Morning Cuppas With Glenys : angina

Showing posts with label angina. Show all posts

It's all too much!

So recently I have had chest pain in angina and breathing problems coupled with what I thought was fatigue from an ongoing fibromyalgia flare.

My blood pressure sky rocketed, requiring a visit to a cardiologist who ordered an echocardiogram. My general practitioner told me if the results were bad, he would contact me. And he did.

I got the call last Friday telling me to make an appointment for a phone consult so I ended up speaking to the doctor on Monday. He told me I have heart failure due to Pulmonary Hypertension.

There is no cure for it but there are some treatments. I am already on blood thinners which I will stay on as PH can cause blood clots in the lungs. I already take 7 blood pressure tablets a day.

I often have felt dizzy and this is another symptom of PH and I feel like I can't get enough air in at times. The time will come when I will probably need oxygen at home.

Forget about exercise- I nearly collapse with exhaustion after walking up our long passage to answer the door.

I will know more tomorrow when I see the doctor in person. This is needful because he wants to check out the swelling in my feet, ankles and legs. I suspect I have fluid in my abdomen too. It hurts and is tight like a drum.

I had a blood test yesterday to check on my kidney function and this will be a regular thing.

Lately it's been one thing after another and I am a tad depressed. Prayers would be much appreciated. It's all too much!

Fear not, for I am with you; Be not dismayed, for I am your God. I will strengthen you, Yes, I will help you, I will uphold you with My righteous right hand.’ Isaiah 41:10

I'm no longer a bunny!

So Easter has come and gone and so have all my spoons! I have been under the weather all over Easter and have a constant fibromyalgia flare, coupled with spinal pain.

With moving the homemaking help for the elderly stopped and it would take a long time to get it all arranged. We have decided to enlist a woman to clean for us fortnightly again.

This lady is very efficient and friendly as well and although we enlisted her for once a month cleaning, the truth is I need her fortnightly. I can maintain our home in between her visits, but with once a month, the house is needing a more thorough clean and therefore took more than the two hours I hired her to clean.

As always, I hate needing to have help these days, and Chris is too unwell to help me. It is what it is..

You would think that with having back pain for forty years and fibromyaglia and angina for twenty, that I would be more gracious to myself. I should be accepting my lot, but being a woman, I still find my perceived worth as a homemaker is dictated by how fast I spin my wheel without help.

So with my 70th birthday here in a few weeks, I am just going to have to accept my handicaps and be merciful to myself.

I should be glad that I have a husband who agrees to hiring help. A lot of women don't. So I will just stop the pity party and enjoy this season where we can afford her...

And also, when she comes, I am not going to clean the house before she comes... I am a perfectionist, but no longer... where housework is concerned, I will get the help I need. I'm no longer a bunny!

God is my strength and power: and he maketh my way perfect. 2 Samuel 22:33

More than a place to sleep

Recently someone asked why do we make our bed? I gave it some thought as I have recently been making my own bed daily, in spite of regularly going back into it for a nana nap. Here's a few thoughts on why I use my precious spoons to make my bed.

Physically its more comfortable to sleep in.

Psychologically its more inviting.

It makes the room visually more esthetically pleasing.

The bed's the centrepiece of the room like in a painting.

It gives the illusion of order and calm.

It uplifts my spirits when I come into my bedroom.

With fibromyalgia, angina and back problems, I make mine but often get back in it. So I remake it.

When I make it, I don't get on my knees as they are broken and I do not do hospital bed mitred corners. I pull up my top sheet, then turn back the minky blankets. With arthritic hands, the only tucks I do are at the bottom of the bed to secure the bedding...

But, being honest, I sometimes let it go when I have a fibro flare- being satified that the sheets and bedding is clean. But the majority of times, my beds are made.

Beds are more comfortable made up or at least straightened and are more than a place to sleep.

It has a comforting ring to it.

In these last days before the Rapture of the Church, we are buffetted about with trials and tribulations and pestilences.

