Morning Cuppas With Glenys

When you got no spoons everyone has to help!

So my respite from pain has come to a sorry end. I have been hit with the Mother of all Flares. Just breathing is too much effort and sleep is brief and light. The truck that hit me didn't even stop.

I have been pacing myself majoring on keeping the dishes and the washing up to date. It hasn't been too difficult really as I have planned in advance for the inevitable fibromyalgia flare that comes after a respite.

Most people who don't suffer from fibromyalgia would call me a pessimist, but we Fibromites know how fickle our body is and how greedy it is for spoons. We never can have enough spoons to say we are energetic. Spoons are energy measures

It's enough to have enough spoons to take a shower some days, and we usually suffer after for it in spite of the pride in ourselves that we made the effort and did it..and the luxurious feeling that being dainty brings.

No, we are realists who accept that our bodies are treacherous. They lure us into a false sense of joy in a seeming abundance of spoons- well enough spoons to make us believe that we can change the sheets, bake a cake, vacuum the lounge room or go shopping. In real life shopping, not just on the computer.

Knowing better really, but delirious in the freedom that a few spoons brings, our joy knows no bounds and we actually dare to live like we did before Fibro claimed our lives, bodies and joy. And we keep living in the moment full of joie de vie until the joy and spoons are gone.

No, I knew from 20 years experience that my respite from pain would be short-lived and it was. But because of planning for it, it hasn't seen me in a total mess, overwhelmed with meals and mess.

I had my handmaiden, aka dishwasher and I kept up with the dishes. I did a load of washing a day and I dried it in the dryer. But my greatest life saver was my frozen dinners I have in the freezer. They saved the day.

In all honesty, though I haven't kept the house running smoothly all by myself. I have had to enlist Chris to help me with stacking and unstacking the dishwasher and I asked him to put his own clean clothes away as soon as they came out of the dryer.

He has been really good actually- a blessing really. He also encourages me to take a nana nap, and feeling so fatigued and sore, I am so glad. We all need a hand when we are feeling so wretched and when you got no spoons everyone has to help!

We don't want to live without it

I read a statement today that said, "I don't want to be a part of a world where being kind is a weakness!" I have found in my life that people equate kindness with weakness and nothing can be further from the truth. Sometimes being kind to someone is an internal battle that strives with the urge to treat that person as we have been treated: unkindly.

Kindness is an attribute of God and is a fruit of the Spirit, and as such, is highly regarded by Him. Being kind is something we should all aspire to be as Christians. And it often requires being strong in spirit. It means being forgiving. Loving. Selfless. Sacrificial. It includes purity of heart, mind and speech. It imparts grace.

The King James Bible speaks of kindness 43 times, and from that one can see the importance of being kind in all its' aspects. Many verses exhort us to be kind and they extol kindness's virtues.

Choose to be kind even if that person doesn't deserve it, because that is what God has done for us all: saved and unsaved. That takes strength and prayer. Be kind. Because a world without kindness is a world none of us would really want to live in.

Put on therefore, as the elect of God, holy and beloved, bowels of mercies, kindness, humbleness of mind, meekness, longsuffering; Colossians 3:12

Christ is there to carry us

There's no doubt that we are in the end times and that the world is getting darker. It is harder to be a Christian than it was even twenty years ago.

We are not being killed like our brothers and sisters in Christ overseas, but we are in a place where our freedom of speech and freedom in general is being curtailed.

Often the butt of jokes and criticised for our faith, we are likened to children who believe in a fantasy: a God Who cares deeply for us is a stumbling block to many.

Workers can be dismissed for mentioning Jesus (although it is fine if they are using His Name as a curseword) and in some countries nurses have been dismissed for praying for a patient or simply wearing a cross around their neck...

We of all people are most misjudged and vilified by the world. When we stand up to society about matters that go against God such as same sex marriage, abortion and infanticide, we are told we are judgemental, unloving and biggotted.

What can we do? We can stand firm. Even if we can't stand physically, spiritually we stand firm. Our foundation is the Blood of Christ and His Word.

