And so this was Christmas


So, I am sitting here the day after Christmas. I have absolutely no energy and the paracetamol tablets have done nothing to alleviate my pain from my fibromyalgia flare, my back ache and my sore arthritic feet.

My fibromyalgia has been flaring for the past five months since we started life in the fifth wheeler: well, actually it was flaring before that as we sold or gave away all our extraneous stuff and packed the van and closed up our rented house.

Prior to that we had the search for the fiver and a tow vehicle, then finding someone to put in the hitch and then the long tow back from Ballarat to Pakenham. A long round about trip. 

Three months into the trip, I tore my meniscus in the left knee again, and that put paid to being able to manage the seven steps up into the fiver. I became housebound and gained quite a bit of extra weight. We had to find a new rented home with no steps. 

We have just moved into a renovated farm house in a small country township in East Gippsland. We picked up the keys Monday 23rd December and of course the next day was Christmas Eve. We had made plans to see our little granddaughter open her presents and that meant staying overnight. We honestly felt so tired that we wished we could just cancel Christmas...

Christmas Day I helped my daughter cook and we had Christmas lunch there and then made the long trip home. I was so tired that I fell asleep on the drive home and nearly garrotted  myself on the seat belt. Chris said I was snoring sonorously. I believe him.

As it is our summer here in Australia, the weather was hot and this gave me trouble with my heart and caused my feet to swell alarmingly. I was so glad to get home and ditch my shoes and lay by the air conditioner for a bit.

This morning I took my sugars and was shocked by the high reading. I think I should not have had the choc ripple cake but it seemed like a good idea at the time.

Although we still  have stuff to unpack from the fiver and put in place here, the house is basically functional and very cosy already. 

I did pause frequently to reflect on the reason for the season: the birth of our Saviour Jesus Christ. The best part is spreading love and spending time with family if possible. If they will allow it.

I cannot say how Christmas became so commercial and such a rush, but this year no one seemed very full of the festive spirit. In fact, most seemed flushed and rushed and to be honest, those we visited were bickering and fighting and that made me anxious.

As I pour myself the last of our egg nog and head to bed for a nana nap, I have purposed to stay at home next Christmas. It is time to accept that all the hype of what should be a holy and peaceful time, is playing havoc with my ageing body. 

The beauty of the Saviour's birth will not be lost on me, but I will lose the expectation of sweet family gatherings and realise that my family is dysfunctional. 

As I make my way to my room,  I bow my head in thanks for God's wonderful gift of His Son. And I pray for peace for my family and others like it. I hope you all had a better Christmas than we did.... and so, this was Christmas! 


© Glenys Robyn Hicks

Be of good courage, and he shall strengthen your heart, all ye that hope in the LORD. Psalm 31:24

Where have all the years gone?

My, where have all the years gone?? Today is my darling eldest daughter, Sonia's 46th birthday! I remember the five hour labour, her little red face on my tummy staring at me in awe with a "where am I?" look on her tiny face! I remember them taking her to get washed and weighed and how I ached to hold her longer!

Was it 46 years ago that I unwrapped the tiny dolly for the first time and checked out her little fingers and toes? -and marveled at the beauty of the gift God had given me whilst watching her little banana top curl pulsate over her fontanel? Such beauty and perfection in a neat little 18" long x 5lbs 15oz package!

Was it 43 years ago that I made a cubby house for her with an old blanket tied to the rails of my back porch steps? I can still see her setting up her dollies and teapots and making me a cup of tea! And hear her cries as her brother played Superman and jumped on top of her!

Surely it hasn't been 41 years since I took her to school that first day where she cried and I crouched under the classroom window waiting for her to stop before I could go home in peace-and not rush in and cry with her and rush her home with me!

Forty years have not erased the memory of my sweet little girl sleeping whilst sucking her thumb and I would give anything to turn back the clock and hold her in my arms and cuddle her again.

It hasn't been 30 years since I watched her make her debut and curtsy gracefully in her grandmother's beautiful lace and satin wedding dress! Surely not- it was only yesterday- my heart says it was yesterday- my head says not! For I see her in her own three children now- and I ask myself again, where have all the years gone?

