More than a place to sleep

Recently someone asked why do we make our bed? I gave it some thought as I have recently been making my own bed daily, in spite of regularly going back into it for a nana nap. Here's a few thoughts on why I use my precious spoons to make my bed.

Physically its more comfortable to sleep in. 

Psychologically its more inviting.

It makes the room visually more esthetically pleasing.

The bed's the centrepiece of the room like in a painting. 

It gives the illusion of order and calm.

It uplifts my spirits when I come into my bedroom.

With fibromyalgia, angina and back problems, I make mine but often get back in it. So I remake it.

When I make it, I don't get on my knees as they are broken and I do not do hospital bed mitred corners. I pull up my top sheet, then turn back the minky blankets. With arthritic hands, the only tucks I do are at the bottom of the bed to secure the bedding...

But, being honest, I sometimes let it go when I have a fibro flare- being satified that the sheets and bedding is clean. But the majority of times, my beds are made. 

Beds are more comfortable made up or at least straightened and are more than a place to sleep.

Here a little.

 

So today I woke with no spoons and I felt like I had been hit by a bus. But I really want to start this journey of reclaiming my house, so I bit the bullet and took my first step.

As the kitchen is always the first area that calls for attention, I decided to start there. I had cleaned up last night and only had a few dishes to take out of the dishwasher.All I had to clean up was the breakfast and morning tea dishes.

Fibromyalgia flares see that I simply can't do mornings, and as you can see, I couldn't raise a gallop until nearly lunchtime. All I had managed to do was pull up our beds, put a load of washing in and run my irobot, Sadie.

So by the time I had done the kitchen, it was time for a nana nap as my angina was playing up and I was finding just breathing enough.

So I had a nana nap which lasted a few hours, and I came out again but I still had no spoons to speak of.

My plan was to wipe down the kitchen benches or counter tops and start preparing dinner, but I had to leave it for the moment. Chris made me a cup of tea, we discussed what we would eat tonight and I sat down to talk to you.

I realise most people would say that I haven't accomplished a lot, but believe me, when you wake with no spoons at all, it is a lot. I know the benches need wiping down, but basically the kitchen's clean and I can start on cooking dinner as soon as I recoup.

I don't allow myself to suffer from "false guilt" anymore and I don't allow myself to be dictated to by my OCD perfectionist healthy woman of the past. She doesn't exist anymore. 

Everything we do is kudos to us Sacrificial Home Keepers. We push ourselves to achieve little by the standards of "normals", but to us, we have run a marathon.

So in a minute after I post this post, I will be cooking sweet and sour pork and rice. And then I will pray for enough spoons to see me sort the kitchen out- I hate getting up to a dirty kitchen and if I can do it before bed, it will be a gift from my previous self to my future self.

Tonight is bin night, so I will help Chris gather the rubbish and put the bins out. Come to think of it, they go out more often than we do these days! But it is what it is! With no spoons for both of us, staying home is a pleasure.

Anyway, I have at least achieved something today- working. pacing. resting. planning. It all adds up with here a little, there a little in the daily life of this Australian Sacrificial Home Keeper.

Stating your name and business

As you know, we have just moved and along with a new home, comes some new things to add to the decor.

Chris and I love this door mat. This verse is one of our favourites and when we saw it we wanted it. It can be personalised to add your family name.

It looks lovely at the front door. We still have pictures to be hung and some flat packs of furniture to make up. The unpacking itself is almost finished.

The plan is to gradually go through room to room and gradually declutter. But this will depend on my spoons. I have another fibromyalgia flare.

But we have been finding that even a concerted effort of 5 minutes at a time followed by a rest and a cup of tea has paid off. Pacing is critical with fibromyalgia and heart failure.

I am in the process of getting an i-Roomba robotic vacuum cleaner to help with the floors. This house is quite large and the passage alone is as long as a cricket pitch...

Neither Chris or I can vacuum these days and I am hoping that the i-Roomba will save on money to employ a helper to come clean the house for me. I will let you know how we go.

Happily, the robotic vac can manage both tiles and carpet without skipping a beat, so it will be able to keep our lovely door mat free of dust bunnies. 

Meant to be noticed, I don't want visitors to our home seeing the mat dirty- not when it's proclaiming our faith and intention of having a holy home. It's all about stating your name and business! 