We are shaken and we are tired and the finishing line is just ahead. As the darkness of a sick world falls we would do well to remember that although we may feel that world is out of control, it is exactly as God told us it would be in these final days.

These trying days, the Body of Christ must pray for each other and encourage each other to run their race well. We know that the Age of Grace will soon be over, and Christ will translate the Church- us believers into His Kingdom. Therefore, we must tell the lost about Him and do so until that time comes.

This translation of the Church into God's Presence is called the Rapture and according to the Word, we are now observing many of the prophecies we were told to look for, coming to pass daily. This means the Rapture is soon.

Not being able to go to church anymore due to illness through fibromyalgia, mobility issues and angina mainly, I find great comfort in the fellowship of believers through the internet. It's terribly important that we do not forsake the gathering together in corporate worship as support for each other is critical to us running our race well. But like myself, if you can't get to church, try to build a network of Christian friends who will pray for you and support you It's difficult, it's tough and it's scary!

At the rapture I believe we'll all stand before God still holding each other up and lifting the weary hands that had hung down. This special relationship is called KOINONIA. :1. the Christian fellowship or body of believers 2. intimate spiritual communion& sharing in a common religious commitment& spiritual community

Let us spur each other on to love and good works and let us pray for each other in Koinonia. We need to be there for each other and watch each other's backs. That's what family do. We are all sons and daughters of the Most High and we share the same Father. So let us truly enjoy Koinonia in these testing times.

Koinonia: it has a comforting ring to it.

And let us consider one another in order to stir up love and good works Hebrews 10: 24

Giving the gift of time well spent

As most of you who follow my blogs know, Chris and I not enjoying the best of health. We both are currently battling heart failure, diabetes and obesity brought on by the inactivity that comes with pain and age.

Gradually as the maladies make themselves more known and felt, we are aware that we probably won't make it to our 80th year.

Lately we have written a will and talked to our adult children of our final wishes. Unable to bear being apart, we have decided that we both want to be buried together, and to this end, we are currently getting information about prepaid funerals and plots of land at our local cemetery.

We have discussed Do not rescusitate orders and made our wishes known to our children. They were hesitant to talk about these matters, but we assured them that we need to sort it out, afterwhich we won't talk about it.

My stents in my heart are 15 years old and I am told I need new ones inserted, but I have refused them as the previous 2 angiograms injured me. I simply don't want to have more surgery.

Chris and I have made the choice that there won't be any more harmful surgeries. If I have a bad heart attack I do not want to be rescusitated.

I am ready for Jesus to either take me in the Rapture or call me Home. Either way is OK.

Chris is in really bad health with his own heart failure. I am aware of how little time we may have and I don't want to waste it.

So I am on the computer about an hour instead of all day. I have culled most groups etc but have not culled my friends.

Chris promised me he will update if I go Home. We just cant bear any more hospitals and tests etc- especially when they have done me harm in the past.

I am trusting the LORD instead of man and for the one who is left behind, we are giving the gift of time well spent.

Precious in the sight of the LORD is the death of his saints. Psalm 116:15

Here a little.

So today I woke with no spoons and I felt like I had been hit by a bus. But I really want to start this journey of reclaiming my house, so I bit the bullet and took my first step.

As the kitchen is always the first area that calls for attention, I decided to start there. I had cleaned up last night and only had a few dishes to take out of the dishwasher.All I had to clean up was the breakfast and morning tea dishes.

Fibromyalgia flares see that I simply can't do mornings, and as you can see, I couldn't raise a gallop until nearly lunchtime. All I had managed to do was pull up our beds, put a load of washing in and run my irobot, Sadie.

So by the time I had done the kitchen, it was time for a nana nap as my angina was playing up and I was finding just breathing enough.

So I had a nana nap which lasted a few hours, and I came out again but I still had no spoons to speak of.

