Showing posts with label rash. Show all posts
Showing posts with label rash. Show all posts

Fibro gets personal


Fibromyalgia has us unsure of where exactly our body is hurting, but for some of us, pain isn't the only symptom we have. There is one other that vies for our attention: itch!

My body itches everywhere.... my face is so itchy that I scratch at it until it bleeds. I use a ruler to scratch my shoulders, back and nape.

Sometimes in the morning my nails have blood under them where I have scratched my scalp. For this reason, I cannot get my grey hair dyed as I would get chemicals in my scalp.

Tags on my clothes cause me to itch unbearably so I cut them off. My hair blowing on my face or neck drives me insane with itch, so I keep my hair very short these days.

After all these twenty plus years of suffering with fibromyalgia, it has now gotten very personal. Very. And I have spoken to a few women I know well enough to ask, and who have fibro and they all agree that it has progressed from what we all discuss to now becoming very personal. You could say: intimate.

We have found that regardless of whether we have just showered or bathed, we suffer intense itching in our personal areas. 

So intense is this itch that it wakes us up and whips us into an itching frenzy. We are not satisfied until we have scratched ourselves raw.

Likewise, under our overhang on our lower abdomen, we have itch that drives us insane as well. And irregardless of hygiene- we have itching in the groins and back of the legs where the leg joins the groin.

It seems that fibromyalgia is a syndrome that annoys one to the inth degree and delights in attacking every phase and aspect of our life and body.

It gives one a new found compassion for the poor dog scraping itself along the ground with extreme personal itch.  One can relate.  Nothing gets more personal than fibro! 

© Glenys Robyn Hicks


Beloved, I pray that you may prosper in all things and be in health, just as your soul prospers. 3 John 1:2

Nothing to be ashamed of!


Fibromyalgia has made many changes in my life and one of them is my dislike of wearing clothes. The mere touch of fabric on my skin, or the tags on my clothing can send me into an itching frenzy.

Before I wear something new, I will cut off all the tags and if it has lace, particularly around the neckline, I will not buy it or I will cut the lace off.

Mohair drives me insane with itch and brings me up in a rash wherever it touches my skin. I won't buy it. If I have a woollen top on, I have to wear a blouse with a collar under it to stop the itching.

In dressing, I have to put layers on because fibromyalgia sufferers' thermostats are broken. They can't be adjusted or fixed. It is not uncommon to feel cold when everyone is hot and vice versa. Anyway, it is important to me that I can reduce or add on clothing as required.

Not that I really enjoy wearing clothes anymore. In fact, if I could be naked without offending, I would. Not that I do go publically naked of course. And I do dress modestly as it's important to our witness. Not to mention I don't want to be arrested! lol

I do go around the house naked in the summer. In case of visitors, I have my sundress in easy reach. It is never a problem to quickly slip it on if there is a knock at the door. Chris will always wait for me to get into our bedroom to change before he answers the door.

We are mindful of others at all times and keep our drapes closed when I walk around. Of course,  it's not when we have guests or when grandchildren stay. If we are expecting company then of course I get dressed. If we are on holiday or guests, I wear a loose nightdress at night and clothes in the day.

I know I am in good company with Winston Churchill often holding interviews whilst in the bathtub or naked, even in his office. I am not that brazen...

But I know I am not alone in hating wearing clothes in the World of Fibromyalgia. I do not doubt that many fibro sufferers will join me in saying that they sleep in the nude as well. 

Clothes can make one feel that they are strangling you in bed.  Sheets, no matter how soft, end up causing the most awful itches and feelings of heat that most fibromites sleep with one leg out and a fan on. Even in winter.

There are so many changes in one's life with fibromyalgia and some you won't hear about. Such as a hatred of wearing clothes.  We keep it secret, like it's something to be ashamed of. 

Trying to keep oneself from scratching until one bleeds is a reason for compassion. If I only walk naked around my own home, with only my husband seeing me, I am not flaunting myself and being immodest. 

Coping with illness is nothing to be ashamed of: it's all part of accepting it and moving on. I know my God would understand. I am not ashamed at all. 

© Glenys Robyn Hicks


Sing, O heavens; and be joyful, O earth; and break forth into singing, O mountains: for the LORD hath comforted his people, and will have mercy upon his afflicted. Isaiah 49:13