I have to say that in general I haven't found any real help via my GP's or rheumatologists here in Australia regarding my fibromyalgia. I am on the disability pension because I can't concentrate enough to hold down a job (not mentioning pain because there are some days when it is manageable), but in general the doctors over here seem to think it's something one puts on to get out of work! (If they only knew how we want to be able to work- especially in our homes!)
There was however, one GP who wrote me out a referral to go to a pain management clinic. I haven't been because I do not want to mentally put myself in the chronic invalid basket. If I try not to focus too much on myself and the symptoms it seems to help me mentally at least So I am trying self-help. Which truly isn't very helpful!
I have seen a rheumatologist recently who openly admitted to me that rheumies are practically useless in helping with fibromyalgia. I nodded my head in agreement!
I have found more compassion for my heart problems than my fibromyalgia. I wonder if it is because that is something that they can see? Or is it just the Aussie "She'll be right Mate!" mentality of some over here? Whatever, I would dearly love people to understand that fibromyalgia is a medical problem every bit as painful as diseases that can be seen.
© Glenys Robyn Hicks
Beloved, I pray that you may prosper in all things and be in health, just as your soul prospers. 3 John 1:2
There was however, one GP who wrote me out a referral to go to a pain management clinic. I haven't been because I do not want to mentally put myself in the chronic invalid basket. If I try not to focus too much on myself and the symptoms it seems to help me mentally at least So I am trying self-help. Which truly isn't very helpful!
I have seen a rheumatologist recently who openly admitted to me that rheumies are practically useless in helping with fibromyalgia. I nodded my head in agreement!
I have found more compassion for my heart problems than my fibromyalgia. I wonder if it is because that is something that they can see? Or is it just the Aussie "She'll be right Mate!" mentality of some over here? Whatever, I would dearly love people to understand that fibromyalgia is a medical problem every bit as painful as diseases that can be seen.
© Glenys Robyn Hicks
Amen Sister! It is so hard to explain to someone exactly what Fibro is because it is so hard to understand because you can not see it. I have to say my Rheumatologist has been so understanding and amazing at working with me here in the states. I really hope you get some relief and compassion from your drs soon.
ReplyDeleteI am so glad you have a rheumy who's understanding! I actually cancelled my yearly consult with mine as she told me there's really not much she can do to help me!
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