Failing fast

You may have noticed I haven't been posting much lately. Fibromyalgia, heart disease, high blood pressure and now boils have taken over my body all at once.

My body is failing me and the fatigue is not only sapping my strength but my mental faculties. It is hard to formulate a sentence these days.

I have been to the doctor. My blood pressure meds have been increased (200/86) and that in itself makes me tired.

These days it takes me all my time to look after Chris and my home. Forget socialising.

I am on the strongest oral antibiotics, taking 9 a day. They have brought the boil on my spine to a head. I am waiting for it to pop itself, rather than try to squeeze it. Though I think I would die from the pain if we tried to do that. The boil is quite large.

I pace myself to try to eke out my meagre spoons but I find I just have to have a nana nap in the day to have enough spoons to cook dinner.

I am praying that I feel better for Christmas as we are having family here for lunch Christmas Day. Most certainly I will have to be stronger than what I am now. My body is failing fast.

Invisible illnesses hurt as much as a broken arm.

So yesterday I got my tooth seen at the dentist. I was overjoyed that she managed to save it. It was a gruelling 45 minute sit in the chair.

Those of you who suffer from fibromyalgia know that sitting stretched back with one's head tilted to the side is not an easy pose to stay in. Add ankylosing spondylitis and polymyalgia rheumatica to the mix, and it's a half hour of torture.

I must say though that the lady dentist was very patient, kind and efficient. I told her about my many ailments as required for a new patient, and I was amazed that not only did she know what fibromyalgia was, but was very careful to not touch my neck roughly. 

She also gave me double the novacaine because she knew I would be very sensitive to pain.

It so happens that her friend suffers from fibromylgia and she has a really bad time of it. To have the dentist allow me to sit up and have a rest every ten minutes was a blessing. In fact, she was a godsend.

She lowered the chair as far as it would go as I got out, and being aware of my torn knee ligaments in both knees, she helped me get out and stand up. 

Today, my tooth is not aching at all, but my jaw, ear and neck are. I suspect from the injections and keeping my mouth open for so long. I have TMJ as well.

Today I have been doing meals, cleaning my kitchen and folding washing whilst medicating with paracetamol. I have had to take it every 6 hours, but it is what it is. I am still better off filling the tooth as opposed to pulling it.

My plan for tonight's meal is to make a sweet curry pork dish with rice. Chris loves that and it's easy to do in the slow cooker.

My online shop will be coming in an hour or so, and I will put that away. That's it for today.

I loved that the dentist took fibromyalgia seriously. It's not often that it is. When you find someone like that, the validation lifts one's spirits. Thanks goodness some people believe that invisible illnesses hurt as much as a broken arm.

 

We have gone mad!

It may seem strange to some, but even in the worst pain, you will find me playing Candy Crush in an effort to distract my mind from the pain.

The rheumatologist suggested to my daughter who suffers from fibromyalgia and pain post chemo, to use it as a distraction from the pain. She was one of these mind over matters kind of doctors. We were not very optimistic to be honest.

As a sufferer of not only fibromyalgia but ankylosing spondylitis, spinal canal stenosis coupled with bad arthitis and angina, I thought it may help me. It helps a little. But Tramadol would be better!

My doctor won't let me have them. Even though he knows I only take them as required for high pain days like today.   He gave it to me when my second knee tore and it helped my fibro pain so much. Then he closed shop!  

I  know there have  been many who abused pain-killers but when  basic pain relief is available only with a chemist's approval such as Panadol with codeine, it makes life more difficult for the person like myself,  to get any relief at all. 

With fibro flaring and another episode of polymyalgia rheumatica, I have been tempted to take some of my Prednisolone, but I am worried about the side effects. I tell you truly, I am feeling desperate.

So even though you may see me playing Candy Crush or online a lot, I can honestly say that it's for  medicinal purposes. I will be a Candy Crush addict any day if it will relieve the pain.

Just don't tell the do-gooders. If they think we are liable to become addicts, they'll make FB take it off their site! You fellow pain sufferers know they will. We have gone mad in our correctness!

My new maid servant

 

So as you probably know, I have had trouble keeping up to date with my dishes. No matter how good my intentions were, by the end of the day I had a sinkful of dishes waiting to be done.

Coming in to the kitchen first thing in the morning, I was always down as soon as I saw them waiting for me to find some spoons to attend to them. I know those who suffer from fibromyalgia like I do, would understand.

As we live in a rented house and we cannot change the plumbing to accommodate a dishwasher, I felt it was a never ending cycle that I couldn't break.

One day I was looking at the price of mobile dishwashers and I noticed that they make a dishwasher that you can park on your kitchen benchtop and I knew I wanted one. So we ordered one online. It's a Devanti.

It came yesterday and I am so pleased with it. It has hoses that attach to the taps in the kitchen sink. It takes a 8 place dinner service and does as good a job as the inbuilt ones. An added bonus is that I don't have to bend to stack and unstack it.

So not only does this dishwasher solve the problem of dishes piling up and no spoons, but saves my back from trying to bend. Ankylosing spondylitis is no joke. 

Anyway, I am overjoyed that the dishes are no longer my nemesis thanks to my new maid servant.