Taking it up again!
Ordinary and good!
Dead tired
Failing fast
My body is failing me and the fatigue is not only sapping my strength but my mental faculties. It is hard to formulate a sentence these days.
I have been to the doctor. My blood pressure meds have been increased (200/86) and that in itself makes me tired.
These days it takes me all my time to look after Chris and my home. Forget socialising.
I am on the strongest oral antibiotics, taking 9 a day. They have brought the boil on my spine to a head. I am waiting for it to pop itself, rather than try to squeeze it. Though I think I would die from the pain if we tried to do that. The boil is quite large.
I pace myself to try to eke out my meagre spoons but I find I just have to have a nana nap in the day to have enough spoons to cook dinner.
I am praying that I feel better for Christmas as we are having family here for lunch Christmas Day. Most certainly I will have to be stronger than what I am now. My body is failing fast.
Invisible illnesses hurt as much as a broken arm.
Hanging on by a thread revisited
Pain is a disability
Anyone who suffers from chronic pain knows that it precludes us from a lot of enjoyment of life. Pain makes the vicissitudes of life that much harder to bear.
Everything is exaggerated both physically and mentally, and the only thing I can do is accept that this is not my usual self, for pain changes people.
Pain disables us in many ways. from physical activity. from family life. from sex. from sleep. from patience. from social life. from functioning normally. from life generally.
The effects of pain cause us to withdraw from people and become reclusive. It makes us feel isolated and unable to really feel understood or validated. We learn to be distrustful of others.
Because chronic pain, in my case fibromyalgia, causes us so much mental as well as physical angst, we decide to retreat to our home often preferring it even if we had enough spoons to leave.
Seeing as pain is such a disabling affliction, it makes no sense to me that we are often regarded by doctors with suspicion when we request heavy duty pain relief such as opiates.
Most of us cannot get enough medication to adequately help us with our pain. We often then succumb to depression and live as recluses due to agoraphobia.
We who suffer from chronic pain know that it is a disability. Invisible and destructive. We live in the knowledge that pain is disabling.
We just wish doctors were as aware of the ongoing relentless disability called Pain.
We aren't just tired: we're dead tired
It's a pain in the neck
We have gone mad!
The rheumatologist suggested to my daughter who suffers from fibromyalgia and pain post chemo, to use it as a distraction from the pain. She was one of these mind over matters kind of doctors. We were not very optimistic to be honest.
As a sufferer of not only fibromyalgia but ankylosing spondylitis, spinal canal stenosis coupled with bad arthitis and angina, I thought it may help me. It helps a little. But Tramadol would be better!
My doctor won't let me have them. Even though he knows I only take them as required for high pain days like today. He gave it to me when my second knee tore and it helped my fibro pain so much. Then he closed shop!
I know there have been many who abused pain-killers but when basic pain relief is available only with a chemist's approval such as Panadol with codeine, it makes life more difficult for the person like myself, to get any relief at all.
With fibro flaring and another episode of polymyalgia rheumatica, I have been tempted to take some of my Prednisolone, but I am worried about the side effects. I tell you truly, I am feeling desperate.
So even though you may see me playing Candy Crush or online a lot, I can honestly say that it's for medicinal purposes. I will be a Candy Crush addict any day if it will relieve the pain.
Just don't tell the do-gooders. If they think we are liable to become addicts, they'll make FB take it off their site! You fellow pain sufferers know they will. We have gone mad in our correctness!
Ordinary but good
The only nice thing about it
Keeping dainty with chronic illness
I have been ill with fibromyalgia for about twenty years now. In that time, lots of things have changed, and one of them is my personal hygiene routine.
One would think that taking a bath or a shower would be an easy thing to accomplish, but if you suffer from chronic fatigue, fibromyalgia, back problems or angina problems like I do, you would realise that it consumes a lot of your spoons. So I had to do a bit of rethinking of my daily routines. I've discovered that one of the places that takes a lot of my spoons is the bathroom.
Because bathing and drying and dressing exhaust me, I varied my time in taking a bath depending on how well I feel. If I have enough energy, I would bathe in the morning, if not I would take a shower before bed as Chris is home and he helps me get dried and into my nightie. (When you are chronically ill, you quickly get over being humbled by needing assistance- you are grateful for any help available.)
I have found that if I take a bath or shower in the morning I am left with no energy for the rest of the day. If I take my shower at night, I have just enough energy afterwards to get myself to bed, which works out much better.
Hot baths or showers leave me too exhausted and give me angina pain, so I take showers with only warm or tepid water. While I would prefer to shower every day, showering is best done every other day for me to avoid flare-ups of pain, fatigue and soreness. I have decided on some new course of action to make time in my bathroom more fibro-friendly.
One of the first things I changed was how I take a shower, or rather, the position in which I shower: sitting. Here I find those telephone type showers are useful. When I get out of the shower, I sit down to dry off.