And as I kissed her for her birthday, I found a lump had formed in my throat- I am getting old. And she is starting to ask for the first time that age old question- where have all the years gone?


© Glenys Robyn Hicks


Thy father and thy mother shall be glad, and she that bare thee shall rejoice.  Proverbs 23:25

Blessings of the breasts



It is sad that there is a growing trend in our society to bottle feed our babies. If they are breast fed at all, it's just for a few days...and society seems to want it that way... It is almost as if there is a victimisation of the nursing mother. In most places there is little consideration for her and she is often forced to feed her child in a rest room or changing room.

Society is so obsessed with breast feeding's offensiveness that women have been asked to leave a restaurant or public place so as not to upset patrons... it should not be so... There is a way a mother can breast feed her child modestly, but even so, breast feeding seems to bring out a manifestation of disgust that is obsessive and ridiculous...

Why is it so? you ask. It is so because like everything else in society, breasts have been sexualised so much that there is no distinction between a woman nourishing her child and a woman flaunting her breasts for sexual provocation..

In past days, a nursing child drew loving nostalgic glances from women who themselves breastfed their own child, and little girls often mimicked their mothers, holding their dollies to their chest.... Today, it is with disbelief that the same aged child learns that babies can in fact, get their nourishment from their mothers and not only from a bottle...

It is ridiculous, really, because science has proven that the breastfed baby receives the best milk nature has to offer... yet such is the sway of society that these little ones will be fed on formula. God has provided the best for His children... from the womb... yet like everything else God has said is good- Satan has twisted and changed to become something society disapproves of...

Let's see what God thinks of breasts...

Even by the God of thy father, who shall help thee; and by the Almighty, who shall bless thee with blessings of heaven above, blessings of the deep that lieth under, blessings of the breasts, and of the womb: Genesis 49 25

O that thou wert as my brother, that sucked the breasts of my mother! when I should find thee without, I would kiss thee; yea, I should not be despised. Song of Solomon 8:1

But thou art he that took me out of the womb: thou didst make me hope when I was upon my mother's breasts. Psalm 22:9

Give them. O LORD: what wilt thou give? give them a miscarrying womb and dry breasts. Hosea 9:14

And it came to pass, as he spake these things, a certain woman of the company lifted up her voice, and said unto him, Blessed is the womb that bare thee, and the paps which thou hast sucked.  Luke 11:27

What could be better than an infant being fed from it's mother as God intended?

© Glenys Robyn Hicks

Telling it to our cat


As you probably know, we are in the process of finding a new rental to live in. We are currently living in a fifth wheeler, but I have torn my meniscus again and I cannot handle the seven steps to get in and out. I am practically housebound.

My mother passed away a year ago and I must say that I am still feeling her loss keenly. Coupled with my meniscus tear, exacerbated spinal pain because of the bed and stairs and pulled arm muscles from heaving myself up the three steps from the first level to the bedroom and ensuite, I have the Mother of all fibromyalgia flares with arthritis to boot. It has been one continuous flare since we moved in here four months ago.

My depression is compounded by the chronic pain which is constant and I have gained even more weight as I cannot move much. I am close to the Pit of Despair and something that happened yesterday didn't help me much either...

We had to go food shopping yesterday. Chris was bringing the groceries up into the fiver and I was slowly plodding my way towards the steps. A woman who has a caravan near us spoke to Chris then came up to me and offered me her hand as I painfully managed the stairs. I was so grateful and heartened that she bothered to help me. Not many people make the effort. 

At the halfway point wherein the flyscreen door swings out and one has to push it aside, I let go of her hand. I was telling her of the reason we were selling the fiver. At last I made it inside and I turned round to thank her, mid-sentence. She wasn't even there but I could see her almost at her caravan.

My feelings did a downward spiral as I realised I had been talking to myself and I felt again the loneliness of the chronically ill and disabled. From a fleeting feeling of respect and validation, I felt disrespected and my problems considered minor or of no consequence. The chronically ill or disabled will understand what I am speaking about.

