Morning Cuppas With Glenys : pain

Showing posts with label pain. Show all posts

I just have to pursue it.

So with a horrid year last year, I was quite happy to see the end of it. I messaged my friends and family and wished them a happy new year, then turned my phone off and went to bed.

It was only 11 o'clock, but I was exhausted and had no spoons left. The weather was really warm and I decided to forgo my electric blanket. With the help of a Tramadol, I managed to quell my fibro and back pain and soon fell asleep.

I woke up at 2am and realised that it was January 1st. Not that it makes much difference what year or day it is- for Chris and I one day is much the same as another. We stay home mostly.

This year, I am training myself to live in the moment. That's all we are promised anyway. I have worried about what lies ahead this new year, but I am going to stop thinking too far ahead.

I plan to read more of the Bible and saturate myself in uplifting reading and videos. I am going to try to live with hope and not dwell on negatives.

The eternal optimist, I am going to believe that I am going to have less fibro pain and get more done. I mean, if one thinks only of horrible things it will ensure that I just exist and don't live.

I don't want to endure next year, but enjoy it. It's a big ask, but it is possible. I tell myself it's possible to live an abundantly happy life in spite of pain. I just have to pursue it.

So teach [us] to number our days, that we may apply [our] hearts unto wisdom. Psalm 90:12

I love being mistress of my home

Over the years I have spent a lot of time in hospitals with Scheuermann's disease, a spinal disease which caused bad back problems. Whilst spending 2 weeks at a time in traction, flat on my back and unable to move at all, the days would drag out so slowly and my thoughts would naturally turn to home.

In the morning, I would look at my watch and note that it was time for my children to be getting ready for school and I would wonder if their father or grandmother had everything under control and if the children were buying their lunch at the school canteen or taking a cut lunch. Were they missing me? I missed them. Terribly. And as I felt my eyes fill, I knew that I would give anything to be with them, looking after my own household.

Now this was a strange thing to think because I have to be honest and say that I often had suffered from a dislike of homemaking in my younger years and I can remember saying on occasion that I would rather be working outside the home than being trapped there, doing endless loads of washing and changing little bottoms, wiping little noses and washing floors!

But as the long weeks dragged on, punctuated only by bedpans and meals, I realised that life has a way of making us think of those things that truly matter. And as I watched the nurse close the drapes, heralding another long night of snoring patients and torchlight visits by nurses checking on my legs and feet, my heart would almost break longing to be home in my own bed surrounded by my family.

I would fall asleep dreaming and planning of changes that I would make as soon as I got home- ways that I could be a better wife, mother and homemaker. And as soon as the nurse came in at 7am throwing the drapes apart and bringing in the morning medications, my mind would turn to planning new homemaking schedules and better routines and I would find myself pining to be mistress of my home once again.

Sometimes I think God brings things into our lives so that we may learn from them. In my case, my enforced bed rest made me re-evaluate my life and realise that I had the best of life already. Until my back problems, I didn’t really enjoy my role as homemaker- I loved being a wife and mother- but housework- forget it! It took a few bouts of traction to get me to be still long enough to really consider that which is truly important.

And as I finally healed of the disease that ate away all the discs in my lower back, I not only regained my physical strength, but my spiritual strength and I realised that you never know what you have, until it’s gone. For God not only healed my back, but my attitudes. I resumed my homemaking duties with gusto and enthusiasm. I was thankful for the valuable lesson learned-that I love being mistress of my home!

So teach [us] to number our days, that we may apply [our] hearts unto wisdom. Psalm 90:12

We have to live through the bad times

Every day is precious no matter how much you ache or hurt. Life has to be lived rather than endured.

Realising how short life really is should encourage us to live it with courage, taking hard times as a challenge.

Not every day will be sunshine and roses, but those days will help us appreciate the days that are.

Remember too, we have to live through the bad times to get to the good.

“See then that you walk circumspectly, not as fools but as wise, redeeming the time, because the days are evil. Therefore do not be unwise, but understand what the will of the Lord is.” Ephesians 5:15-17

Make peace a priority

As we grow older, we often find we cannot handle stress as well as we did when we were young.

These days, I find that a peaceful home and life is of utmost importance, especially as I deal with chronic illness and pain daily.

I strive to ensure my home is peaceful and I diligently seek to eliminate things and people that cause me stress. Your mental health will thank you!

Let us try to make our homes a sanctuary from the world's trouble and mayhem. So let us deck the halls of our home and heart...

