Morning Cuppas With Glenys

Bother to lift us up and not tear us down

It amazes me how many people are uninformed about something yet feel compelled to give an opinion or advice about it.

When I got fibromyalgia everyone told me it was in my head. I pushed myself physically to get through it but the emotional toll was so bad. Guilt. Failure. Self loathing. Exacerbation of it all. In the end it was all for nothing: fibromyalgia is real.

How one talks to a chronically ill person is important as often they can take those words and apply it to themself, even if that person really doesn't understand about their illness.

Quite often speaking erroneously and negatively can damage a person so much that they actually feel worse. Those words have the propensity to cause so much emotionally destructive thoughts that cripple a person worse than the disease or ailment they suffer does.

Unsolicited advice such as starting exercising, dieting, positive thinking, all sound great for most maladies, but alas, not so great for chronic illness such as heart failure, osteoporosis, spinal stenosis, lupus and fibromyalgia.

Taking this on board for the person already grieving for their lost health can lead a person straight to the Pit of Despair. And it achieves nothing.

A little kindness would go a long way to helping the chronically ill retain self respect and accept their illness quicker. But most times those who give advice are anything but kind, sounding judgmental and arrogant. Which just expounds on how truly unhelpful they really are- or try to be.

Being kind and gentle to those suffering is Christ's way- so if you think you have enough knowledge and love to impart some wisdom and instruction to a chronically ill person- do so gently and kindly.

God Himself knows we have enough to contend with already as we walk the sad and lonely path of illness. We need less words and more acts that impart sympathy and compassion.

Pray for us and comfort us and be one of the few who bother to lift us up and not tear us down.

And Jesus went forth, and saw a great multitude, and was moved with compassion toward them, and he healed their sick. Matthew 14:14

More spoons to enjoy life.

We have just moved and we are both quite tired still. Although the house is functional, there's still a lot of unpacking to do.

This weekend, two of our grandchildren wanted to come see us and give us their verdict of the new house. Knowing that memories are all we will have once they are grown, we agreed to have them.

Although I am suffering from a bad fibromyalgia flare, I got dressed and stayed up in order to spend time with them.

We cooked lunch together and watched family videos of when they were first born and growing up. It was fun but it was also non taxing to my sore body.

Today I am expecting a lady to come clean for a couple of hours. She did such a good job of cleaning our old house for our bond return, that I asked her if she would like to do a regular clean for us once a fortnight. She agreed.

With my poor daughter suffering from fibromyalgia as well and now living two minutes away, she also agreed to clean her house after ours each fortnight as well.

Both my daughter and I are finding just cooking, cleaning our kitchen, doing washing, grocery shopping, running errands like going to the chemist, planning finances and feeding our pets is enough of a job. We need some extra help.

There's very little help here for chronically ill people who can't do housework. What little we did get has been stopped since a new government has taken over the reins. So we have to pay privately.

I am grateful that I can save enough each fortnight to afford a cleaner's help. It not only keeps my home clean, but gives me more spoons to enjoy life.

Choose the best

When reading the story of Mary and Martha in Luke 10:40, many people think that Jesus was rebuking Martha in a negative way. But I don't believe this is so. He in fact, was liberating her from her perfectionism and showing her that there is more to life than just the mundane.

You may recall that Martha was busy serving and preparing the evening meal, whereas Mary was simply enjoying listening to Jesus. Martha was doing an important job, as do we wives and mothers when we manage our households and serve our families. We all know that preparing three meals a day, washing and ironing, cleaning and tidying the house, as well as caring for those of our household- and even extended households sometimes, is mundane. But no one would suggest it wasn't important. So Jesus wasn't undermining its' importance, but He was saying that putting the things of the LORD first is a better way.....