We live a life of faith and we aspire to be more Christ-like daily. We pray for ourselves, others and the world that it comes to a saving knowledge of God.

In our daily living, we stand firm in our convictions, no matter what the cost. This can be so difficult.

Shining our light in a dark world is never easy, but we must continue to shine. We must win the lost through our example, and our example should be Jesus.

Many have fallen away and backslidden. We must pray for them and pray daily for our own strength and commitment to Christ to stay firm.

It is imperative that we Christians, able bodied or not, stand firm. And we can. We have the Rock to cling to and the firm foundation of His Word.

Allowing God to save our eternal soul gives us hope and faith, even when we feel we cannot stand-because we know that in the moment we fall, Christ is there to carry us.

And ye shall be hated of all men for my name's sake: but he that endureth to the end shall be saved. Matthew 10:22

You just don't know when it will break.

Over the last week I have been enjoying a respite from fibromyalgia pain and fatigue. I don't know why it happened, but of course I am glad it did.

During that time I have been busy cooking meals in advance for the next time I have the inevitable flare. It has been working out really well.

I have been carefully pacing myself, allowing 15 minutes of decluttering then resting. Emotionally, it's very satisfying.

Well, I woke up this Sunday morning and have had an unwelcome guest: you guessed it: another fibromyalgia flare. So I guess that I overdid it..So today I will be reaping the benefits of preparing some meals in advance.

Conversely, though suffering physically, I am not depressed by this: I knew my respite wouldn't last forever. But oh how wonderful it was to have some spoons and to be able to go a whole day without a nana nap!

We Fibromites in regards to spoons and flares, are definitely babies in cradles swinging from the tree tops. We know that at any time the bough can break and we will come tumbling down.

But it's best if we just learn to go with the flow and try to enjoy the respite: the bough might not break for ages, but you never do know.

Sex isn't everything.

This picture reminds me of Chris and I in the kitchen... I often can be washing the dishes and he will come behind me for a cuddle.. I still blush and giggle like a school girl! I usually go weak at the knees when he kisses the back of my neck, and I turn around and kiss him passionately. Finally, we break away, breathless with romance and laughter! Most times, he then pitches in and helps me finish washing up.

This little dalliance of ours to us is quite romantic and that coupled with the fact that Chris helps me with the dishes, makes me feel nurtured and happy- it doesn't take a lot for me! Which is good, because money is short for a lot of flowers and chocolates.

We do go out together for meals whenever we can salt away a little money. Nothing too expensive, but we bring our own ambiance! Just looking into each others' eyes and holding hands over the table reminds us of our early days together and keeps us focused on each other. Truly, we do adore each other.

Because money is in short supply, and because we constantly laugh together and cuddle often, we feel that special occasions such as Christmas, birthdays and Valentines' Day aren't necessary to show affection and love. We in fact, do not buy gifts for these for each other. And it is perfectly fine with us. We do, however look at our wedding photos and reminisce a lot on our anniversary or any other date significant to us...

I think it may be the fact that we are an older married couple that makes it easier to see romance in ways that younger couples don't. With age and fibromyalgia and heart and back problems and Chris with his diabetes, sex is either umcomfortable or impossible. So both Chris and I look forward to a bubble bath at home with a good back wash and nail trims or a foot or back massage. We do that for each other on a regular basis. To us, nurture is romance!

Chris loves me bringing his breakfast into him in the morning. This to him is romantic and although his not buying me presents and sending me cards may seem that he is an unromantic man, nothing could be further from the truth. He sings to me! We have some special songs that he says were written just for us, and he will play them on the computer, and take me in his arms and croon to me as we dance slowly round the living room.

Because I am often in hospital, Chris shows his care by staying with me most of the day until visiting hours are over, just stroking my hair and holding my hand. Or he will come with our laptop and headphones for me. My heart melts with love for him. We can't stand to be away from each other.

Illness, medications, no spoons and age have curtailed our times of intimacy, but we manage to show love to each other in ways that are imaginative, erotic and very caring. There is absolutely no thoughts of unmet needs- love can be expressed in ways other than full sexual intercourse, and we delight in each other regardless! If sex happens, it's a bonus!

