It still is what it is!

You may remember me telling you that I bought a bath chair lift so that I can have a bath. I was so overjoyed when it came.

Unfortunately it didn't work out for me and I only used it twice before I sold it. It came down to awkward plumbing and knees that don't work anymore. 

To say I was disappointed would be an understatement, not only disappointment that I couldn't bathe but also for the fact that it cost me $870AUD.

It was still immaculate and under warranty so I decided to sell it. I did after a couple of weeks, but I sold it for only $400AUD with ebay fees of $53.90 so I didn't make much back on it. 

On the bright side though, I did find that the shower in the main bathroom has an easier accessible shower stall and better water pressure than the ensuite one. 

And speaking of showering, I have purposed to have it at night now due to my spoons being scarce with my latest fibromyalgia flare. It doesn't matter so much if I run out of spoons if I am on my way to bed anyway.

Victoria has been experiencing very wild weather with lots of rain and thunderstorms. The pain in my joints and muscles gets too much to bear at times and I find I am needing to take a Tramadol some days.

 I haven't been spending much time on the computer for this reason as Tramadol makes me feel spaced out and I can't focus to write properly. Like everything to do with fibromyalgia, it's a tough task master and a tyrant, but it is what it is! 

He's faithful and good

When  my first  child was  born he  was  coming face  upwards.  The  forceps damaged  his eye which  looked normal but was nearly sightless. I lived in constant fear that his good eye would be damaged.

His father didn't want him to be wrapped in cotton wool and we went every Saturday to watch our son play Australian Rules Football which can be quite rough. The whole time he played, I prayed. The fear was great as players fell all over him. I hated it.

Eventually after the birth of his own third child, he had wet the baby's head too well and crashed into a lamp pole, damaging his good eye on the airbag. I was called to the hospital at 3am and had to drive him to Melbourne Ear Nose and Throat Hospital in the dark.

I had to stop every half an hour and fill his eye with drops to control the pressure in the eyeball. His eye chamber was full of blood, called an hyphema. Not a confidant driver, especially in busy cities and at night, I cried out to the LORD the whole way there and back home. It was so difficult with my son terrified of sitting there blind and it was my worst nightmare come true. 

He stayed with us and I nursed him, administering drops of different kinds and making sure he never laid down because of the hyphema spreading if he did. I took him to opthamologists for weeks until the hyphema was absorbed. As it absorbed, the vision improved. Fourteen years later it is completely healed and has had no bad after effects. 

This was absolutely one of the most horrid of times and testing of my trust in God and my faith. Yes- it was something I just had to do at the time, but I pray I will never go through that trial again. But God was faithful. And good. 

 © Glenys Robyn Hicks

Likewise the Spirit also helps in our weaknesses. For we do not know what we should pray for as we ought, but the Spirit Himself makes intercession for us with groanings which cannot be uttered.  Now He who searches the hearts knows what the mind of the Spirit is, because He makes intercession for the saints according to the will of God. Romans 8:26-27

“Little Angels”

On wings of love we laid you down, 

Wrapped moonbeams round your sides, 

We dimmed the light of distant stars 

And sang you lullabies. 

We lingered round your cradle 

As we gazed at you in awe- 

To us you were as angels 

Too perfect for this world. 

You must have dreamt of Heaven 

For you decided not to stay, 

The angels came and took you 

On the clouds on which you lay. 

Now Jesus gently rocks you 

In His strong and gentle arms, 

We know now, little angels, 

You are safe from any harm… 

Lord, lay them down in a cradle of gold, 

Tuck rainbows round their sides, 

Cover them with Your angels’ wings 

And if they ever cry- 

Tell them Mum and Dad are coming 

Just as soon as they awake- 

Please kiss our little angels, Lord 

And love them in our place.

© Glenys Robyn Hicks

"Take heed that ye despise not one of these little ones; for I say unto you, That in heaven their angels do always behold the face of my Father which is in heaven.” Matthew 18:10 

For Sarah and Ruth born sleeping 12 November 1969

Right where she loves to be!

Our white cat, Xena loves being near me. She always follows me around and sleeps with me as well. I guess she's her mother's girl.

She can be a bit jealous though. When Chris comes in to say goodnight and tuck me in and he always gets greeted with "nooooo!" from her. Especially when he kisses me. For that, she always gets up and comes to me, rubbing my hand or licking it.

Whenever we sit on the couch watching TV together, Xena jumps up and wiggles her way between us. We find it endearing and amusing.