Have you ever thought about how we can so easily get too involved with the practical aspects and lose out on the social and spiritual side? I often plan to make time for Bible reading, or playing with my grandchildren or spending time with Chris, only to find that I have found something else to do. I need to prioritise my life. So, we must look at the Titus 2 order of priorities- love God, love your husband, love your children, then be a worker at home! This layout of priorities also emphasises the importance that our husbands be our first priority after God! That means my children are second to the needs of my husband. To clarify- that does not mean if a child is crying or needs something that we don't attend to them. It means we defer to our husband and put his wishes before our children's.

Often times we get so busy serving our husbands and children that we overlook enjoying them! Take time to enjoy the other important things in life, your children: they will grow up fast, and this season will be short! Leave the household chores that aren’t urgent to the childrens’ nap times, and spend time enjoying them while they are awake! Make time for your husband. He will be happier for it, you will feel more fulfilled and your children will have a happier home life because you have a good marriage!

And remember to spend time with God, for He is our firm foundation. God wants us to enjoy our life. Let us then be balanced and live under His Umbrella of Protection. For in Gods' Divine Order, we will find the balance we need for the other important things.We need to tend to the mundane things like housework, but we see that Jesus says it's important to tend to our spirit too. So choose the best!

But Martha was cumbered about much serving, and came to him, and said, Lord, dost thou not care that my sister hath left me to serve alone? bid her therefore that she help me. Luke 10:40

Engagement is the new wedding

Over the years I have noticed a growing trend in both Christian and non-Christian people to prolong their engagement over many years, and often not even to end up marrying. Often there is an engagement party and the couple are asked if they have set a date for their wedding. Usually there is no real indication of when they plan to marry, just a vague wave of the hand and a casual "when we get around to it" attitude.

In biblical times a Jewish betrothal was generally about 12 months. However, the betrothal was as if the couple were married and in fact to break the betrothal would require a divorce. Sexual relations did not take place. Indeed if a betrothed person was found to have had intercourse with someone not their betrothed, they could be stoned for adultery.

A marriage contract was called a Ketubah During this time, the groom would prepare a place for his betrothed wife. There was never any doubt that a marriage would be consummated, but the exact date was usually known only to the groom. The bride stayed with her parents and waited for her groom.

Today, there are no real expectations or enforcements of engagements. They can be broken with a minimum of outward fuss- most fuss being internalised and emotional. Other times, the young couple will just cohabit as if married and there is no wedding ring- ever. But an engagement is not a marriage.

For young Christians who become engaged, the temptation to become sexually involved is strong, and for this reason I believe an engagement shouldn't be prolonged. And just like marriage, an engagement shouldn't be entered into lightly or unadvisedly. Christians are different from the unsaved in that when one gives a promise or their word, we should carry it through.

For those considering marriage, make sure that you are fully intending to marry and that your engagement isn't too long. Impurity and cohabitation are not in God's plan for our life: He wants us to marry and bear precious seed for Him.

Becoming engaged is a promise to marry, not a promise to be exclusively available for a "permanent" relationship, nor is it to be seen as a licence for cohabitation. Betrothal from the earliest times has been seen to precede a marriage.

Everlasting engagements are the gateway to failure in being godly wives and mothers. They can lead to us being left with just our engagement ring and memories, and perhaps, with a baby or two in tow. Engagement is the new wedding.

And I will betroth thee unto me for ever; yea, I will betroth thee unto me in righteousness, and in judgment, and in lovingkindness, and in mercies. Hosea 2:19

Out of my comfort zone.

I am so exhausted right now. We have just moved house and as expected, I have welcomed a new fibromyalgia flare.

Having fibromyalgia for 23 years, I knew it would end like this, but in life some things are unavoidable and you just have to go with it.

So I sit here writing to you, trying to wind down enough to actually fall asleep. I have succeeded in making the home functional but there's much to still be done.

It will have to wait until tomorrow. As long as I have clean clothes for tomorrow and some clean cups and plates, it will have to suffice.

I hate moving so much, but I do love the house we have moved to and I am hoping the next tenants feed the birds and stray feral cat who comes to dine. I will miss them.