So we don't care about no presents or cards for Christmas, or birthdays or Valentines' Day- with the romantic sparks that still fly between us, and our little dalliances, every day is Valentines' Day.

I thank God for Chris as I am one very blessed wife, and I tell him often.... he finds that very romantic too! We are proof that you can live without sex! Sex isn't everything! (This post has been written with my husbands' permission)

It has been humbling.

With the days so uncertain and now a new war, I have an underlying anxiety bordering on depression, I have spent a lot of time in prayer and personal Bible study.

I have been watching lots of You tube sermons on eschatology or end times and the Rapture. But I have no peace. To be honest, it's doing my head in and destroying my peace.

Before Covid19, I was so peaceful and assured of God's providence and protection of His people, but with many believers also getting the virus, it has shaken my faith.

Honestly, I felt better before I delved into all the end times predictions and when the Rapture would come.

So in having much time to sit and pray, I have come to realise that the reason for my disquiet is that I want to control my life and destiny. I want to know what will happen tomorrow. I want to know why.

And I want to feel in control. So in realising this, I have had to repent. I have had to study the promises of God and acknowledge that He alone is sovereign.

I am His to call home or to allow to live. And in so doing, I have had to relinquish my need to control and to know, and I have had to revert to childlike faith.

So now each night I commit my life into God's Hands. And I can sleep. Each morning, I thank God for another day and I am grateful.

Faith is the key to peace. Lack of faith produces fear and is of the evil one. It will do your head in...

Placing my hand in God's Hand as a trusting child has calmed me. The depression has lifted. And a new depth of my relationship with God as Father has deepened. I am glad that I have had this crisis to shake my faith and then to strengthen it.

It hasn't been fun and it hasn't been easy. But like so many times we are put in the crucible, we are better for it.

To think I was so unsure of my trust in God's protection has worried me, but now that the test is over, I rejoice. It is freeing.

Like in all pruning and growth, I have blossomed in trust.... but it has been humbling.

Now no chastening seems to be joyful for the present, but painful; nevertheless, afterward it yields the peaceable fruit of righteousness to those who have been trained by it.

Keeping dainty with chronic illness

I have been ill with fibromyalgia for about twenty years now. In that time, lots of things have changed, and one of them is my personal hygiene routine.

One would think that taking a bath or a shower would be an easy thing to accomplish, but if you suffer from chronic fatigue, fibromyalgia, back problems or angina problems like I do, you would realise that it consumes a lot of your spoons. So I had to do a bit of rethinking of my daily routines. I've discovered that one of the places that takes a lot of my spoons is the bathroom.

Because bathing and drying and dressing exhaust me, I varied my time in taking a bath depending on how well I feel. If I have enough energy, I would bathe in the morning, if not I would take a shower before bed as Chris is home and he helps me get dried and into my nightie. (When you are chronically ill, you quickly get over being humbled by needing assistance- you are grateful for any help available.)

I have found that if I take a bath or shower in the morning I am left with no energy for the rest of the day. If I take my shower at night, I have just enough energy afterwards to get myself to bed, which works out much better.

Hot baths or showers leave me too exhausted and give me angina pain, so I take showers with only warm or tepid water. While I would prefer to shower every day, showering is best done every other day for me to avoid flare-ups of pain, fatigue and soreness. I have decided on some new course of action to make time in my bathroom more fibro-friendly.

One of the first things I changed was how I take a shower, or rather, the position in which I shower: sitting. Here I find those telephone type showers are useful. When I get out of the shower, I sit down to dry off.

I can no longer blow dry my hair so by necessity my hairstyle has been wash and air dry for years now. Time in front of the sink brushing my teeth or washing my face has been modified by resting one foot on a stool while standing. Because of spinal problems and being a short person, I have a glass in my bathroom which I fill with water and use for rinsing and cleaning my toothbrush without straining to reach the tap.