Recently we got a new desk for my study nook and there's plenty of room for her favourite daytime sleep- her igloo. So knowing how close she loves to be- usually lying over my keyboard as I try to type- I put her igloo up on the desk in the corner, very close to me. She loves it!

We both love this house and feel really nurtured here. And so does Xena- and why not?- she's right where she loves to be! 

Giving the gift of time well spent

As most of you who follow my blogs know, Chris and I not enjoying the best of health. We both are currently battling heart failure, diabetes and obesity brought on by the inactivity that comes with pain and age.

Gradually as the maladies make themselves more known and felt, we are aware that we probably won't make it to our 80th year.

Lately we have written a will and talked to our adult children of our final wishes. Unable to bear being apart, we have decided that we both want to be buried together, and to this end, we are currently getting information about prepaid funerals and plots of land at our local cemetery.

We have discussed Do not rescusitate orders and made our wishes known to our children. They were hesitant to talk about these matters, but we assured them that we need to sort it out, afterwhich we won't talk about it.

My stents in my heart are 15 years old and I am told I need new ones inserted, but I have refused  them as the previous 2 angiograms injured me. I simply don't want to have more surgery.  

Chris and I have made the choice that there won't be any more harmful surgeries. If I have a bad heart attack I do not want to be rescusitated.

I am ready for Jesus to either take me in the Rapture or call me Home. Either way is OK.

Chris is in really bad health with his own heart failure. I am aware of how little time we may have and I don't want to waste it.

So I am on the computer about an hour instead of all day. I have culled most groups etc but have not culled my friends.

Chris promised me he will update if I go Home. We just cant bear any more hospitals and tests etc- especially when they have done me harm in the past.

I am trusting the LORD instead of man and for the one who is left behind, we are giving the gift of time well spent.

© Glenys Robyn Hicks

Precious in the sight of the LORD is the death of his saints. Psalm 116:15

Silly season's begun already!

 

This year because we finally have a larger home, I am hosting Christmas Day lunch. As always, I need to plan and pace myself because of my chronic fatigue, so I am looking into buying my foods and gifts early.

I know I am going to have a fibromyalgia flare by Boxing Day, but it will be worth it to have some good memories. Sometimes you just have to push yourself or you never do anything. I am looking forward to it! But to minimise any major flare after Christmas and leading up to it, I am planning already!

Last weekend our 10 year old granddaughter Taylah came and she loves Christmas and decorating, so we gave her the tree and decorations and told her if she wants, she can decorate it. She wanted to!

So except for Grandpa Chris holding her to place the star, she did it all by herself. We think she did a sterling job!

To be honest, if we weren't hosting lunch this year, we probably wouldn't be bothered with the tree but with family coming, it seemed worth the effort. So the tree is up albeit early. With both of us feeling under the weather, and with a little willing helper, it is cheerful and jolly. And good timing!

Taylah placed the solar lights so that the tree turns on at dusk and turns off at dawn. So there's no upkeep and even though the tree is minimalist by most standards, it still heralds in the festive season.

All we have left to do for decorating is putting the wreath on the front door, but it seems a little too soon to go public yet and let everyone know that at Hicks' House, the silly season's begun already!

Let your bed lamp shine

We recently talked about wanting to serve the LORD from where we are at: usually for us it's from our bed or recliner. 

But being faithful and serving God has nothing to do with our state of health. It's a state of heart.  The desire for godliness and holiness should still be there regardless of chronic illness.

I have found that the majority of sick Christians still want to serve God but feel that they have nothing to offer Him. They feel they cannot serve because of physical limitations.

This is not true. A faithful servant of God is one who loves God with her whole heart. She turns to Him for her daily survival in a physical world full of tribulation. And she longs to be used of her LORD.

The good news is: we can still be used of the LORD.  

With physical limitations comes more time on our hands, time that can be used to influence others. 

This influence can be from the confines of our bedroom, hospital room, wheel chair, walker, or doctors' waiting room. We can bring Jesus into the same places others occupy. 

When  we walk through the door even while leaning on a walking stick or crutches, we can still bring Jesus to others. Make no mistake, they will be watching.

Pray for opportunities to talk about Christ and the hope that is within you.  Be a blessing by being aglow with the Spirit and let others see that you indeed have Something that they want! 

If we can show that in spite of our outward appearance, we have Something worth having, people will be attracted to us regardless.  

Over the years, I have been in hospital- in traction for two weeks at a time, and I made an effort to pray for the nurses, cleaners, people who came with meals, physiotherapists and people who shared a room with me. 