Let us make sure we keep our homes clean and aired.
Let us try to stay to a routine that gives us time to teach our children.
Let us remember that our children will be picking up and hearing fearful information, so let us be particularly loving with them.
Let us make meals that not only fill our family's stomach, but nourish them. Give them something to look forward to at meal times.
Let us be loving with our husband- chances are he has worries about employment and like you, is concerned about how to stretch the finances and keep the roof over your head and food on the table.
Let us try to avoid speaking constantly about the ills of this current state of the world in front of the children. They may be young, but they will take in a lot of fear. If the parents are afraid, then for them, it is the end of the world.
Let us limit watching the news as this is bound to effect everyone. Limit news to finding out directly what you need to know and turn it off.
Let us watch uplifting videos, especially with our children and let's play with them. Make a cubby house and let your children be the Mum and you the child. Use your imagination and delight them.
Let us put our little ones into the bath and sit alongside them, singing songs and telling stories and blowing bubbles with them.
Let us have a sense of calm and peace in our home, for everyone to enjoy.
Let us be particularly attentive and available to our spouse and fan the flames of romance. It works wonders for a marriage.
Let us sit at table and teach the little ones etiquette, and have the table set nicely to make it a time of pleasure and unity.
Let us continue with a daily nightly bedtime routine for the children and keep regular sleeping hours.
Let us pray with our children at night as they go to bed, allowing them to know that God loves them, watches out for them and calls all the stars by name. Invite discussion of any worries so that they can be reassured and sleep better.
Let us keep up with our own appearance and hygiene, for that will make us feel more like we can cope.
Let us use the fine crockery, tableware, cloth serviettes and silver utensils. Drag out the best linen and softest towels and celebrate home and family.
Let us remember to pray for others, particularly for those for whom isolation means domestic violence. Have this link on hand for help if you or someone you know needs protection and advice.
Let us remember to keep close to the LORD Who has gone to prepare a place for us, and is coming to take us Home with Him soon.

Peace is the first casualty of stress. Make peace a priority in your life and home.

For thus says the Lord GOD, the Holy One of Israel: “ In returning and rest you shall be saved; In quietness and confidence shall be your strength.” Isaiah 30:15

I am beyond tired!

After a good day yesterday, I ended up flat on my back. Actually that is in bed. My doctor said my BP was too high at 187/87 and he put me on more meds. I planned to do some organising of my wardrobe but it was not to be.

Half an hour after taking my BP medication, I found I couldn't keep my eyes open, so I went to bed. Woke up a couple of hours later just in time to cook dinner. Dinner wasn't very exciting- a steak sandwich.

Tonight I had to take my usual dose of BP tablets and I am just about to go to bed. It's so frustrating! But with chronic illness, it is what it is!

I have to go back to him in two weeks. He is going to discuss giving me Endep for my fibromyalgia pain.

Unable to sit for long, I have culled a lot of FB groups and deleted my Twitter account. I want to reserve whatever spoons I have to look after Chris and our home. I need to spend more time with him and not on the computer.

This dance with chronic illness has it lead all the way. It steps on your toes and cramps your style. It holds you captive. I just want a break from it. I am beyond tired!

It's a pain!

So the day has started off without any appreciable spoons. However, I have purposed to do some chores in the house regardless. Simply because they have to be done.

With the last two days slack on housework, there are dishes and washing and some other chores that are shouting to be done.

My sugars are still 10.4 this morning in spite of taking the new diabetes medications for a week. So I accept that I am never going to feel really well. Fibromyalgia and angina coupled with back pain also seem to do that.

So I am going to just concentrate today on the most crucial homemaking tasks: having clean dishes and cups and some clean clothes and towels.. No lists today, this is all I can manage.

So today's list of to do's are:

Soak and wash dishes and put away after air drying
Catch up on the washing and put it away after the dryer has finished
Cook some lamb stew in the slow cooker for dinner

Granted it's not much to do, but my body feels like it's trying to climb Mt Everest. But enough procrastination: I must push on. No fairy godmother is coming- I'm it!

It's mundane. It's frustrating. It's tiring! But it is what it is! It's chronic illness! And it's a pain!

A big part of my life

It's 11.30 Saturday morning here and already we have been to have blood tests, come back and had breakfast and I have done a load of washing, folded clothes and stacked the dishwasher.

They weren't able to get blood from me today so I have to come back Monday. This in spite of drinking water beforehand.

Chris is sleeping and I am thinking of having a nana nap as I have no spoons left. So tonight I will be cooking pork chops with mashed potato and salad. I may serve a fruit salad for dessert.

The fibromyalgia is flaring and I am aching all over. I haven't recovered from the move yet. In spite of knowing I could/should do some more around the house, I know that I need to rest or tomorrow will be a repeat of today. Pacing and resting are now a big part of my life since fibro.

You just don't know when it will break.

Over the last week I have been enjoying a respite from fibromyalgia pain and fatigue. I don't know why it happened, but of course I am glad it did.

During that time I have been busy cooking meals in advance for the next time I have the inevitable flare. It has been working out really well.

I have been carefully pacing myself, allowing 15 minutes of decluttering then resting. Emotionally, it's very satisfying.

Well, I woke up this Sunday morning and have had an unwelcome guest: you guessed it: another fibromyalgia flare. So I guess that I overdid it..So today I will be reaping the benefits of preparing some meals in advance.