I can no longer blow dry my hair so by necessity my hairstyle has been wash and air dry for years now. Time in front of the sink brushing my teeth or washing my face has been modified by resting one foot on a stool while standing. Because of spinal problems and being a short person, I have a glass in my bathroom which I fill with water and use for rinsing and cleaning my toothbrush without straining to reach the tap.
I no longer wear makeup, the standing in front of the mirror and the use of my hands in holding the various tools of the task, is now limited to special occasions only; it is too painful a task to do on a daily basis. Also, my face is so sensitive that it breaks out in red welts at the slightest pressure... which includes smearing on foundation. This is called dermagraphia.
The bottom line is taking a shower is a real workout now. In addition to modifying how I take a shower, I am going to follow these 3 rules: I will only take a shower at night, I will only take warm water showers and I will only take a shower every other day. With the employment of a good deodorant after each shower and a fresh change of underwear each night and morning, I have found that I don't offend anyone and remain feminine and dainty.
Life with chronic illness is complicated, but at least I manage to stay clean while living it!
So teach [us] to number our days, that we may apply [our] hearts unto wisdom. Psalm 90:12
You can say that again
So today we have shopped online but most of the food we ordered was unavailable. So we took a trip to Aldi and managed to get meat, chicken and cat food. Most products are being limited now. There are distribution shortages of staff due to Covid.
There's a four hour queue to get tested or one can do a Rapid Antigen Test at home, but there's a shortage of tests and it's very difficult to get one. People who can't get tested are isolating and missing out on work just in case they are positive.
Our Prime Minister suggested that as most Australians will test positive soon so he told us to make sure we have paracetamol aka Panadol on hand so that we can manage symptoms at home. (Lotsa luck with that one!) So people went out and stripped all pharmacies and supermarkets of all brands of paracetamol.
To top it all off for me is that once again, my antidepressants haven't made it off the wharves. They don't know when they will be available again. So it's lucky that I have extra Panadol on hand for my fibromyalgia and an extra box of antidepressants. I am so grateful to the Proverbs 31 wife in scripture who was always prepared and laughs at the time to come.
A past Prime Minister of ours once famously quoted that life wasn't meant to be easy. You can say that again.
My new wheels
So, the MRI results are in. I have a meniscus tear, fabella, torn posterior crucius ligament, bursitis and osteo arthritis behind the patella. It needs surgery as it does not repair itself.
I am to see an orthopaedic surgeon and meanwhile I must rest the knee and use pain killers.
We have bought a shower chair and a wheelchair. I have had Chris push me on the seat of my walker, but it is a big strain on his heart and I worry about him.
It is difficult to focus enough to write at the moment and I spend a lot of time on the couch aka the beach, or in bed with my electric blanket.
I am just able to stand enough to wash some dishes, cook a meal and stack the washer and dryer. Chris helps sometimes and has been my legs.
I am making use of the slow cooker a lot, cooking the meals as I am able to stand.
As with all new health issues, I am trying to come to terms with this "new normal" and the constant struggles with fibromyalgia are now "normal" and this new challenge is calling for all my ability to accept my new lot in chronic illness.
I am disheartened that both my knees have now given way (I have a torn meniscus in my other knee), and am trying to feel grateful that I could afford a wheelchair. Thank goodness for afterpay.
I am trying to be thankful for my new wheels, and I am also trying to give this new situation over to the LORD. I guess it's all a part of grieving what I have lost and accepting it, and not giving way to self-pity. It's hard.
However romantic a picture I can find really doesn't cut it for me as I struggle to accept that I am now wheelchair bound, and instead of a new car, a wheelchair is my new wheels.
Our little haven
Cleaning for older women
I read this and thought not only would it be helpful for us older sisters, but also for us Sacrificial HomeKeepers especially those of us who suffer with fibromyalgia.
There are many websites that have detailed instructions teaching young women how to clean and organize their homes. However, I haven't been able to find much on teaching older women how to adjust to not being able to stay on a routine cleaning schedule due to health problems, yet keep a clean home.
This article can also apply to younger, healthier women too because of the unexpected occurrences that do happen in all our lives.
One thing you need to know about me is that I've always had the problem of perfectionism, which I have learned to control in recent years. You may be wondering why I consider perfectionism as a problem. For most people with this characteristic, they are uptight and easily upset when things don't go as planned. The least little thing that goes wrong immediately puts them in a bad mood. Why? Because they have lost control of the situation.
I have had to ask the Lord on many occasions to help me adjust my attitude and He has been faithful in doing so. I am MUCH more relaxed than I use to be and give the Lord all the credit because I don't think it is something you can change on your own. Oh, I occasionally will fall into my old way of thinking at times, but quickly realize that old enemy and put it away.
As we age, we usually end up with a few health problems along the way and we also tend to move a bit slower, thus taking longer to do one chore. It can be very frustrating to those who have always tried to keep a clean and tidy home. Maybe bending or stooping is causing you pain at times or you just can't seem to do as much in one day.
* My number one recommendation is to RELAX!!!!! I don't mean to sit all day eating bon-bons and watching soap operas, but relax your attitude.