Goodness knows, I had plenty of time to pray.  And though my prayers were for the most part silent, I believe that people responded to them without even knowing it.  They liked being around me. But it was the Holy Spirit that was the attractive part.  And He made me  smile so much that I was nicknamed "Smiley"

So,  you can sow seeds wherever you go- however you get there. And if you no longer leave your home for appointments or whatever, you can still hold people up in prayer from your home.

Bed is a wonderful place to pray and prayer is the best way you can serve God.  Prayer opens up doors for opportunity to grow, to trust, to care, to love and to find paths to witness for Christ. Service is totally possible. 

Nowhere in life is there a place where you cannot serve God by praying.  So start worshiping and praying Blanket Prayers  if you are bed bound, and read or listen to the Word.   You can always do something for Jesus.  

Let your bed lamp shine! 

 © Glenys Robyn Hicks

Do not neglect the spiritual gift that is in you. 1 Timothy 4:14a 

It's coming together!

 

As I told you, I have been trying to get my home back after our move, and so I have also been decluttering. I have given away quite a few things that I found were only taking up space without bringing me joy.

It was hard to give away some things that were my mother's but I bit the bullet and did it. The recipient was so happy that it made me feel good to have been able to bless her!

I put into action Sarah's organic cleaning and threw out those clothes I don't like or fit in to any more, as I hung up clean clothes that had been sitting around for too long! I bought some storage boxes and put sorted underwear and night clothes in them.

That did create some dust but I didn't worry as I have a robotic vacuum. I highly recommend to all Sacrificial Home Keepers that they get a robotic vacuum- preferably one that mops as well as vacuums. They are coming down in price but I assure you, they are worth every cent!

Small steps for sure, especially for those who are healthy, but climbing a mountain to us chronically ill. I am inordinately pleased with what I have accomplished so far! It's coming together, here a little, there a little!

Worth every cent!

 

I have enjoyed using my Roomba robotic vacuum so much that I have bought another robotic vacuum that also mops the floors.

Our home has lots of tiles on the floor and it takes a good deal of spoons to keep them clean. These two robotic vacuums saves me on energy and pain.

There's been little energy and a lot of pain these last few weeks. My blood pressure is still high even with me resting more. It's a bit of a puzzle really as emotionally I am good-or as good as someone with constant fibromyalgia pain can be. So I am not stressed.

I am enjoying our new home and it is finally decorated and things unpacked. I have also been decluttering and have given away quite a few things that I found were only taking up space without bringing me joy.

Anyway, I highly recommend all Sacrificial Home Keepers get a robotic vacuum- preferably one that mops as well as vacuums. They are coming down in price but I assure you, they are worth every cent!

Repentance is good for the soul

There are many things in life that can break us. Illness, loss, grief, depression, divorce to mention just a few. But often it is sin that breaks us the most: and unlike some other things that break us, time does not make it easier. As many as I love, I rebuke and chasten: be zealous therefore, and repent. Revelation 3:19

That is why repentance is so important. We need to repent as soon as the Holy Spirit convicts us of our sin, for if we don't, we give a foothold to the evil one. He takes great delight in making us feel estranged from God and hopeless. For godly sorrow worketh repentance to salvation not to be repented of: but the sorrow of the world worketh death. 2 Corinthians 7:10

Of course, God is not distancing Himself from us- we do that when we are conscious of sinning. So it is imperative that we come to Christ and confess our sin immediately and partake afresh of His Grace. There is nothing like the fragrant aroma of Grace as a balm for our sin when there is true repentance and forgiveness...The sacrifices of God are a broken spirit: a broken and a contrite heart, O God, thou wilt not despise. Psalm 51:15

But after repentance and forgiveness, we often find that there are those who still judge us and who remind us of our sin constantly. They call that which God sees as clean, unclean...Now when the Pharisee which had bidden him saw [it], he spake within himself, saying, This man, if he were a prophet, would have known who and what manner of woman [this is] that toucheth him: for she is a sinner. Luke 7:39

But where can one go when judging fingers point out our repented sin? We go back to Jesus. We take His Word that He has forgiven us. we renounce the judgers as being used by the evil one, and we get back on our feet, and continue in the Spirit...Casting down imaginations, and every high thing that exalteth itself against the knowledge of God, and bringing into captivity every thought to the obedience of Christ 2 Corinthians 10:5

Often the one who has sinned the most will arise forgiven and serve God in a passion and newness bought through the cleansing of the Blood of Christ, and in gratitude for His sacrifice for us...Restore unto me the joy of thy salvation; and uphold me with thy free spirit. Psalm 51:12

I have noticed many times over that people who have been broken and whom God has restored, often serve Him with passion and a zeal that others don't match. The greater the sin, the greater God's Grace..."Therefore I say to you, her sins, which are many, are forgiven, for she loved much. But to whom little is forgiven, the same loves little." Luke 7:47

As for those who judge us, we should remind them that the Blood of Jesus has washed our sin away and that they should not ever call unclean what God has called clean...As far as the east is from the west, so far hath he removed our transgressions from us. Psalm 103:12

© Glenys Robyn Hicks

The LORD [is] nigh unto them that are of a broken heart; and saveth such as be of a contrite spirit. Psalms 34:18

I am beyond tired!