We don't ask for constant validation and never ending compassion. We know that the "normals" who don't experience the pain and inconvenience of disease and disability, can't empathise, just sympathise. But what we do ask is that we be heard, respected and validated.  Nothing compounds our physical pain as much as being ignored, made fun of or marginalised. This is important to us..

The "normals" can even help prevent a trip to the Pit of Despair by showing a bit of interest and compassion to us, so please don't be like our neighbour in the caravan park who didn't want to know. 

I am not minimising the power of prayer, and we should pray and talk to the LORD, but we need another listening ear sometimes, but often people don't want to hear us and for all the good it does, we might just as well tell it to our cat. 

© Glenys Robyn Hicks

Bear ye one another's burdens, and so fulfil the law of Christ. Galatians 6:2

A letter for parents of prodigals

My husband and I have experienced the reality of knowing, “I have no greater joy than to hear that my children are walking in the truth” 3 John 4 Our two daughters professed Christ at an early age, witnessed in their schools, traveled on mission trips, and embarked into adult life with a passion for Christ. Our family life has been built around joy and laughter; and even through the teen years, we enjoyed close family times backpacking and ministering together here and abroad. The girls have been characterized as leaders, constantly encouraging and challenging those around them to live their Christian beliefs.

It always brought us great joy knowing that our children were walking in the truth. Then one bought into a lie. Now we see the flip side to the above verse; there is no greater sorrow than seeing your children walk in a lie. Since our daughter’s ungodly choices, we have grieved for the loss of our close family relationships, for our witness in our community and family, over the eventual consequences of her decisions, and even grieved that God would allow this to happen.

Our joy, peace, energy, and focus have been drained and replaced with despair, anger, fatigue and distraction. We have been plagued by questions. How could this happen? What should we do? What would influence her? How should we respond? Our close family was thrown into crisis; joy turned to sorrow, and lies twisted truth. The parable of the prodigal son has become a real and personal journey with a precious, yet prodigal, daughter.

At one point in this heavy journey, I had a mental picture of us facing our prodigal daughter, she standing with her back to us. We were pleading and begging for her to turn around, listen to God’s Word, and recognize the lies. Then the focus shifted and God was standing behind me, my back turned to Him, and He was calling me to turn around and to recognize the lies. God was trying to get my attention while I was trying to get my daughter’s attention. Her lies were different from mine, but nonetheless I had also been ensnared by lies. God was pleading with me to recognize and accept His truth in my own life.

God’s truth needs to be sorted from the enemy’s lies.

I cannot allow my daughter’s actions to define me, but I can, through God’s help, allow them to refine me. Through godly counsel and His Word, the truth is being sifted from the enemy’s subtle and pervasive lies. The refinement process is not complete, but I have identified, examined, and discarded the following lies:

Lie #1: What if?

The enemy loves to get us into the “what if” or blame game. What if I had been more persuasive? What if I had counseled her with more studied words? What if I had been more discerning? What if I had just been a better mom? I was consumed with analyzing every nuance over the past years, reviewing my interactions, and questioning my role as both mother and wife.

My analytical thoughts became paralyzing and I spiraled downward into a pit of remorse and inadequacy. Slowly through the slime, I began to see that it is not all about me. My eloquence or lack of it, my parenting skills or lack of them, will not ultimately change a heart. That is the Holy Spirit’s job. I can be obedient to God’s direction. I can do the best I can in parenting and counseling. But the ultimate work is God’s. My pleas will not bring a prodigal into right thinking, right living, or right decisions.

Our daughter made this choice in spite of Scripture, godly models, and counsel, and she will also reap the consequences of her choice. Ezekiel 18:20 reminds us that “…the son will not share the guilt of the father, nor will the father share the guilt of the son. The righteousness of the righteous man will be credited to him, and the wickedness of the wicked will be charged against him.” I can neither accept the blame nor take the credit. The “what ifs” must cease because they are not from God.

Lie #2: If you parent well enough, your child will not make ungodly choices.