Wednesday I need to go to our doctor, so we will hand the keys in to the real estate then. Then they can inspect it and show prospective tenants through.

It looked lovely after the cleaners had been yesterday and the carpet cleaner's spray was perfumed so nicely. It was hard work for me to get to this point, but as I said, it was necessary.

I cleaned and packed like a pro and we expect to get our bond or security money back with no problems. My muscles are so weak now but I think the results of my effort should pay off even though I was out of my comfort zone.

It fills the void of an empty nest.

I have had our granddaughter Taylah, 10 with us for a few days as it's school holidays here and her mother works. Sunday we picked her up and we took her home Wednesday.

It's been proven that children who have grandparents active in their life are happier than children who don't- so much so, that older people are hired to be "grandparents" to children who lack them.

I think it's a two way street though. All 15 grandchildren and one great grandchild have had quality time with us and enjoyed it, but I have to say that it was reciprocal and we enjoy being there for them.

Taylah in particular has spent a lot of time with us as her mother is a single mother and works hard and long hours. Taylah has enjoyed seeing life as a country girl, learnt basic cooking skills, role played as a nurse or hairdresser or doctor, made cubby houses with me, read stories to me when she got advanced in her reading, learnt about lineage and cultures of us, her grandparents, learnt even about Judaism, basic facts of life when necessary, basic baby care, learned to speak some Italian and French, and much else- besides the most important- she has come to a saving knowledge of Christ.

Over the years, all this has been passed on to her in an easy, matter of fact way, and she has sometimes stretched my knowledge in answering her very clever questions. Being a curious child, she has been happy to learn and I in turn, have been happy to teach her.

Teaching our children and grandchildren is a natural thing and it is biblical. We not only train them, but pass down vital information that is from generation to generation. It is a responsibility that I take seriously, and as a grandmother, I find I not only have the time to step in the gap to help my busy daughter earn a wage, but I help her raise her child in a well rounded, informed way.

I find that taking time with our grandchildren not only helps them avoid being depressed, but helps us as well. Grandchildren, like our children, keep us young, and fill the void of an empty nest.

Children's children are the crown of old men; and the glory of children are their fathers. Proverbs 17:6

Pain is a disability

Anyone who suffers from chronic pain knows that it precludes us from a lot of enjoyment of life. Pain makes the vicissitudes of life that much harder to bear.

Everything is exaggerated both physically and mentally, and the only thing I can do is accept that this is not my usual self, for pain changes people.

Pain disables us in many ways. from physical activity. from family life. from sex. from sleep. from patience. from social life. from functioning normally. from life generally.

The effects of pain cause us to withdraw from people and become reclusive. It makes us feel isolated and unable to really feel understood or validated. We learn to be distrustful of others.

Because chronic pain, in my case fibromyalgia, causes us so much mental as well as physical angst, we decide to retreat to our home often preferring it even if we had enough spoons to leave.

Seeing as pain is such a disabling affliction, it makes no sense to me that we are often regarded by doctors with suspicion when we request heavy duty pain relief such as opiates.

Most of us cannot get enough medication to adequately help us with our pain. We often then succumb to depression and live as recluses due to agoraphobia.

We who suffer from chronic pain know that it is a disability. Invisible and destructive. We live in the knowledge that pain is disabling.

We just wish doctors were as aware of the ongoing relentless disability called Pain.

On the move again!

We have been busy looking for another home to rent. It's been a nightmare. There aren't many homes to rent and when we apply, we are vying with about 20 other people for the same home.

Most days we have to go to look at these houses and as we are in the country, it is at least an hour's drive each day. I am exhausted.

So much exhaustion is hard to take, especially when it brings on a fibromyalgia flare. But as in lots of things in life, it just has to be done.

I think the most stressful part is actually securing a property to move in to. The actual move is not so bad, and this time we will be paying my grandson to help us move.