My plan was to wipe down the kitchen benches or counter tops and start preparing dinner, but I had to leave it for the moment. Chris made me a cup of tea, we discussed what we would eat tonight and I sat down to talk to you.

I realise most people would say that I haven't accomplished a lot, but believe me, when you wake with no spoons at all, it is a lot. I know the benches need wiping down, but basically the kitchen's clean and I can start on cooking dinner as soon as I recoup.

I don't allow myself to suffer from "false guilt" anymore and I don't allow myself to be dictated to by my OCD perfectionist healthy woman of the past. She doesn't exist anymore.

Everything we do is kudos to us Sacrificial Home Keepers. We push ourselves to achieve little by the standards of "normals", but to us, we have run a marathon.

So in a minute after I post this post, I will be cooking sweet and sour pork and rice. And then I will pray for enough spoons to see me sort the kitchen out- I hate getting up to a dirty kitchen and if I can do it before bed, it will be a gift from my previous self to my future self.

Tonight is bin night, so I will help Chris gather the rubbish and put the bins out. Come to think of it, they go out more often than we do these days! But it is what it is! With no spoons for both of us, staying home is a pleasure.

Anyway, I have at least achieved something today- working. pacing. resting. planning. It all adds up with here a little, there a little in the daily life of this Australian Sacrificial Home Keeper.

It's a pain!

So the day has started off without any appreciable spoons. However, I have purposed to do some chores in the house regardless. Simply because they have to be done.

With the last two days slack on housework, there are dishes and washing and some other chores that are shouting to be done.

My sugars are still 10.4 this morning in spite of taking the new diabetes medications for a week. So I accept that I am never going to feel really well. Fibromyalgia and angina coupled with back pain also seem to do that.

So I am going to just concentrate today on the most crucial homemaking tasks: having clean dishes and cups and some clean clothes and towels.. No lists today, this is all I can manage.

So today's list of to do's are:

Soak and wash dishes and put away after air drying
Catch up on the washing and put it away after the dryer has finished
Cook some lamb stew in the slow cooker for dinner

Granted it's not much to do, but my body feels like it's trying to climb Mt Everest. But enough procrastination: I must push on. No fairy godmother is coming- I'm it!

It's mundane. It's frustrating. It's tiring! But it is what it is! It's chronic illness! And it's a pain!

We have gone mad!

It may seem strange to some, but even in the worst pain, you will find me playing Candy Crush in an effort to distract my mind from the pain.

The rheumatologist suggested to my daughter who suffers from fibromyalgia and pain post chemo, to use it as a distraction from the pain. She was one of these mind over matters kind of doctors. We were not very optimistic to be honest.

As a sufferer of not only fibromyalgia but ankylosing spondylitis, spinal canal stenosis coupled with bad arthitis and angina, I thought it may help me. It helps a little. But Tramadol would be better!

My doctor won't let me have them. Even though he knows I only take them as required for high pain days like today. He gave it to me when my second knee tore and it helped my fibro pain so much. Then he closed shop!

I know there have been many who abused pain-killers but when basic pain relief is available only with a chemist's approval such as Panadol with codeine, it makes life more difficult for the person like myself, to get any relief at all.

With fibro flaring and another episode of polymyalgia rheumatica, I have been tempted to take some of my Prednisolone, but I am worried about the side effects. I tell you truly, I am feeling desperate.

So even though you may see me playing Candy Crush or online a lot, I can honestly say that it's for medicinal purposes. I will be a Candy Crush addict any day if it will relieve the pain.

Just don't tell the do-gooders. If they think we are liable to become addicts, they'll make FB take it off their site! You fellow pain sufferers know they will. We have gone mad in our correctness!

Keeping dainty with chronic illness

I have been ill with fibromyalgia for about twenty years now. In that time, lots of things have changed, and one of them is my personal hygiene routine.

One would think that taking a bath or a shower would be an easy thing to accomplish, but if you suffer from chronic fatigue, fibromyalgia, back problems or angina problems like I do, you would realise that it consumes a lot of your spoons. So I had to do a bit of rethinking of my daily routines. I've discovered that one of the places that takes a lot of my spoons is the bathroom.