When my daughter turned away from her firm foundation, I questioned how this could happen to my family. Subconsciously and incorrectly, I presumed that Proverbs 22:6, “Train a child in the way he should go, and when he is old he will not turn from it” guaranteed a child’s godly choices. The Lord showed me, through my own heartache, that I have wrongly judged others and their parenting ability. I thought if someone had a child not walking with the Lord, it was always a direct reflection on their parenting skills. Now on the other side with a wayward daughter, I realize the lie and repent of my judgment of others. Godly parenting does not guarantee a godly child.

Lie #3: My prodigal adult child disqualifies me for ministry.

One of the qualifications listed in 1 Tim. 3:4 for an overseer is to “manage his own family well and see that his children obey him with proper respect.” This does not refer to adult children. But Satan wants to fuel our insecurities, have us focus on our inadequacies, and cripple our ministries. Instead of stepping out of ministry, we should step up to be used by God. The more open and transparent we are in our parenting journey, the more dependent we are on Him for strength, and the more opportunities there will be for us to minister.

During the painful times of answering concerned inquires about our daughter, has emerged a new openness for those sharing similar burdens. One embarrassing instance of addressing pointed questions at a neighborhood party resulted in a phenomenal opportunity to share God’s truth. Leadership is not about being perfect individuals. It is about being humbly obedient and available. Transparency and vulnerability can make us better servant ministers.

Lie #4: God is powerless to intervene.

Somewhere in this extended battle, I crossed the line from believing God would not act to believing God could not act. I fell prey to the lie that God could not change our daughter’s mind or way. My personal systematic theology had me spinning in circles around God’s sovereignty and the free will of man. The Lord had chosen to not answer my fervent prayers to radically intervene in our daughter’s life. Since faith and hope are intricately entwined, I was hopeless.

My view of God was too small. I do not understand how God’s sovereignty and free will work, but I have become convinced that God is so much bigger than we can ever imagine. He can and will intervene if He so chooses. This mom needs to trust more, worry less, and stop trying to figure everything out. He is God and I am not! My God, our God, is a God of hope that fills us with all joy and peace as we trust in Him (Rom. 15:13), and He is more than able to do great things.

This mother’s journey in parenting a prodigal is far from over. The hurt and sadness are still very real and close. But as the Lord has revealed the insidiousness of the enemy’s lies, the burden has become more manageable. Now I can focus on what I am learning and not on what my daughter should be learning. This was reiterated during a recent visit. We were scheduled to rendezvous with our precious prodigal after church.

The sermon was unexpectedly all too relevant: “Grace Demands a Death.” The pastor pointed out that if we are to extend grace, as Christ did, we must also experience death. As parents, we need to die to our dreams, our desires, and our expectations for our children. We need to love them unconditionally, expecting nothing in return. Still stirred from this poignant message, we exited the church building and saw our daughter standing on the far side of the parking lot.

My husband ran to our cold, stiff daughter, standing sullenly by the car, and wrapped her in a warm, loving hug. That was our best visit to date! My hope has been renewed; He is restoring my soul. Like Habakkuk, I will wait and keep watch from the ramparts to see what the Lord will do. God is in control and He loves us and our prodigals dearly. author unknown

I didn't write this article, but as a mother of a prodigal, I found this article very truthful and helpful. To all parents of prodigals I say, "Don't look inward, behind or forward- just keep looking up! And remember that Jesus loves your child as much as you do!"

Blessings, Glenys

“Bear one another burdens and so fulfill the law of Christ” Galatians 6:2

Coping with change and disappointment


As you know, we live in a fifth wheeler RV  We have been on the road for three months. Having sold or given away most of our stuff, we have very little left. But it didn't matter as this RV had most things we needed. It was a dream come true.

The dream is coming to an end. My body can't cope with RV life. All my ailments are exacerbated by living in the fifth wheel. I have torn my meniscus in my left knee and I can no longer manage to get up the seven steps and the three up into our bedroom and ensuite. I am almost housebound.

Because the bed is difficult to get in and out of, I need to pull myself up and my shoulder and neck muscles vie in hot contest of being the sorest. As a result, my polymyalgia rheumatica is back and bad.

I have to slide down the wall to help take pressure off my sore knee and this has played havoc with my spinal problems and after getting up the main steps, I suffer angina really badly.