With the fifth wheel and tow vehicle sold, we are in a position to get someone to do the move for us and it's especially important with our failing health to enlist help this time.

We are going to miss the birdlife here for sure, but with us being in our 70's, we have decided that we need to be closer to family and hospitals if we have an emergency.

This house is old and has no insulation and is incredibly cold and it's our winter now. With the price of electricity going up on July first, we won't be able to afford the heating in our all electric dwelling.

We are feeling the cold and are looking forward to ducted heating again.

Today there's no house viewings as it's Saturday. I have used the time to catch up on washing and I have two slow cookers going with different meals in them.

I am contemplating using Prednisolone for a few days so that my neck and jaw pain (TMJ) abates. I don't know if it will help my muscle pain in my shoulder and upper pain, but it can't hurt.

Today is the first day for awhile that I have been able to post as my muscles feel like they're tearing. But I just wanted to touch base and tell you what's happening in our part of the world at the moment.

Next week is another day of house hunting and tonight I feel like I am running on a wing and a prayer- on the move again!

We aren't just tired: we're dead tired

A woman who suffers from a chronic illness or disability often finds herself at the end of "normals'" ideas of being tired. We are often looked at with contempt for being so tired that we can't perform our daily duties properly. Or that we have to go to bed early, rise late, or cancel social engagements at the last minute. We are not lazy.

Before Corona, we were regarded with suspicion when we couldn't make it to church regularly and people harshly judged our spiritual health, deeming us backslidden. Emotional and spiritual hurt exacerbates our ill state. We feel worse and they lack compassion.

Often we have to cancel doctors' appointments because we are too sick to get there. We find we can't drive and even if we could, we haven't got the strength to even get washed and dressed. It is not unheard of that some of us have crumpled in the shower, unable to get out and totally winded...

Our "tired" goes far beyond a sleepiness or drowsy feeling. We are so fatigued that breathing is too much effort and not for the first time we are grateful it's automatic.

Furthermore, our "tired" is not helped by a nanna nap or even 9 hours of sleep. We fight our illness and pain even in our dreams and wake up unrefreshed and have to face another day when we haven't recuperated from the day before. We simply have run out of spoons.

"Tired" is overused and doesn't come close to the bone sucking quagmire of desperate fatigue we chronically ill people find ourselves sinking into constantly. To have "normals" flippantly say, "Me too!" when we tell them we are tired invalidates us and makes us long for their brand of tiredness that can be restored through a good sleep.

We cannot even enjoy a shower or bath to help us sleep as the effort it takes to do this not only drains us of whatever energy we can find, but does not always bring a restorative sleep. Just muscle pain.

Such is my own pain on going to bed that I find I cannot place my arms anywhere comfortable. My fibromyalgia and polymyalgia rheumatica make it impossible to raise my arms upwards and extending them hurts my muscles and tendons. So I go to sleep with my arms folded on my chest.

I indeed look like a cadaver which has been laid out and testifies somewhat to the feeling of being dead in my tracks. Because that's the type of exhaustion we face every day: we truly feel dead tired.

Cast me not off in the time of old age; forsake me not when my strength faileth. Psalm 71:9

We are the Church!

It is no light thing to say that even unbelievers are saying the world is coming to an end: it certainly is a time of darkness and fear.

It hasn't taken God by surprise and He hasn't kept it secret that in the end times before He comes for us, His Church, His Bride, that troublesome times will come.

We have church meetings cancelled as well as secular events in an attempt to curtail the spread of this virus. It is as if Satan wants to stop the Word of God being preached and of people being within ear shot if it is.

What he forgets is that WE Christians are the Church. It's not a building or hall. It's every true believer. His Holy Spirit dwells in us and there is no way God's Word will be silenced.

Let us pray for boldness and anointing to preach and speak the Word. How can we from home? you ask. By posting uplifting pictures with scripture. By blogging about God if you blog. By posting of Christ in your Face Book groups.

