"But by the grace of God, go I"

As you probably know, I suffer from a myriad of health issues from life threatening to annoying. Each day is a constant struggle to keep my home and look after Chris and myself and our little white cat, Xena.

Recently, I read an article about chronically ill bloggers who use the internet to feed their latent Munchausen's disease  The writer who obviously is not suffering an invisible chronic illness, concludes- falsely that we are feeding a desire for attention and sympathy.

This writer had no medical expertise and spoke with the confidence and freedom of a healthy person who knows nothing of the pain every day brings to us who aren't so blessed. It made me both angry and sad.

Anyone who manages to carry on a relatively "normal" life, sacrificing their comfort to serve and love those closest to them, know that the only thing we really desire is compassion. We rarely take delight in our symptoms, in fact the majority of us try very hard to appear as a healthy person in spite of being in pain and discomfort.

Goodness knows, we suffer so much with people judging us unkindly and this simply serves to push us further into depression and loneliness. Especially when our illness is invisible, like fibromyalgia.

Many of us chronically ill people are housebound for the most part, and therefore we feel a certain amount of loneliness and disjointment from society. We simply want to be respected and allowed to simply exist without the stigma of mental disease in the form of Munchausen's.

We bloggers of chronic illness do so because we know the feeling of disenfranchisement in a social sense. We are stripped of our right to live in peace and freedom from bullying ignorant people. 

Writing for those who suffer like we do helps us to reach out to people who would understand the psychological insulation and the sting of being misjudged and categorised as a malingering attention seeker. 

Whilst it is true that we have the LORD to love us unconditionally, it nevertheless hurts us that people are so cruel and instrumental in adding ridiculous labels to us that demoralise us even further.

Chronic illness and pain is a horrid  way to live and those who cast stones at us would do well to thank God that they aren't so afflicted. God has not chosen them to walk the lonely path of chronic illness and they also would do well to remember "but by the grace of God, go I" 

© Glenys Robyn Hicks

Beloved, I pray that you may prosper in all things and be in health, just as your soul prospers. 3 John 1:2

I know how she feels

So, many moons ago, my ex-husband and I used to go every Saturday to see our eldest son play football. On inclement weather days, I  would sit in the car with a friend I had made. She came to watch her son play as well.

We would chat during quarters and half time and I had noticed that she had no wedding rings or jewellery of any kind. I knew she was married because her husband and mine would watch our boys together.

She was a bit of a sour puss to be totally honest. Perpetually moody and very negative. I couldn't understand why because she looked well and dressed nicely. There was something about her: she was a bit odd.

Anyway, during our talks she said she was perpetually tired. Bone tired. She didn't work outside of her house and only had one child and he was almost a teenager like our son. What could be making her tired?

Years before the mobile or cell phones came in, I asked her what she thought the time was. She pulled her watch out of her pocket and I couldn't help but ask why didn't she wear it?

She replied that she cannot wear jewellery of any kind. It drove her nuts. Her muscles ached constantly and she was in pain and was being treated for depression. The doctors couldn't find anything wrong with her in spite of oodles of tests. 

For her treatment, she was under the care of a psychiatrist who said she had some form of mental illness that bordered on OCD as well as depression and fatigue. Then she was labelled as a hypochondriac.

She was on strong pain killers and also Valium and anti-depressants. Nothing seemed to help and she told me she had to force herself to come and see her only child play each week.

I thought she was rather weird to be honest. I mean why can't anyone bear to wear even a necklace or wedding ring or watch? Mentally, I lumped her in the acquaintances category, rather than a girl friend.

One day she told me she was having trouble sleeping and she needed to sleep off her medications but often felt groggy and muddled during the day. So, I offered to pray for her. Well, she blew up at me and screamed, "There is no God! If there was, he wouldn't have let my brother die in a fire on an oil rig!"

I was told not to pray for her again and as she was very vitriolic, I decided to sit in our car from then on. I didn't need her anger and aggressiveness.

This was in the 1980's and fast forwarding to 1999, with the identical symptoms as her, I was diagnosed with fibromyalgia after many tests for Lupus. I had never heard of it. 

Psychiatric assessment wasn't even muted and I confess I felt a sense of relief at that. It was a medical condition for a nasty painful syndrome that I now know that poor woman had.

It all fell into place: a trauma that ended her peace, the body aches, fatigue, irritability, skin that could not bear being touched-and it excluding wearing jewellery, no restorative sleep, and brain fog with cognitive difficulties.

In those days, when fibromyalgia was not even heard of by the general population and doctors weren't trained about it, fibromites were treated with disdain and were labelled with munchausens and other neurotic labels and as a result were often overmedicated with anti psychotics and Valium.

After being diagnosed myself, I remembered this poor woman and I confess I too labelled her as a hypochondriac and malinger and possibly suffering from munchausens as well.

I am so glad that fibromyalgia is much more known and is treated as a real malady and not a psychiatric disease. Yes, we occasionally are still misunderstood, but not as much.

Since I found out about fibromyalgia, I still pray for that poor woman and I thank God that at last she would be heard. It's the least I can do for her, now that I know how she feels.

© Glenys Robyn Hicks

Beloved, I pray that you may prosper in all things and be in health, just as your soul prospers. 3 John 1:2