My fatigue is so bad and my fibromyalgia is in a flare. The stress of finding a new house and forcing myself to use the steps in order to do that is causing me to go into a depression.

There's no way round it: no mobility aids to overcome the problem and we will have to sell the fiver. It is a very disappointing turn of events.

I had prayed that I would be making the right choice in buying the fiver and GMC tow vehicle and in how I used my inheritance my mother left me last year. I felt sure this was the way to go but three months into our venture, it is apparent that for me, it is not a lifestyle I can maintain.

In a Christian's life, there is nothing that God hasn't already seen, and in saying that, I must confess that I believe everything is for a purpose. Whatever is in the future is part of God's plan for my life.

In feeling the disappointment, I must remind myself of this. I look forward to looking over this chapter in my life's book and seeing God's purpose for this. God is good. All the time.

© Glenys Robyn Hicks


He has made everything beautiful in its time. Also He has put eternity in their hearts, except that no one can find out the work that God does from. Ecclesiastes 3:11

Sex isn't everything


This picture reminds me of Chris and I in the kitchen... I often can be washing the dishes and he will come behind me for a cuddle.. I still blush and giggle like a school girl!  I usually go weak at the knees when he kisses the back of my neck, and I turn around and kiss him passionately.  Finally, we break away, breathless with romance and laughter!  Most times, he then pitches in and helps me finish washing up.

This little dalliance of ours to us is quite romantic and that coupled with the fact that Chris helps me with the dishes, makes me feel nurtured and happy- it doesn't take a lot for me! Which is good, because money is short for a lot of flowers and chocolates.

We do go out together for meals whenever we can salt away a little money.  Nothing too expensive, but we bring our own ambiance!  Just looking into each others' eyes and holding hands over the table reminds us of our early days together and keeps us focused on each other.  Truly, we do adore each other.

Because money is in short supply, and because we constantly laugh together and cuddle often, we feel that special occasions such as Christmas, birthdays and Valentines' Day aren't necessary to show affection and love. We in fact, do not buy gifts for these for each other. And it is perfectly fine with us. We do, however look at our wedding photos and reminisce a lot on our anniversary or any other date significant to us...

I think it may be the fact that we are an older married couple that makes it easier to see romance in ways that younger couples don't.  With age and fibromyalgia and heart and back problems and Chris with his diabetes, sex is either umcomfortable or impossible. So both Chris and I look forward to a bubble bath at home with a good back wash and nail trims or a foot or back massage.  We do that for each other on a regular basis. To us, nurture is romance!

Chris loves me bringing his breakfast into him in the morning. This to him is romantic and although his not buying me presents and sending me cards may seem that he is an unromantic man, nothing could be further from the truth.  He sings to me! We have some special songs that he says were written just for us, and he will play them on the computer, and take me in his arms and croon to me as we dance slowly round the living room.

Because I am often in hospital, Chris shows his care by staying with me most of the day until visiting hours are over, just stroking my hair and holding my hand. Or he will come with our laptop and headphones for me. My heart melts with love for him.  We can't stand to be away from each other.

Illness, medications, no spoons and age have curtailed our times of intimacy, but we manage to show love to each other in ways that are imaginative, erotic and very caring.  There is absolutely no thoughts of unmet needs- love can be expressed in ways other than full sexual intercourse, and we delight in each other regardless! If sex happens, it's a bonus!

So we don't care about no presents or cards for Christmas, or birthdays or Valentines' Day-  with the romantic sparks that still fly between us, and our little dalliances, every day is Valentines' Day. 

I thank God for Chris as I am one very blessed wife, and I tell him often.... he finds that very romantic too! We are proof that you can live without sex! Sex isn't everything!

© Glenys Robyn Hicks

Likewise, husbands, live with your wives in an understanding way, showing honor to the woman as the weaker vessel, since they are heirs with you of the grace of life ... 1 Peter 3:7  this post has been written with my husbands' permission.

It's love in action


I have been reflecting on the amount of grandmothers who have a large role in bringing up their grandchildren, or who even have custody of them. 

Some of my childhood memories include playing with my father's work mate's children. This friend was a widower and he was left with two young children to bring up. He was helped by his mother, Mrs B.