If you are like most women, you dread another woman coming into your home if it isn't absolutely and perfectly clean and tidy. We are always apologizing for the way the house looks when most of the time, it is just fine.
Your children are grown and maybe already left the nest, so it is just you and your husband. This alone will help you because there are now only two to make a mess. Yet, the house still needs tender, loving care.
* Clutter in your home can appear to others as uncleanliness, so make sure to put things back where they belong and keep your home as clutter-free as possible. A tidy home will appear clean even when there are a few dust bunnies around. Maybe it's time to get rid of some things you no longer really need. Maybe that collection doesn't have the same appeal or meaning to you as it once did. Ask your children if they are interested in having it. If not, why not donate it or have a garage sale? The less "things" you have, the less dusting. Take a picture of it and put in a memory scrapbook! Then be happy you have less dusting to do.
* Your laundry loads will be greatly diminished when it is just the two of you. I have found that on days my back is acting up, I can sometimes still accomplish doing the laundry by having a low stool by the dryer to sit on. That way I can reach into the dryer without bending over and sit there folding each item. My husband and daughter frown on me doing anything when my back is bothering me and they say, "Why didn't you call me to do that?!!!!" Well, I'm the type of person that if I can find a way to do something myself, I'll do it. Asking for help is my last resort.
* Depending on your ailment, sweeping, mopping, and vacuuming can be difficult along with cleaning the tub/shower. May I suggest to look at alternative cleaning equipment? A couple of years ago my daughter gave me a Swiffer floor vac and Swiffer wet jet. These two items have been a tremendous help to me. They are VERY lightweight and easy to use. Of course these are to be used on hard floor surfaces only. I read once where a woman used an old-fashioned mop to clean her tub and shower. Prevented her from having to bend over. If you are completely unable to do these tasks and your husband isn't able to do them either, why not consider asking one of your children if they have time once a week to do this for you? Or maybe someone from your church? I would recommend that you try to get someone you know very well.
* If you have clothes and shoes in your closet that you haven't worn in a long time, get rid of them. Same thing with bed linens. Get rid of excess. It's that much less to collect dust or mold. Haven't you ever noticed the "old person" odor when you walk into someone's home? Just because you are getting older doesn't mean you should quit caring for your home and yourself. Be sure to bathe/shower daily. Don't forget to wash your hair! Get in the habit of laundering small loads instead of letting clothes and damp towels set around until you have a big load to wash. At least once a year, ask a strong person you know to come in and move furniture for you so that you can clean behind those items. Don't forget to take care of those curtains! Wash and dry or have them dry cleaned.
What I am still trying to get through my thick skull is to pace myself on the good days. Give myself less tasks to complete and to take frequent breaks. It is difficult to change our habits, but it can be done. I am having to break a lifelong habit of "Get all your work done and then you can rest."
A typical day for me goes like this:
Before getting out of bed, I thank the Lord for the day and for my family and ask Him to guide each of us in all we say and do that day.
Then it's time to get up, get dressed, and have a cup of hot tea with honey (sometimes I treat myself to a cup of coffee, black only) and watch the news with Hubby while waking up. Then it's time to prepare something for breakfast.
No, I do not wear heels around the house. It's socks and slippers during cold weather and sandals during hot weather. I don't wear a head covering, but I do like wearing an apron.
After breakfast I clean up the kitchen and then sit down to check email and decide what I'm going to try and accomplish that day. Depending on what is to be done, I remind myself that if it is going to take longer than 15-30 minutes, I MUST take a break. This is usually when I'll do a blog post or visit a few blogs and check emails again.
Since my Hubby is retired on disability, we have our lunch together around noon each day. If I'm having a good day, I will try to accomplish another task after lunch. If not, then I keep my hands busy. I'll do...knit or crochet.
As a homemaker, we all would love our husband and children to really take notice of what we do. Sometimes we feel we are taken for granted and wonder, "Is my family really grateful for the things I do around here?" You all KNOW what I'm saying. We don't expect them to come home everyday and gush over how clean the house looks, but every once in a while it's nice for one of them to thank us for what we do. Well, this feeling DOES happen to the man of the house. Here's what happened:
I've not been able to vacuum lately and my daughter has been busy and gone a lot. Hubby and I both have been having back troubles, but last Friday I was feeling a bit better and told him I had to get out of the house for a while. I went shopping.
Later in the afternoon, he said, "Did you notice I vacuumed?"
I looked down and said with a grin, "When did you do that?"
"While you were gone to town. You know when I vacuum, it really needs it!"
Then he said that he was going to wait and see if I noticed that he had vacuumed, but couldn't stand to wait any longer and had to tell me what he did. LOL! So, I thanked him. :) Written by Sharon from Sharon's Roses blog which has been deleted now...
That they may teach the young women to be sober, to love their husbands, to love their children. To be discreet, chaste, keepers at home, good, obedient to their own husbands, that the word of God be not blasphemed. Titus 2:4-5