I am glad I have done this!

So I have been busy cooking those meals and freezing them as I mentioned in my last post. It has been quite an effort for me, but I think it's paid off.

I managed to get 30 meals cooked and in the freezer. I ran out of containers and room, so I had to place the food in plastic ziploc bags. No matter, because they will taste the same.

Last night I got a spaghetti bolognaise out, emptied it nicely thawed, onto a plate and nuked it for 3 minutes. It was great! I added shaved parmesan cheese and some salad and it was delicious! 

Yesterday my younger son turned 45 and we went to his place to wish him happy birthday. It's a 2 hour trip each way, so by the time we got home I was too exhausted to cook. So this came in handy. 

I have quite a few dishes to do today and I want to clean my kitchen well, so if I have enough spoons left, I want to cook four meals of chow mein with rice.

Sitting here talking to you, I feel like I am falling asleep and my muscles are aching badly. So I fear maybe another fibromyalgia flare is coming to pay me a visit. Just another reason I am glad I have done this! 

They're silently waiting for me

Anyone who follows this blog knows that I struggle with washing the dishes. It is a battle that is fought and lost on two fronts: emotional and physical.

The emotional part is owing to the fact that I don't have a dishwasher and the dishes multiply like rabbits and are a continual eye sore on the side of the sink. 

In spite of cleaning them up and being rewarded by not only an empty sink and benches and of course, clean dishes- I find the complete futility of feeling done with them is disheartening.

A terrible procrastinator, I promise myself that I will keep up with them, but illness laughs as it assails me with yet another flare, and they remain on the bench mocking me for being  defeated yet again.

So here comes the other side of this domestic dilemma: being completely out of spoons and suffering from broken knees and collapsing spine. I simply cannot stand.

And of course that horridly wicked ruler, Fibromyalgia ensures that I am in an almost constant flare, and it is the cherry on the top of my cocktail of pain. So not only is my physical health attacked, but also my mental health. It's depressing.

I know I could ask Chris for help, but he has heart failure and battles his own health issues. It has always been me who washes the dishes, and then he will usually come and dry them and put them away. I am grateful.

Until I can gather some spoons I will sit and wait for my Tramadol to work. I plan to clear the dishes up, cook some steak and vegetables for dinner tonight and rest. That's the plan. Meanwhile, they're silently waiting for me.

It's calling my name!

Today is a mild day weather wise. We are sitting on 20C with mild winds and no storm activity. I am sitting here wondering why I have no spoons and am lacking the energy even to have a shower.

Fibromyalgia is a mystery to me. Just as I think I have it worked out, a new or worsened flare springs me unawares, and I find myself unable to think clearly. Even my eyes have trouble focussing today, so pacing myself's not going to work.

There's much to do here as well because I have been in a flare for a few days now. I am even too tired and sore to follow any lists at all. Except Thursdays' List. All one does on Thursdays is rest. I think I will have to treat today as a Thursday. Which is the beauty of Lists: you can exchange days to accommodate how you feel....

There's a few things I must do today:

1. Cook a beef stew in the slow cooker
2. Rest

The first one is done and the second is a work in progress. I feel no false guilt anymore.  It's the only way I can get over this flare. Otherwise tomorrow will be just like today where it's all too much. 

For today, rest is my own prescription to get well. Besides, I can hear my bed: it's calling my name! 

Making memories

There's widespread flooding everywhere today.  One of the roads is impassable still. Fortunately, we are staying home today as we have guests coming this afternoon.

With all the thunder and weather changes, it is playing havoc with my fibromyalgia flare. I am in considerable pain today and I long for a nana nap already: it's only 1pm!

So far I have done a load of washing and am using the dryer. We have had breakfast. Xena has been fed. I will soon be making a ham and cheese toasted sandwich for our lunch. We will be having a big meal for tea tonight.

I am following Saturdays' List as I plan to go to church tomorrow. 

Still on my to do list is:

1. Lunch
2. Change over the washed clothes and put in dryer
3. Cook the defrosting chicken for our roast dinner

I am really looking forward to having my guests come, but I am forcing myself not to go back to bed.

The struggle is real. But I feel if I don't practice hospitality and have people come see us, that my life will be the poorer for it. 