Mrs B was a senior woman of about 75 years. She wore her grey hair in a tight bun and sported black lace up shoes that gave her appearance a rather severe look, especially with her long black skirt and white blouse that did up right to her neck. She wore no jewelry and I guess you could say she was a plain person.

At the time she took on her motherless grandchildren and moved in with them, she was enjoying a wonderful life as a companion/assistant to a woman of wealth. She was widely traveled and lived in a large prestigious house. Yet, she gave it all up to raise her son's children with him.

Even as a young child, I was impressed by this woman and thought how great was this lady's heart and love that she gave up a truly salubrious life for them.

It is only as a senior great-grandmother myself, and on reading that God classes this devotion as a mitzvah and is especially dear to His heart, I realise that this self sacrifice is so precious to God and to the grandchildren being cared for.

This to my mind exemplifies the sacrificial life of His Son Jesus, Who was perfect in love and sinless. Such kindness is also a fruit of the Holy Spirit.

To all grandmothers who care for their grandchildren, know that your sacrificial love is indeed pleasing to God. It's more than being kind: it's love in action.

© Glenys Robyn Hicks


But the fruit of the Spirit is love, joy, peace, longsuffering, gentleness, goodness, faith, meekness, temperance: against such there is no law. Galatians 5:22-23

"Little Angels"


On wings of love we laid you down, 
Wrapped moonbeams round your sides, 
We dimmed the light of distant stars 
And sang you lullabies. 
We lingered round your cradle 
As we gazed at you in awe- 
To us you were as angels 
Too perfect for this world. 
You must have dreamt of Heaven 
For you decided not to stay, 
The angels came and took you 
On the clouds on which you lay. 
Now Jesus gently rocks you 
In His strong and gentle arms, 
We know now, little angels, 
You are safe from any harm… 
Lord, lay them down in a cradle of gold, 
Tuck rainbows round their sides, 
Cover them with Your angels’ wings 
And if they ever cry- 
Tell them Mum and Dad are coming 
Just as soon as they awake- 
Please kiss our little angels, Lord 
And love them in our place.

© Glenys Robyn Hicks

"Take heed that ye despise not one of these little ones; for I say unto you, That in heaven their angels do always behold the face of my Father which is in heaven.” Matthew 18:10 

For my twin babies, Sarah and Ruth Urbani, born sleeping November 12, 1969

When an aspirin won't fix it



When it comes to Fibromyalgia many people – men and women – have reported a reduction in their libido due to the sometimes chronic nature of the condition. Sometimes Fibromyalgia sufferers can feel perfectly well and are willing to make love but a ‘flare-up’ can put paid to such willingness.

The sheer unpredictability of the condition is such that it can leave one or both partners feeling as though they are not wanted and that perhaps the other partner is making excuses; this is simply not the case.

Sufferers of Fibromyalgia, especially in its chronic form, find it difficult to make love because of the levels of pain they have to endure. Making love requires a considerable amount of bodily movement and if the trigger points flare up then this movement can be painful or at the very least uncomfortable.

Another problem with Fibromyalgia is the way in which an individual’s body weight can fluctuate; this too has consequences on the libido, making the sufferer feel as though they are unable to perform and instilling in them a lack of self-confidence which manifests itself as a lack of libido.

It is important to emphasise that a lack of libido can be turned around either by reducing stress and anxiety or by changing one’s daily routine. Your doctor will not necessarily prescribe any medication to help combat this problem as there is not really much that can be done physically about the condition.

I think it is very important to reassure your husband that you still love him even though you are hurting too much for intimacy. In areas of chronic pain and illness, communication must be open so that there are no silent doubts about whether you as a wife, still love your husband.

So important is this area of intimacy in marriage, that I would suggest that you be willing to try to accommodate your husband at any reasonable time, instead of just at night when you are understandably tired out. If lovemaking is simply impossible, remember to caress and cuddle your husband. author unknown

Remember to be demonstrative and vocal with letting your husband know you love him. He will most likely be feeling anxious that he can't help you in your suffering. Fibromyalgia flares can't be fixed by taking a few aspirins.