Because bathing and drying and dressing exhaust me, I varied my time in taking a bath depending on how well I feel. If I have enough energy, I would bathe in the morning, if not I would take a shower before bed as Chris is home and he helps me get dried and into my nightie. (When you are chronically ill, you quickly get over being humbled by needing assistance- you are grateful for any help available.)

I have found that if I take a bath or shower in the morning I am left with no energy for the rest of the day. If I take my shower at night, I have just enough energy afterwards to get myself to bed, which works out much better.

Hot baths or showers leave me too exhausted and give me angina pain, so I take showers with only warm or tepid water. While I would prefer to shower every day, showering is best done every other day for me to avoid flare-ups of pain, fatigue and soreness. I have decided on some new course of action to make time in my bathroom more fibro-friendly.

One of the first things I changed was how I take a shower, or rather, the position in which I shower: sitting. Here I find those telephone type showers are useful. When I get out of the shower, I sit down to dry off.

I can no longer blow dry my hair so by necessity my hairstyle has been wash and air dry for years now. Time in front of the sink brushing my teeth or washing my face has been modified by resting one foot on a stool while standing. Because of spinal problems and being a short person, I have a glass in my bathroom which I fill with water and use for rinsing and cleaning my toothbrush without straining to reach the tap.

I no longer wear makeup, the standing in front of the mirror and the use of my hands in holding the various tools of the task, is now limited to special occasions only; it is too painful a task to do on a daily basis. Also, my face is so sensitive that it breaks out in red welts at the slightest pressure... which includes smearing on foundation. This is called dermagraphia.

The bottom line is taking a shower is a real workout now. In addition to modifying how I take a shower, I am going to follow these 3 rules: I will only take a shower at night, I will only take warm water showers and I will only take a shower every other day. With the employment of a good deodorant after each shower and a fresh change of underwear each night and morning, I have found that I don't offend anyone and remain feminine and dainty.

Life with chronic illness is complicated, but at least I manage to stay clean while living it!

So teach [us] to number our days, that we may apply [our] hearts unto wisdom. Psalm 90:12

Oh no, no ho ho

So we had our little granddaughter Taylah for a few days, and picked her up Friday, but it didn't go to plan. After a full day, in spite of me making an effort to play with her and give her my full attention, she decided she wanted to go home.

She said she missed her mother, and so we made the 2 hour trip each way to drop her off again. Even though I didn't drive, I was exhausted. Even being a passenger is gruelling when you have a fibromyalgia flare, angina, sore back and broken knees that throb with every heart beat.

I had bought a rolling pin with the nativity on it and planned to make Christmas cookies as gifts. Well, I did make cookies as promised with Taylah helping me, but not the ones I planned to give away. They were plain cookies.

When I told her we had to refrigerate the dough for a couple of hours, she said she didn't want to have to wait. So the Christmas cookies didn't come to pass.

The Mother of all Flares has come to pay me yet another visit- or maybe I just haven't recovered from the last one. I am feeling so exhausted I could collapse. So yesterday I had a nana nap and went to bed earlier than normal.

I was hoping that would do the trick and give me some wind under my sails, but in truth I awoke with no spoons. No spoons on Christmas Eve is a disaster!

We were supposed to leave our home around 11am today and visit my children and grandchildren but I felt unsteady on my feet, due to wonky knees, foggy in head due to fibro and hurting so badly with my spinal stenosis that I had to cancel.

Tomorrow we are supposed to see Taylah open her presents, visit my sister and son for lunch and go to my step-daughter's for afternoon tea before driving the two hours home before dark.

Truthfully, unless I have a miracle, we won't be going. After I finish chatting to you, I will be letting the Tramadol work by going to bed to rest. I really want to feel better.

