they aren't so afflicted. God has not chosen them to walk the lonely path of chronic illness and they also would do well to remember "but by the grace of God, go I" 

© Glenys Robyn Hicks



Beloved, I pray that you may prosper in all things and be in health, just as your soul prospers. 3 John 1:2

No spoons required


So yesterday was a really good day. In spite of my fibromyalgia flaring and angina. But it's because of those things that today has been so good.

My diary showed a doctors' appointment to attend, then the chemist for scripts and then the inevitable grocery shop for the week. A full day for a chronically ill person.

I thought it through and decided to ring the clinic and change a face to face consult with a phone one. Then I rang the chemist to advise them that the script I owed them for some blood pressure tablets would be coming in the afternoon. Then I arranged the medicines to be delivered to me.

Then grabbing a cup of tea, I did my online shop and arranged delivery of it for tomorrow. And I played Candy Crush until the doctor rang me.

He arranged for the escripts to be sent directly to our chemist. I made another cup of tea as the doorbell rang- the girl with our medicines delivered them very promptly.

Cooking a simple meal, I found I had energy to work on my crochet project until bedtime. I had plenty of energy as all the errands had been done with no spoons required.





More than a place to sleep



Recently someone asked why do we make our bed? I gave it some thought as I have recently been making my own bed daily, in spite of regularly going back into it for a nana nap. Here's a few thoughts on why I use my precious spoons to make my bed.

Physically its more comfortable to sleep in. 

Psychologically its more inviting.

It makes the room visually more esthetically pleasing.

The bed's the centrepiece of the room like in a painting. 

It gives the illusion of order and calm.

It uplifts my spirits when I come into my bedroom.

With fibromyalgia, angina and back problems, I make mine but often get back in it. So I remake it.

When I make it, I don't get on my knees as they are broken and I do not do hospital bed mitred corners. I pull up my top sheet, then turn back the minky blankets. With arthritic hands, the only tucks I do are at the bottom of the bed to secure the bedding...

But, being honest, I sometimes let it go when I have a fibro flare- being satified that the sheets and bedding is clean. But the majority of times, my beds are made. 

Beds are more comfortable made up or at least straightened and are more than a place to sleep.