Blessings, Glenys 

My beloved is white and ruddy, chief among ten thousand. Song of Songs 5:10

Feeling a bit washed out!


As you probably know, we live in a fifth wheeler RV full-time.  It has some benefits which I am slowly starting to see, with compact living that reduces the work needed to maintain it a bonus.

We are by the sea at Seaspray Caravan Park. The weather has been great, but last night it rapidly became colder and today it is muggy and raining.
This doesn't normally worry me, but as a sufferer of fibromyalgia, it often brings on a flare and it has. I am overwhelmed with muscle and body aches and tiredness.
Although living in a RV makes it easier to keep clean and maintain, there are many things that need to be done daily. Especially when you have a cat that lives inside.
There are meals to cook and clothes to wash as well, and even when housework's shared with a partner, there are some things that a woman just has to do in homemaking. Life in a RV isn't just a long holiday.
As I type, I can see our bed and it is calling my name. Chris is going to tuck me in for a nana nap. Hopefully I will feel better after that and will have enough energy to cook a Shepherd's Pie for dinner.
After I am tucked up in bed, Chris has promised to run the Dyson Stick Vacuum over the floors. For the first time I am glad there aren't a lot of floors to do.
But for not the first time, I am glad that we have a queen sized cosy bed just feet away from me. I am going up the three steps to it as soon as I post this.
So much for one long vacation: fibromyalgia doesn't take a holiday. I am feeling a bit washed out.

© Glenys Robyn Hicks


Be of good courage, and he shall strengthen your heart, all ye that hope in the LORD. Psalm 31:24

Welcome Validation: False Guilt's cousin



Sometimes when I am having a flare of my fibromyalgia, I find that I need to feel validated in my sufferings. Not many people believe that fibromyalgia is real, and when you feel wiped out with chronic fatigue, endless pain and brain fog for weeks at a time, you can suffer from False Guilt. This is a cousin to needing Validation. So, feeling like that, I decided to look up some sites and recap the symptoms of the complaint. Here they are:

Fibromyalgia produces widespread pain, disturbed sleep, and exhaustion from head to toe.1 Fibromyalgia means pain in the muscles, ligaments, and tendons—the soft fibrous tissues of the body. Although the muscles hurt everywhere, they are not the only cause of the pain. Instead, the diffuse, body-wide symptoms are greatly magnified by malfunctions in the way the nervous system processes pain.2,3

Regional muscle pain not related to arthritis or the nervous system also occurs in the majority of people with fibromyalgia.4 Patients describe this as firm knots in the belly of muscles, often causing restricted movement and radiating pain.5 These muscle nodules are myofascial trigger points and some researchers suspect that these painful areas overlap with the tender points used to diagnose fibromyalgia.6

The symptoms of fibromyalgia are unpredictable and most patients are frustrated by their physical limitations and inability to make plans. You may feel as though you have to "push yourself" to get things done.7

Most patients with fibromyalgia say that their muscles feel like they have been pulled or overworked, and sometimes they twitch or cramp.8 Even the skin may feel badly sunburned.9 To help your family and friends relate to your fibromyalgia symptoms, have them think back to the last time they had a bad flu. Every muscle in their body shouted out in pain. In addition, they felt devoid of energy as though someone had unplugged their power supply.

Given that the symptoms may be similar to a viral flu, experts in the field of fibromyalgia and chronic fatigue syndrome believe that these two illnesses may be one and the same.10 Gulf War syndrome also overlaps with these two conditions.11
Common symptoms:

Pain - Fibromyalgia pain has no boundaries. People describe the pain as deep muscular aching, throbbing, shooting, stabbing, or intense burning. Quite often, the pain and stiffness are worse in the morning, and muscle groups that are used repetitively may hurt more.12 In addition, the severity of regional pains (particularly those in the head, neck, shoulders and lower back) are a strong predictor of a person's overall pain rating.13 The muscles in these painful areas can feel tight, knotted and rope-like. Pressing on the firm, knotted region hurts and often causes the pain to shoot to other muscles when a myofascial trigger point is present.