As much as I love my family and Christmas, it would seem that it is going to have to be cancelled. It's a pity but it is what it is! Besides, nobody wants a spaced out whiny woman around them on Christmas Day. And I don't want to her, but unfortunately it's hard with illness to have any ho ho ho.

I am not "normal"

We chronically ill women try so hard to do "normal" things. Like look well. Be cheerful. Be patient. Kind. Hospitable.

Our family and marriage are our first priority after God. We try so hard to spin our wheel not fast- but at a "normal" pace. By "normal", we compare ourselves to those who do not suffer from chronic illness and pain. Or are disabled.

We are very careful to keep serving our family but sometimes with the illness that afflicts us: we fail. This often gets to us and causes us to sink into depression.

Being unable to process that we simply can't act as "normals", we often berate ourselves and sink into the Pit of Despair.

We are often judged by "normal" standards, as we simply cannot attend certain social functions like before. If we do, the pain and effort can make us tense and we can make us appear moody unsociable grumps aka the death head at the feast.

If only "normals" would realise that we are pushing ourselves every day to live a life that not even closely is "normal" like in the days before our health failed. We get so adept at doing this, that we have become quite good at wearing masks to cover the Mask Of Pain. Hence the appearance of being in a mood.

My fibromyalgia and other health issues have now made it impossible for me to disguise, and I have learned to acknowledge this to people and tell them in advance that my attendance or action or whatever is totally subject to how I am on any given day.

Basically, I have had to pander to angina, spinal problems, fibromyalgia, polymyalgia rheumatica, and submit to tyrannical spoons by being totally flexible about my appointments and so on.

People may still misjudge me but that is not my problem. I just pray that the LORD will allow them to see that I am not lazy or unsociable, but am just a chronically ill woman who finds just breathing some days enough effort.

The LORD knows I am not well, but people take a lot more convincing. I am not "normal".

Put on therefore, as the elect of God, holy and beloved, bowels of mercies, kindness, humbleness of mind, meekness, longsuffering; Colossians 3:12

Giving in is not giving up!

Yesterday I came to the realisation that my fibromyalgia is not going to get any better. Nor is my diabetes, hole in the heart, back pain, angina, asthma or torn meniscus.

My blood sugars are also high, but not as high as Chris's, but it is a warning to me as well. I certainly do not want to go through what Chris is going through with trying to get the right amount of insulin and the horrid symptoms he endures.

My hole in the heart means my right lung is not oxygenating properly and because I need a fourth stent which I have refused (another story), I have constant stable angina. And asthma on exertion.

My blood pressure is high as the pain from my back and torn meniscus in my knee is bad. Finally, with Chris being ill now, my depression is back. I hurt when he is hurting.

Like any Sacrificial Home Keeper, I am trying to keep my home clean and tidy and here I too am failing. I see no end to it...

I was talking to my twin sister yesterday and she said that it is possible to get a bit of subsidised home help through the Australian Government's Age Care plan. So I applied and am going to be assessed tomorrow. I am eligible, as I am now 67 and my husband is 70 and is unable to do housework with me.

I can do some housework if it is waist level: dishes, cooking, washing, dusting. But I cannot even sweep let alone vacuum or wash my floors, as my tendons and muscles scream for mercy with my fibromyalgia and my back joins in sympathy, followed by angina and asthma. So basically I need someone to clean my floors and to change our bed.

As a woman who has been a house keeper since 1969 and brought up five children, it really galls me that I have to admit that I cannot maintain my own home by myself anymore.

So, I am giving in trying to keep up like before when I was well. But I still will be doing meal planning, grocery shopping (online), cooking, cleaning my kitchen including dishes, bill paying and budgeting, washing, ironing as needed, refilling prescriptions, social planning and gift buying, looking after Xena our cat, and most importantly, looking after Chris's and my health.

In saying I am giving in trying to be strong like before, I am not giving up: one way or another, my home will be clean!