So today, I am taking some paracetamol tablets with my toasted sandwich, and pretending I am having a good day. It's all part of making memories...

What I wouldn't give for a good sleep

Last night was a fizzer regarding sleeping. No matter how I positioned myself, sleep eluded me most of the night. I have woken up this morning so sore and tired that I don't know what to do with myself.

From twenty odd years of suffering from fibromyalgia, I know that today is going to be a wipe out. So I will be pacing myself and only doing the bare minimum of chores.

Yesterday I felt like this, but we had waited a week to see a new doctor and we had to go see him. He was good and seems to know his stuff. We have a few baseline blood tests to get done before we see him again next week.

We are into cooler weather with a top of 28C predicted. I have washed two loads of clothes and am too tired to hang it out. Sometimes you have to compromise when you have chronic illness. Sometimes you win, most time it does! 

I shopped online for groceries yesterday: the Woolworths delivery man is due soon... I am saving my few spoons to put the shopping away and mark it off the shopping list as received...

Things on my to do list today:

1. Put the food away
2. Cook my homemade pasta sauce in the slow cooker for spaghetti bolognaise tonight
3. Rest

That will have to do for today as I am having trouble keeping awake. What I wouldn't give for a good sleep! 

What a drenching!

There's nothing nicer than being in bed listening to the rain on a tin roof. Especially if you don't have to go out in it...

L

I took this picture from our back door just after I fed some bread to the birds that frequent our garden. I love the smell of the rain! We are getting some relief from the heat with a top temperature forecast for 21C or 69.8F. 

It was my plan to go to church this morning, but with all the storm activity yesterday my fibromyalgia's flaring and I honestly can't make it. Hopefully, next Sunday will be better.

Usually, I listen to the Bible on You Tube and worship and rest at home when I can't go. Which is often, unfortunately. 

I will be hanging up the clothes I took out to wear there this morning. Later on I will cook some curried sausages in the slow cooker, which is my favourite way of cooking when I am in a flare.

There are a few dishes in the sink soaking in hot soapy water as per Sylvia's Sunday List. I will attend to them later on after I have had a rest. 

It isn't ideal that I am seeking to go back to bed so early in the day, but such is the life of a chronically ill person. I no longer feel any false guilt over it like I did in the early days of finding out what my new normal would be.  I can only get through this flare by resting...

So list of to do's today:

1. Hang up clothes
2. Set slow cooker going with sausages for dinner
3. Rest

And last but not least, I will be rejoicing as more rain falls giving our parched land a drenching! 

First we have tea

We had a very fitful sleep last night due to the temperatures being so high yesterday. Our reverse cycle air conditioner just doesn't make it up to the front of the house and our bedroom is right at the front, faces east and catches the sun all day. It was like an oven in our room with the temp being 23C all night. Our fan only blew hot air around....

It is supposed to be 30C today with thunder storms later. We always have our Emergency phone app on to advise us on fire activity as we live in the country. Last year Chris's son, who lives near us, had to evacuate his family because of fires and this is something we are prepared for. 

In the front guest room we have our important documents, spare medicines and some clothing and our photos on USB  disk. They are easy to grab in case we get the evacuation call. With high fire danger today and lightning strikes a possibility, we have our fire plan in place. Yes, it's firmly in place,  along with our little white cat, Xena's cat cage. Just in case...

I am currently listening to the Bible on You Tube and it is great for times when I am in a fibromyalgia flare and can't take in what I am reading. This is my preferred method of quiet time on days like today when my fibro is bad and I am lacking sleep and spoons. 

So because of lack of spoons and much heat, we plan to stay home today. So far, I have showered, dressed and taken my medications. I have a few things planned for today:

1. I need to fold and put away three loads of washing.
2. I want to make a lamb stew in the slow cooker for dinner (so as not to heat up the kitchen)
3. I want to resume following FlyLady by jumping in wherever the zone is for today.

I usually use FlyLady and Sylvia Britton's Lists for chronically ill women depending on how I feel each day.  I use the List for the day, then I may follow FlyLady's zone for 15mins. Today I am doing 15 minutes of cleaning in Zone 1 in FlyLady.

If I get these three things done today, it will be good. I will just cross off those things I achieve. We will see. But first we have tea. Everything goes better with a cup of tea!