Fatigue - This symptom can be one of the most incapacitating for people with fibromyalgia. Patients may feel as though their arms and legs are weighted down by concrete blocks and their bodies may be so drained of energy that every task is an effort.7

Memory and Concentration - Difficulty concentrating and retaining new information may seriously interfere with everyday mental tasks.14 This symptom is referred to as "fibro fog" and may hinder job opportunities. In particular, fibromyalgia patients have serious difficulty retaining new information if they are distracted.15

Sleep Disorders - Patients report trouble falling asleep and more importantly staying asleep, but the unrefreshing quality is what makes the disorder much worse than insomnia. Repeat arousals prevent patients from reaching deep, restorative sleep.16 As a result, the night is spent in "quasi-sleep" and patients wake up feeling as though they have been run over by a Mack truck. An overnight sleep study will likely show repeat arousals with bursts of awake-like brain activity occurring throughout the night, but a specific sleep disorder may not be identified.17

Exercise Difficulties - Moderate intensity exercise activates a powerful pain-relieving system in healthy people, but it makes the pain of fibromyalgia worse.18 This is why initiating an exercise program may make you achy and tired. However, if you do not exercise on a regular basis, the performance of normal daily living activities will start to cause more pain. Rather than give in to the increased pain sensitivity related to exercise, patients are advised to do mild exercise in short intervals (such as five minutes at a time) to keep the muscles fit while not over-taxing them. A study in Sweden revealed that half of the fibromyalgia patients found it impossible or difficult to climb stairs and a majority of patients could not run. Just standing for five minutes was extremely taxing to one-fourth of the patients.19

Irritable Bowel Syndrome - Constipation, diarrhea, frequent abdominal pain and bloating, abdominal gas, and nausea represent symptoms commonly found in roughly 40 to 70 percent of fibromyalgia patients.20

Chronic Headaches - Recurrent migraine or tension headaches are experienced by 50 to 70 percent of fibromyalgia patients. Most headaches are rated as severe, occur at least two times per week, and often have a migraine component.21 Referred pain from myofascial trigger points in the shoulder, neck, and head muscles are suspected to be responsible for most tension-type headache and also play a role in migraines.22

Jaw Pain - Temporomandibular joint dysfunction causes tremendous jaw-related face and head pain and affects one-quarter of fibromyalgia patients. Typically, the problems are related to the muscles and ligaments surrounding the jaw joint and not necessarily the joint itself.23

Other Common Symptoms - Non-cardiac chest pain, acid reflux, irregular heart beat or palpitations, shortness of breath, numbness and tingling sensations, the feeling of swollen extremities, chemical sensitivities, nasal congestion, premenstrual syndrome and painful periods, irritable bladder, interstitial cystitis, vulvodynia (vulvar pain), difficulty focusing eyes, dry or burning eyes and mouth, dizziness or feeling faint, profuse sweating, muscle weakness and balance issues can occur.24,25,26 Fibromyalgia patients are often sensitive to odors, loud noises, bright lights, some foods, and often the medications that they are prescribed.27

Aggravating Factors - Changes in weather, cold or drafty environments, hormonal fluctuations (premenstrual and menopausal states), stress, depression, anxiety, and over-exertion can all contribute to fibromyalgia symptom flare-ups.12
Fibromyalgia Quick Facts

* Affects 3 to 5 percent of the general population28
* Occurs in people of all ages, even children
* Men develop fibromyalgia too, although more women are diagnosed with it
* Symptoms are chronic but may fluctuate throughout the day
* Roughly one-quarter of people with fibromyalgia are work-disabled12

The general consensus here in Australia is that fibromyalgia is all in ones' head and that the sufferer is a malingerer. Certainly this exacerbates False Guilt and invites his cousin, Validation into the scene. Although I am aware of false guilt leading to me wanting to feel validated, I still succumb to it at times of prolonged flares such as this one I am experiencing at the moment.

I have *every* one of these symptoms, so I feel validated. So welcome Validation: hopefully he and his cousin won't be staying long!

© Glenys Robyn Hicks


Be of good courage, and he shall strengthen your heart, all ye that hope in the LORD. Psalm 31:24