Do not cast me off in the time of old age; forsake me not when my strength is spent. Psalm 71:9

Twelve years old today

Twelve years ago today, I had two stents and an angioplasty in my heart. I was so nervous but was glad that at last the day had come, especially that I was still alive to have it.

I had angina for a month previous to the procedure and tests were positive. I would need either stents or bypass surgery. I had 99% blockage in my heart vessels and I was told that I could literally drop dead.

Told not to get the heart stressed but to take things quietly, I was forbidden to go to my beloved step-father's funeral. He would have told me not to come if he was able. It was very hard.

As a public patient, I had to wait my turn for a bed. Not having had a heart attack yet, I was not on the top of the list. It was a long three weeks.

I was discharged a day after the procedure and I felt sore where they had inserted the stents and also in my femoral artery where my groin was bruised and swollen.

But I was glad to be alive. Ten years earlier, I would have been looking at open heart surgery like my father had.

Today, I still have angina. I am on blood-thinners and often have to put a nitroglycerin tablet under my tongue. Another angiogram later showed damage done from where they entered my heart, and it also showed I have a hole in the heart making it so that the blood does not oxygenate properly. My lungs are working overtime apparently. Which would explain my breathlessness.

One cardiologist told me I have the heart of a 85 year old. It could make me fearful, but I remind myself that God knows my days and He is in control. I will die exactly when He wills.

I remain grateful that I went to the doctor initially about a heavy weight feeling on my chest that woke me up. If I had ignored that, I most certainly wouldn't still be alive.

As I reflect on the advances in cardiology, I praise God for His mercy, and I raise a glass and offer a toast for my stents: twelve years old today.

So teach [us] to number our days, that we may apply [our] hearts unto wisdom. Psalm 90:12

Making personal hygiene fibro-friendly

My cleaning schedule

I have a monthly cleaning schedule which I try to adhere to. Generally, I manage to keep up with it, but there are days when fibromyalgia or angina kick in and I can't follow it.

I have included it here for easy access to it for myself, and in the hopes that it may help someone else who is trying to keep up with their own home. I am over feeling guilty for being ill. Sometimes we have to accept that we can't be the same as a healthier woman. Thank God, He knows my frame.

MONTHLY CLEANING SCHEDULE

WEEK 1–KITCHEN /DINING ROOM

Sunday	Monday	Tuesday	Wednesday	THURSDAY	FRIDAY	SATURDAY
Church	Laundry Fold/Put Up		Laundry Fold/Put Up	Sort pills	Laundry Fold/Put Up
	Bins/litter
Dishes	Dishes	Dishes	Dishes	Dishes	Dishes	Dishes

WEEK 2–ENTRYWAY /LIVING AREAS

SUNDAY	MONDAY	TUESDAY	WEDNESDAY	THURSDAY	FRIDAY	SATURDAY
Church	Laundry Fold/Put Up		Laundry Fold/Put Up	Sort pills	Laundry Fold/Put Up
	Bins/litter			Aldi and Chemist
Dishes	Dishes	Dishes	Dishes	Dishes	Dishes	Dishes

WEEK 3–BEDROOM/OFFICES

SUNDAY	MONDAY	TUESDAY	WEDNESDAY	THURSDAY	FRIDAY	SATURDAY
Church	Laundry Fold/Put Up		Laundry Fold/Put Up	Sort pills	Laundry Fold/Put Up
	Bins/litter
Dishes	Dishes	Dishes	Dishes	Dishes	Dishes	Dishes

WEEK 4–BATHROOMS /LAUNDRY ROOM

SUNDAY	MONDAY	TUESDAY	WEDNESDAY	THURSDAY	FRIDAY	SATURDAY
Church	Laundry Fold/Put Up		Laundry Fold/Put Up	Sort pills	Laundry Fold/Put Up	Change sheets
	Bins/litter			Aldi and Chemist
Dishes	Dishes	Dishes	Dishes	Dishes	Dishes	Dishes

For he knows our frame; he remembers that we are dust Psalm 103:14