I no longer wear makeup, the standing in front of the mirror and the use of my hands in holding the various tools of the task, is now limited to special occasions only; it is too painful a task to do on a daily basis. Also, my face is so sensitive that it breaks out in red welts at the slightest pressure... which includes smearing on foundation. This is called dermagraphia.

The bottom line is taking a shower is a real workout now. In addition to modifying how I take a shower, I am going to follow these 3 rules: I will only take a shower at night, I will only take warm water showers and I will only take a shower every other day. With the employment of a good deodorant after each shower and a fresh change of underwear each night and morning, I have found that I don't offend anyone and remain feminine and dainty.

Life with chronic illness is complicated, but at least I manage to stay clean while living it!

So teach [us] to number our days, that we may apply [our] hearts unto wisdom. Psalm 90:12

Sometimes you just have to be separate

Night time has proven to be a difficult time for Chris and I. We both have problems sleeping and often we keep each other awake.

Chris has osteoarthritis in his hips and shoulder and finds it hard to drop off to sleep. His legs are restless and jumpy and painful he often suffers from bad calf muscle cramps. It is not unusual for me to find him making himself a cup of tea in the middle of the night because he can't sleep. Plus we both have sleep apnea.

But more often than that, it is I who makes it hard for him. I usually go to bed full of pain and can't really get to sleep unless Chris rubs my back. He is very good like that and I usually get to sleep quickly. However, I grind my teeth in my sleep, stop breathing for about a minute, and snore.

My medications cause GERD which has resulted in me having aspiration pneumonia and left me with asthma. I often wake up unable to breathe, and need to use my inhaler. My blood-thinners Clopidogrel and aspirin (for my stents in my heart to stay open and for antiphospholipid syndrome), cause me to have nosebleeds in my sleep as well. Poor Chris is often disturbed again with this. So we are not good night time company.

Obviously, not all these things happen every night, but a good lot do and we have often considered sleeping in separate rooms. However, I have a problem with that because I love cuddles and sex if it happens, and I love sleeping in Chris's arms until I drop off to sleep. It has been our custom for the 24 years we have been married.

So we have worked out a strategy for staying close, yet sleeping separately. Chris will come to bed with me, and when I am asleep, he will come out to sleep by himself if he can't drop off. We haven't actually got another bedroom set up in our new small house, so Chris sleeps in the recliner rocker.

We are very passionate with each other and very demonstrative and we often sit watching TV holding hands. So there is no problem with closeness. And there is no problem with sleeping separately for the most part.

This situation is not ideal, but when chronic illness threatens to deprive others of their needed rest, something has to be done. We don't see any harm coming into our marriage through separate rooms, in fact, we think under the circumstances, it would enhance it...sometimes you just have to be separate.

"When thou liest down, thou shalt not be afraid: yea, thou shalt lie down, and thy sleep shall be sweet. ” Proverbs 3:24

A clean house makes me happy

"To the contemporary mind, the idea that happiness depends on good housekeeping might seem quaint or odd. A century or two ago, and in fact until the past few decades, it was taken for granted, and the quality of housekeeping was not beneath the attention of such great novelists as Jane Austen and Leo Tolstoy." -Cheryl Mendelson, Home Comforts: The Art & Science of Keeping House

I think this true in my own life anyway. When my house runs smoothly and is in order, I feel in control but when it is disorganised or dirty, I feel irritable and unhappy. It is true that most people don't notice housework until it's not done, and that in itself doesn't bolster the home keepers' spirits. However, I have learnt to focus on the end result. It helps me get through the mundane cleaning.

There is a scripture that says that without a vision the people perish and I often equate housework with this verse. Unless we visualise the finished result of a clean house, we will often neglect doing it and miss the mark completely as regards of being a good home keeper. Like it or not, good housekeeping creates happiness. If we lose sight of that, we will be people without a vision!

Funnily enough, when my house is clean and tidy, I find am less anxious and I find it easier to relax as a clean house makes me happy.