Let us be Christ's Hands and Mouth and turn this evil pandemic into the biggest opportunity in recent times of reaching the lost for Jesus!

Make no mistake: we are in the end times and the next event on the Christian calendar is the Rapture! We want to take as many as possible with us, but it depends on us as Christ's Church and Bride to continue to live fearless lives and preach the Word. We are not the Holy Spirit, but we can have people hear the Word that plants the seed for the Holy Spirit to work in their hearts.

Rise up, both normal and chroncially ill believers and proclaim in any way you can that Jesus is coming soon. We may be ill, but we are faithful! A faithful Bride and Church of Jesus!

He that loveth his wife loveth himself. For no man ever yet hated his own flesh; but nourisheth and cherisheth it, even as the Lord the church: For we are members of his body, of his flesh, and of his bones. Ephesians 5:23-30

It's a pain in the neck

Lately I have been trying to keep off the computer. I have had a horrid fibromyalgia flare and I suspect along with neck and shoulder pain, I have also got TMJ and polymyalgia rheumatica back as well.

We recently sold our GMC Sierra ute and with no more vehicles needing a driveway to park on, we have turned our attention to finding another rented home. It has proven to be a nightmare.

There are not many affordable homes to rent and we find we are vying with up to 20 different people at a viewing, all hoping to get the same property. It is terribly stressful.

I think the stress has exacerbated my fibromyalgia. I have been clenching my jaw and this has seen my TMJ return. Without a blood test to check ESR creatines and so on, I can't say that my PMR has returned, but judging from the pain and inability to raise my arms, I would not be surprised.

I have done 5 loads of washing and dryed it in the dryer as it's too painful to hang it outside. I have run the dishwasher and been to the chemist to pick up my Januvia for my diabetes. Just that small bit of work has exhausted me. My spoons have left the building.

Lately I have been thinking it isn't worth moving, but the possums in the roof wake me up with their thumpings and scratchings and the cold weather has meant that central heating is calling my name and beckoning me to a newer more modern abode.

Just typing to you has stirred up all my sore muscles, and it's traveled down my arm. So I will be taking some paracetamol Osteo soon and maybe I'll be having a nana nap.

Fibromyalgia, PMR or plain arthritis makes for a bad day by any name. Whatever ails me, it boils down to the fact that today, it's a pain in the neck.

Taken for granted

And so another week of being at home is upon us. The future is uncertain and looks a bit grim. However, there are some things surfacing out of this that are good.

There is a growing awareness of the value of living life intentionally. Because the Corona Virus is no respecter of age or gender and can be so easily acquired, there is a deeper awareness that tomorrow is not guaranteed. Life is not taken for granted any more.

Our families that live with us may get on our nerves during the isolation, but with it comes a bond or connection to each other as we brave this outbreak.

Social media and mobile phones have been great in bringing us closer in communication, but this isolation has created in most of us a longing for physical contact with those who do not live with us. There is nothing like a hug, and kiss or a hold of the hand.

There has been a greater appreciation of the first responders who truly risk their lives to keep us or our loved ones alive if they contract the virus. They are to be honoured above all others. No longer taken for granted: they are the epitomy of servanthood and sacrifice.

The chance to revive family ties or marriages is here with no work to keep us apart, and intimacy both in marriage and with the parenting relationship have the opportunity to thrive. The family is no longer taken for granted. Nor is love.

So much is changing, but as at Easter, traditional worship was replaced by streamed online services, and social distancing when at the chemist or supermarket are enforced: helping life retain some normalcy and stability.

Rona has forced the whole world to stop and reassess and has found us guilty. Guilty of believing life would just continue as it was and largely taken for granted.

There is so much negativity brought on by this virus, but one thing is positive from all of this: we will never again take our freedom, our worship, our family or our friends for granted.

"So teach [us] to number our days, that we may apply [our] hearts unto wisdom" Psalm 90:12