Conversely, though suffering physically, I am not depressed by this: I knew my respite wouldn't last forever. But oh how wonderful it was to have some spoons and to be able to go a whole day without a nana nap!

We Fibromites in regards to spoons and flares, are definitely babies in cradles swinging from the tree tops. We know that at any time the bough can break and we will come tumbling down.

But it's best if we just learn to go with the flow and try to enjoy the respite: the bough might not break for ages, but you never do know.

I am glad I have done this!

So I have been busy cooking those meals and freezing them as I mentioned in my last post. It has been quite an effort for me, but I think it's paid off.

I managed to get 30 meals cooked and in the freezer. I ran out of containers and room, so I had to place the food in plastic ziploc bags. No matter, because they will taste the same.

Last night I got a spaghetti bolognaise out, emptied it nicely thawed, onto a plate and nuked it for 3 minutes. It was great! I added shaved parmesan cheese and some salad and it was delicious!

Yesterday my younger son turned 45 and we went to his place to wish him happy birthday. It's a 2 hour trip each way, so by the time we got home I was too exhausted to cook. So this came in handy.

I have quite a few dishes to do today and I want to clean my kitchen well, so if I have enough spoons left, I want to cook four meals of chow mein with rice.

Sitting here talking to you, I feel like I am falling asleep and my muscles are aching badly. So I fear maybe another fibromyalgia flare is coming to pay me a visit. Just another reason I am glad I have done this!

Normally abnormal

We chronically ill women try so hard to do "normal" things. Like look well. Be cheerful. Be patient. Kind. Hospitable. Our family and marriage are our first priority after God. We try so hard to spin our wheel not fast- but at a "normal" pace.

By "normal", we compare ourselves to those who do not suffer from chronic illness and pain. Or are disabled. We are very careful to keep serving our family but sometimes with the illness that afflicts us: we fail. This often gets to us and causes us to sink into depression.

Being unable to process that we simply can't act as "normals", we often berate ourselves and sink into the Pit of Despair. We are often judged by "normal" standards, as we simply cannot attend certain social functions like before. If we do, the pain and effort can make us tense and we can make us appear moody unsociable grumps aka the death head at the feast.

If only "normals" would realise that we are pushing ourselves every day to live a life that not even closely is "normal" like in the days before our health failed. We get so adept at doing this, that we have become quite good at wearing masks to cover the Mask Of Pain. Hence the appearance of being in a mood.

My fibromyalgia and other health issues have now made it impossible for me to disguise, and I have learned to acknowledge this to people and tell them in advance that my attendance or action or whatever is totally subject to how I am on any given day.

Basically, I have had to pander to angina, spinal and knee problems, fibromyalgia, polymyalgia rheumatica, and submit to tyrannical spoons by being totally flexible about my appointments and so on.

People may still misjudge me but that is not my problem. I just pray that the LORD will allow them to see that I am not lazy or unsociable, but am just a chronically ill woman who finds just breathing some days enough effort.

The LORD knows I am not well, but people take a lot more convincing. I am normally abnormal.

Put on therefore, as the elect of God, holy and beloved, bowels of mercies, kindness, humbleness of mind, meekness, longsuffering; Colossians 3:12

Seeking Him in a meltdown

So today I was watching all the news and viewing You Tube videos of current events and I grew fearful.The adrenaline started flowing and I knew that I had to get some control back to my body if possible.

I quickly turned on my worship music. I started to cry as flashbacks of God's faithfulness and goodness over my whole life time flashed before my eyes. Oh how faithful and good He's been to me!

With a life of many trials and much pain due to fibromyalgia, I can confidently testify that my God has been there beside me, comforting, correcting, forgiving and being so so compassionate and kind! Sometimes walking beside me and often carrying me.

Trauma, illness and abuse have given me PTSD but even so, I never once have failed to sense God's Presence, so real that I could almost feel His breath and touch of His Hand.

But being a sufferer of many illnesses including mental illness, I have learned that it is essential to run to Jesus the minute fear or pain or flashbacks assault my peace. And I have learned that it is true that one has to bring those fearful thoughts or emotions in to the captivity of Christ. So I sprang into action.

I sat in my study, closed my eyes and listened to the words of the song that explains exactly how I feel about my God. And slowly the adrenaline abated as the peace that passes all understanding overtook my stressed body.

As I focussed on worship, I didn't hear Chris come in and it wasn't until he took my hand and started to sing along with me that I knew he was near. Not a word was needed to explain why I sat crying with upheld arms and mouthing those words of gratitude and praise.

Holding Chris' hand, I realised once again how blessed I was by the LORD in giving me a Christian husband who knows to bring his hurts and fears to God and bring his thoughts into the captivity of Christ. And who encourages his damaged soul mate to do the same, by his example.

It's important to keep our focus on God's goodness and faithfulness in times of fear and trouble. It's the only way we are going to regain our peace and equilibrium. So are you seeking Him in a meltdown?

And the peace of God, which passeth all understanding, shall keep your hearts and minds through Christ Jesus. Philippians 4:7