Where [there is] no vision, the people perish: but he that keepeth the law, happy [is] he. Proverbs 29:18

Being saved is crucial if you want to live

For those of us who regularly read the Bible, it is very apparent that even though we read of a powerful God Who chastises and punishes the wicked, we also see a kind, patient, lovingly holy God Who is full of mercy.

The fact that God is merciful and holy is woven throughout scripture, both in the Old and the New testaments, and those who only see a harsh, punitive God have not truly read the Bible with an open heart and mind.

Mercy, grace, justice, love, honour, fairness and compassion are hallmarks of our God Who loved us all enough to send His only Son to die for us when we were still sinners and unloving and unkind.

The very Laws laid down in the 10 Commandments and then in Leviticus reveal a God Who knows what is best for His creation, and Who longs to teach His Children so that they will not only thrive but be holy.

When we study the Word, a beautiful picture of our God is shown us through the Word and through His Son Jesus. He embodies the qualities of the Holy Spirit, Who Himself is the third Person of the Godhead. Here is an example of the mercy of God.

Do not let the son of the foreigner who has joined himself to the Lord speak, saying, “The Lord has utterly separated me from His people”; nor let the eunuch say, “Here I am, a dry tree.” For thus says the Lord: “To the eunuchs who keep My Sabbaths,and choose what pleases Me, and hold fast My covenant, even to them I will give in My house and within My walls a place and a name better than that of sons and daughters; I will give [a]them an everlasting name that shall not be cut off". Isaiah 56:3-5

Love, joy, peace, patience, kindness, goodness, self-control and mercy are all qualities of the goodness of our God. He is in fact the totality of holiness.

It is because of God's Holiness, in that He is the essence and being of the above qualities is why He sent His Son to become sin in our place for He cannot abide with evil. Therefore, it is impossible to come into the Presence of God except through Jesus Christ. We must be born again or saved or we will not go to heaven.

We all know the world is getting darker and soon Jesus is coming in the clouds to take His Church- believers. If you are not saved, you will be left behind to face a great tribulation such as the world has never seen before. Salvation is still possible because God is merciful but man is not. Your salvation will come at a great price: you will lose your life.

If you are not saved, know that the Holy Spirit is wooing you and longing for you to accept Jesus. Today is the day of salvation: the Holy Spirit says, "Come!"

For with the heart man believeth unto righteousness; and with the mouth confession is made unto salvation. Romans 10:10

The Holy Spirit says, "Come!"

Mercy, grace, justice, love, honour, fairness and compassion are hallmarks of our God Who loved us all enough to send His only Son to die for us when we were still sinners and unloving and unkind.

Love, joy, peace, patience, kindness, goodness, self-control and mercy are all qualities of the goodness of our God. He is in fact the totality of Holiness.

If you are not saved, know that the Holy Spirit is wooing you and longing for you to accept Jesus. Today is the day of salvation: the Holy Spirit says, "Come!"

For with the heart man believeth unto righteousness; and with the mouth confession is made unto salvation. Romans 10:10

My new maid servant

So as you probably know, I have had trouble keeping up to date with my dishes. No matter how good my intentions were, by the end of the day I had a sinkful of dishes waiting to be done.

Coming in to the kitchen first thing in the morning, I was always down as soon as I saw them waiting for me to find some spoons to attend to them. I know those who suffer from fibromyalgia like I do, would understand.

As we live in a rented house and we cannot change the plumbing to accommodate a dishwasher, I felt it was a never ending cycle that I couldn't break.

One day I was looking at the price of mobile dishwashers and I noticed that they make a dishwasher that you can park on your kitchen benchtop and I knew I wanted one. So we ordered one online. It's a Devanti.

It came yesterday and I am so pleased with it. It has hoses that attach to the taps in the kitchen sink. It takes a 8 place dinner service and does as good a job as the inbuilt ones. An added bonus is that I don't have to bend to stack and unstack it.

So not only does this dishwasher solve the problem of dishes piling up and no spoons, but saves my back from trying to bend. Ankylosing spondylitis is no joke.

Anyway, I am overjoyed that the dishes are no longer my nemesis thanks to my new maid servant.