 

After a good day yesterday, I ended up flat on my back. Actually that is in bed. My doctor said my BP was too high at 187/87 and he put me on more meds. I planned to do some organising of my wardrobe but it was not to be.

Half an hour after taking my BP medication, I found I couldn't keep my eyes open, so I went to bed. Woke up a couple of hours later just in time to cook dinner. Dinner wasn't very exciting- a steak sandwich.

Tonight I had to take my usual dose of BP tablets and I am just about to go to bed. It's so frustrating! But with chronic illness, it is what it is!

I have to go back to him in two weeks. He is going to discuss giving me Endep for my fibromyalgia pain.

Unable to sit for long, I have culled a lot of FB groups and deleted my Twitter account. I want to reserve whatever spoons I have to look after Chris and our home. I need to spend more time with him and not on the computer.

This dance with chronic illness has it lead all the way. It steps on your toes and cramps your style. It holds you captive. I just want a break from it. I am beyond tired! 

Epstein Barr And Fibromyalgia: The Link

Chris and I have both had glandular fever which lasted for months. He is being checked for fibromyalgia as he has every indication that he has, even though it is mainly a female disease, it can affect men. Here is an article written by a doctor about that link....

Epstein Barr, the virus responsible for glandular fever or mononucleosis, has been linked to the development of fibromyalgia – a chronic, painful condition of the muscles and connective tissue.

Fibromyalgia sufferers are mainly female and report chronic widespread pain and a heightened and painful response to gentle touch. One of the most important criteria to determine whether or not you may have this disease is significant pain in very specific areas of your body, including:

* Inside of your elbows
* Your collar bones
* Inside of your knees
* Your hips

Usually these locations are symmetrical, so you’ll have pain equally present on both sides of your body. Experiencing significant pain when someone presses on those areas, on both sides, is indicative of this condition.

Other symptoms can include fatigue, sleep disturbance, anxiety, bowel and bladder problems, difficulty swallowing and joint stiffness.

Conventional medicine offers no cure for fibromyalgia, although there are treatments like medication, exercise and behavioral interventions that can reduce symptoms.

The natural approach to treating fibromyalgia is to re-balance the immune system which may have been damaged by the effects of the Epstein Barr virus. It is also vital to relieve symptoms through nutritional intervention, graded exercise, stress management and re-establishing good sleep patterns. Let’s have a look at some of these natural treatments for fibromyalgia:

The mineral magnesium is a natural muscle relaxant that is showing promising effects on the pain of this condition. It should be taken as a powder or capsule along with magnesium-rich foods like fish, avocado, raw nuts and seeds, soybeans, green leafy vegetables, brown rice, apples, apricots and grapefruit.

Malic acid is also often low in sufferers and should be supplemented. Malic acid is found naturally in fruits like apple. It often gives unripe fruit a tart or sour taste.

To help relieve the fatigue seen in fibro and Epstein Barr, vitamin C and the B complex are recommended. Anti-inflammatory foods like fish oil, zinc, ginger, turmeric, pineapple and paw paw can also help.

Restoration of normal sleep patterns is an essential part of the recovery process. Herbs like valerian, skull cap, hops and chamomile are excellent. Epsom salt baths which are naturally high in magnesium should also be taken nightly before bedtime. These baths reduce muscle pain and tension and help ensure a good night’s sleep. Gentle exercise during the day – either a walk, swim or stretching exercises can also help you sleep better at night.

Diet wise, I recommend my Epstein Barr, CFS and fibromyalgia patients follow a low carb, high protein diet based around good quality protein foods and plenty of fresh leafy greens and other vegetables. Sugar, grains and the nightshade family of foods like tomatoes, eggplant, chilli, potatoes and capsicum, should be eliminated as they can trigger pain and soreness in the fibromyalgia patient. Remember too to drink plenty of pure water – at least 2-3 litres a day.

I have to add here that I could never drink 2-3 litres of water a day and current medical advice is that we only need about 6 glasses. Too much water intake can cause more problems and we have enough to deal with already.

This was food for thought and very helpful. Author unknown.